Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Post A Question?

ann72601

Recommended Posts

ann72601 Apprentice
ann72601
Posted
:rolleyes: I feel kinda lazy/stupid, but I've never done this before. JUst in case it makes to the posts though: I have heart palpitations, insomnia, chronic constipation and I'm not sure whether I'm going crazy or if it's the celiac. I don't have a doctor in this little town and the one I did see made me feel like I was a nut to even say 'celiac', so does anyone have any advice on any of these issues? Thank you.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
:rolleyes: I feel kinda lazy/stupid, but I've never done this before. JUst in case it makes to the posts though: I have heart palpitations, insomnia, chronic constipation and I'm not sure whether I'm going crazy or if it's the celiac. I don't have a doctor in this little town and the one I did see made me feel like I was a nut to even say 'celiac', so does anyone have any advice on any of these issues? Thank you.

Hi Ann and welcome!

I will move your question to the Pre-Testing Thread, where you will get some replies.

siligurl Rookie
siligurl
Posted
:rolleyes: I feel kinda lazy/stupid, but I've never done this before. JUst in case it makes to the posts though: I have heart palpitations, insomnia, chronic constipation and I'm not sure whether I'm going crazy or if it's the celiac. I don't have a doctor in this little town and the one I did see made me feel like I was a nut to even say 'celiac', so does anyone have any advice on any of these issues? Thank you.

Just cuz you may have celiacs doesn't mean you're not crazy... LOL!!! just kidding...

Anyway, celiacs could fit all of those descriptions and you can look at this board or celiac.org to find a litany of symptoms. YOU ARE NOT A NUT TO QUESTION WHETHER YOU HAVE CELIACS. If you go to the celiac.org website, you'll see that this is one of the most widely UNDERdiagnosed conditions out there, and those who are knowledgable will tell you its one of the most prevalent. actually, on the Doctor channel on sirius, they mentioned a recent study that explained why-- how we are processing wheat now-- from genetic alterations to the pesticides etc-- is affecting how humans "process" the wheat. WE created celiacs, in other words. Anyway.

Are you anxious? High strung? Depressed? Irritable? If you answered yes to these questions AND they are unrelated to your physical symptoms (in so far as it's not your health that is causing you to be anxious, depressed, or irritable), then maybe you should see a therapist because your symptoms could be psychosomatic (which is not to say it's in your head... it's just that there is a psycho-bio relationship). If you answered no, then there's a physical cause... and your gut knows. YOu can get tested over the internet... Enterolabs I think... HOpefuly one of the regulars will post more. OR, just demand that your doctor run the tests regardless of whether he thinks you're crazy or not-- he works for you, not the other way around.

best, Jennifer

ang1e0251 Contributor
ang1e0251
Posted

If you're going to ask your dr to test you, make sure you are still eating gluten every day. The tests won't be accurate if you are not eating gluten.

ann72601 Apprentice
ann72601
Posted
  • Author
:rolleyes: I feel kinda lazy/stupid, but I've never done this before. JUst in case it makes to the posts though: I have heart palpitations, insomnia, chronic constipation and I'm not sure whether I'm going crazy or if it's the celiac. I don't have a doctor in this little town and the one I did see made me feel like I was a nut to even say 'celiac', so does anyone have any advice on any of these issues? Thank you.
ann72601 Apprentice
ann72601
Posted
  • Author

Thank you all for your advice. I guess I wasn't clear: I've known for a few weeks that I have Celiac, but I don't understand all the symtoms. I feel better if I don't eat at all as it seems to make all the problems much better. Not being able to go to the bathroom has turned into a nightmare and makes me sick all over. I have so many complaints that I just don't want to talk about any of it and feel like it must be all in my head, or a mistake??? Does this disease ever get better? I have so many things wrong with me now that I feel hopeless and I suppose I just want to know that there is hope. How long does it take to start feeling normal again, or will I? It's scary.

ang1e0251 Contributor
ang1e0251
Posted

Some of your symptoms could be related to vitamin deficiencies. Have you been tested for that? Do you take vitamins or supplements? Right off I can say that magnesium will help with the constipation. I take a little over 600 mg's but you have to work up to that amount. It also helps with sleep and blood pressure.

What's your diet like? You could be eating some foods that are constipating. List what you normally eat and see if we can help.

You're not hopeless and it's not all in your head; it's in your gut and it will get better. Hang in there!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


siligurl Rookie
siligurl
Posted
Thank you all for your advice. I guess I wasn't clear: I've known for a few weeks that I have Celiac, but I don't understand all the symtoms. I feel better if I don't eat at all as it seems to make all the problems much better. Not being able to go to the bathroom has turned into a nightmare and makes me sick all over. I have so many complaints that I just don't want to talk about any of it and feel like it must be all in my head, or a mistake??? Does this disease ever get better? I have so many things wrong with me now that I feel hopeless and I suppose I just want to know that there is hope. How long does it take to start feeling normal again, or will I? It's scary.

From what I've read, you have to not only stop ingesting gluten (which could be hidden in your medicine) but you also have to give your body time to heal. So, depending on the damage done, it might take you awhile to feel better.

"not being able to go to the bathroom" is a medical problem. What has your dr said? Have you tried softeners or laxatives?

I too have A LOT of issues and I too have been accused of it all being in my head. IT IS NOT. You have physical issues, and physical issues have real, biological causes. It just may be that your doctor isn't up on the right thing to help fix it. Perhaps it's not just Celiacs-- could it be candida toxicity too?

Bless you, Jennifer

ann72601 Apprentice
ann72601
Posted
  • Author
From what I've read, you have to not only stop ingesting gluten (which could be hidden in your medicine) but you also have to give your body time to heal. So, depending on the damage done, it might take you awhile to feel better.

"not being able to go to the bathroom" is a medical problem. What has your dr said? Have you tried softeners or laxatives?

I too have A LOT of issues and I too have been accused of it all being in my head. IT IS NOT. You have physical issues, and physical issues have real, biological causes. It just may be that your doctor isn't up on the right thing to help fix it. Perhaps it's not just Celiacs-- could it be candida toxicity too?

Bless you, Jennifer

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748
    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.