Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Another Sensitivity?


elle's mom

Recommended Posts

elle's mom Contributor

OK, I am still trying to figure out my 4yo celiac daughter. When she first got diagnosed and started gluten-free diet, we saw a drastic improvement in her. She remained dairy free also for 1 month, then slowly added it back in and she seemed fine. She started growing and was generally a much more cheerful, happier kid. Her pot belly tummy seemed to really go down a lot. This all lasted for some time, maybe like 6 months. Since then her REALLY bad, crabby, naughty mood comes and goes (I call her jekyl and hyde sometimes-only to myself). It's like she turns into the devil, but cannot explain to me what is making her so crabby.

Anyway, I am sure she is sensitive to something else which is causing her mood swings. We've tried a dairy free trial for 2 weeks and NO difference. I know soy, egg, and other sensitivities are common, but any suggestions as to figuring this out other than just a trial elimination? What is most likely after the dairy? Is two weeks enough time? Actually, since we added dairy back into her diet she seems happier, so I'm sure it's something else.

Also, does anyone know if the doctors can do an actual test to find out what it could be? We don't really have a knowledgable pediatrician-I teach him things. Although he is really nice and will order whatever I request, so any suggestions would be helpful. Last time he suggested that maybe she is constapated-it doesn't seem like it but we've been doing the fiber in her morning OJ....Fibersure (I checked and think it's gluten-free, but any contradictions appreciated).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

She could just be being, well, four. One thing you could do if you suspect other sensitivities is have her tested by Enterolab to see if she is forming antibodies to other proteins. They test for yeast, egg, gluten, soy and can do a test for malabsorption. Insurance doesn't usually cover the testing and you would order right from the Enterolab web site. The other option is of course eliminating the other suspect items one by one.

dilettantesteph Collaborator

Or it could be from gluten cross contamination.

happy2bme Newbie

Potatoes, nuts and seeds, rice, corn, alternative flours you may be using, bell pepper, cucumbers, squash, bananas. I noticed many people on here with celiac have sensitivities to many other foods. The ones I put down may sound silly. They are no no foods for my daughter. They even make her cry, get pink under her eyes, and misbehave. Goodluck finding the culprit. Maybe even have a food sensitivity panel done on her to put you one step ahead of the game. Goodluck to you!

ang1e0251 Contributor

Are you giving her processed foods? Or breads or foods labeled gluten-free? Lots of these have low amounts of gluten that can affect the sensitive. It does sound like she's getting gluten somewhere, sneaky gluten.

The other possibility that comes to mind is food dyes. My little niece is sensitive to red dye and she turns into a little monster on it. She doesn't eat anything red including vitamins. My friend's grandson even cannot take pink antibiotics because of the dye.

elle's mom Contributor
Potatoes, nuts and seeds, rice, corn, alternative flours you may be using, bell pepper, cucumbers, squash, bananas. I noticed many people on here with celiac have sensitivities to many other foods. The ones I put down may sound silly. They are no no foods for my daughter. They even make her cry, get pink under her eyes, and misbehave. Goodluck finding the culprit. Maybe even have a food sensitivity panel done on her to put you one step ahead of the game. Goodluck to you!

Ok, so apparently I am really green at this because what is a food sensitivity panel, and is that the same thing the other poster was referring to from Enterolab? Any idea how much this would be?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,748
    • Most Online (within 30 mins)
      7,748

    NYC Sidewalk Repair
    Newest Member
    NYC Sidewalk Repair
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.