Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened!

gfmolly

By gfmolly
in Coping with Celiac Disease

Recommended Posts

gfmolly Contributor
gfmolly
Posted

I am 1 year into this and have been doing remarkably well. I think I've gotten too brave, because yesterday at Germanfest I asked about the brats (they were Usingers) and whether or not they had been boiled in beer. They were, but the manager offered to cook me one that wasn't in the beer. He came back, put it in a bun and handed it to me. Then I told him I couldn't have it and why, and he cooked me another one. Sure enough, in the middle fo the night last night I thought I was going to die!!! Major cramps and then D and sweats. I woke up this morning with a huge headache, but mostly better. I just want to be somewhat normal and eat fun food sometimes that is safe!!

Any thoughts??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted

Sorry you're feeling bad. That is no fun. You probably had CC from the grill and the utensils. The utensils touch the buns then your brat and whammie! If the grill wasn't washed clean of the beer brats, whammie! Sorry, I went to a family reunion yesterday where there was very little I could eat. But I ate what I could and had a Lara bar with me and had a good time. It wasn't just about the food.

no-more-muffins Apprentice
no-more-muffins
Posted

Believe me, I feel your pain. I was just thinking of coming here and starting a similar thread. I was on a cruise all week last week and did great. I am only a month into the gluten-free diet and I had finally started feeling better. On the way home from the cruise I ate at taco bell. I made 2 great mistakes:

1. Eating at taco bell in the first place. I thought they'd have more safe stuff. I am going to be giving them a call today.

2. Eating 1 bite of 1 corn chip which I spat out when I realized I had forgotten to ask if it was cooked in common oil. It was. I ate pintos and cheese though. It is hard to believe that 1 bite of 1 corn chip could make me sick for 3 days (so far). The pintos and cheese could have been CC'ed too.

I had been feeling so good finally and I am so discouraged to be sick again. It makes me wonder if it was really the taco bell. I am still waiting on some results from enterolab and it is hard to know for sure if it was gluten or what.

I feel your pain. I really do.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748
    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.