Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Post A Question?

ann72601

Recommended Posts

ann72601 Apprentice
ann72601
Posted
:rolleyes: I feel kinda lazy/stupid, but I've never done this before. JUst in case it makes to the posts though: I have heart palpitations, insomnia, chronic constipation and I'm not sure whether I'm going crazy or if it's the celiac. I don't have a doctor in this little town and the one I did see made me feel like I was a nut to even say 'celiac', so does anyone have any advice on any of these issues? Thank you.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
:rolleyes: I feel kinda lazy/stupid, but I've never done this before. JUst in case it makes to the posts though: I have heart palpitations, insomnia, chronic constipation and I'm not sure whether I'm going crazy or if it's the celiac. I don't have a doctor in this little town and the one I did see made me feel like I was a nut to even say 'celiac', so does anyone have any advice on any of these issues? Thank you.

Hi Ann and welcome!

I will move your question to the Pre-Testing Thread, where you will get some replies.

siligurl Rookie
siligurl
Posted
:rolleyes: I feel kinda lazy/stupid, but I've never done this before. JUst in case it makes to the posts though: I have heart palpitations, insomnia, chronic constipation and I'm not sure whether I'm going crazy or if it's the celiac. I don't have a doctor in this little town and the one I did see made me feel like I was a nut to even say 'celiac', so does anyone have any advice on any of these issues? Thank you.

Just cuz you may have celiacs doesn't mean you're not crazy... LOL!!! just kidding...

Anyway, celiacs could fit all of those descriptions and you can look at this board or celiac.org to find a litany of symptoms. YOU ARE NOT A NUT TO QUESTION WHETHER YOU HAVE CELIACS. If you go to the celiac.org website, you'll see that this is one of the most widely UNDERdiagnosed conditions out there, and those who are knowledgable will tell you its one of the most prevalent. actually, on the Doctor channel on sirius, they mentioned a recent study that explained why-- how we are processing wheat now-- from genetic alterations to the pesticides etc-- is affecting how humans "process" the wheat. WE created celiacs, in other words. Anyway.

Are you anxious? High strung? Depressed? Irritable? If you answered yes to these questions AND they are unrelated to your physical symptoms (in so far as it's not your health that is causing you to be anxious, depressed, or irritable), then maybe you should see a therapist because your symptoms could be psychosomatic (which is not to say it's in your head... it's just that there is a psycho-bio relationship). If you answered no, then there's a physical cause... and your gut knows. YOu can get tested over the internet... Enterolabs I think... HOpefuly one of the regulars will post more. OR, just demand that your doctor run the tests regardless of whether he thinks you're crazy or not-- he works for you, not the other way around.

best, Jennifer

ang1e0251 Contributor
ang1e0251
Posted

If you're going to ask your dr to test you, make sure you are still eating gluten every day. The tests won't be accurate if you are not eating gluten.

ann72601 Apprentice
ann72601
Posted
  • Author
:rolleyes: I feel kinda lazy/stupid, but I've never done this before. JUst in case it makes to the posts though: I have heart palpitations, insomnia, chronic constipation and I'm not sure whether I'm going crazy or if it's the celiac. I don't have a doctor in this little town and the one I did see made me feel like I was a nut to even say 'celiac', so does anyone have any advice on any of these issues? Thank you.
ann72601 Apprentice
ann72601
Posted
  • Author

Thank you all for your advice. I guess I wasn't clear: I've known for a few weeks that I have Celiac, but I don't understand all the symtoms. I feel better if I don't eat at all as it seems to make all the problems much better. Not being able to go to the bathroom has turned into a nightmare and makes me sick all over. I have so many complaints that I just don't want to talk about any of it and feel like it must be all in my head, or a mistake??? Does this disease ever get better? I have so many things wrong with me now that I feel hopeless and I suppose I just want to know that there is hope. How long does it take to start feeling normal again, or will I? It's scary.

ang1e0251 Contributor
ang1e0251
Posted

Some of your symptoms could be related to vitamin deficiencies. Have you been tested for that? Do you take vitamins or supplements? Right off I can say that magnesium will help with the constipation. I take a little over 600 mg's but you have to work up to that amount. It also helps with sleep and blood pressure.

What's your diet like? You could be eating some foods that are constipating. List what you normally eat and see if we can help.

You're not hopeless and it's not all in your head; it's in your gut and it will get better. Hang in there!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


siligurl Rookie
siligurl
Posted
Thank you all for your advice. I guess I wasn't clear: I've known for a few weeks that I have Celiac, but I don't understand all the symtoms. I feel better if I don't eat at all as it seems to make all the problems much better. Not being able to go to the bathroom has turned into a nightmare and makes me sick all over. I have so many complaints that I just don't want to talk about any of it and feel like it must be all in my head, or a mistake??? Does this disease ever get better? I have so many things wrong with me now that I feel hopeless and I suppose I just want to know that there is hope. How long does it take to start feeling normal again, or will I? It's scary.

From what I've read, you have to not only stop ingesting gluten (which could be hidden in your medicine) but you also have to give your body time to heal. So, depending on the damage done, it might take you awhile to feel better.

"not being able to go to the bathroom" is a medical problem. What has your dr said? Have you tried softeners or laxatives?

I too have A LOT of issues and I too have been accused of it all being in my head. IT IS NOT. You have physical issues, and physical issues have real, biological causes. It just may be that your doctor isn't up on the right thing to help fix it. Perhaps it's not just Celiacs-- could it be candida toxicity too?

Bless you, Jennifer

ann72601 Apprentice
ann72601
Posted
  • Author
From what I've read, you have to not only stop ingesting gluten (which could be hidden in your medicine) but you also have to give your body time to heal. So, depending on the damage done, it might take you awhile to feel better.

"not being able to go to the bathroom" is a medical problem. What has your dr said? Have you tried softeners or laxatives?

I too have A LOT of issues and I too have been accused of it all being in my head. IT IS NOT. You have physical issues, and physical issues have real, biological causes. It just may be that your doctor isn't up on the right thing to help fix it. Perhaps it's not just Celiacs-- could it be candida toxicity too?

Bless you, Jennifer

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,066
    • Most Online (within 30 mins)
      7,748
    MamaMercedes
    Newest Member
    MamaMercedes
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.