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Blood Work Necessary And Which Tests?

NOT-IN-2gluten

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NOT-IN-2gluten Rookie
NOT-IN-2gluten
Posted

Hello,

I am a new member so I hope this is the right area for my questions.

I am self diagnosed gluten intolerant. Got glutened last night. It was awful.

I am now wondering, what else can I do to feel better and get my energy back?

I had blood work done about 3 months ago due to not feeling well. I am searching for the paperwork, but as I recall, it looked like thyroid tests. Everything was fine except my protien levels were low. Could this be due to malabsorption? I eat a lot of protien! I am now considering going back to my gynocologist who is the only one that believed I am not feeling well and asking for more blood work. My family doctor told me to google my symptoms. (see my blog)

The tests I see that I should have are:

IGA

IgG

EMA

ttg

Am I missing anything? If I have the blood work done, I'd like to know if I have dificiencies. I have been eating gluten free for approximately 6 weeks and I am aware that this could skew the test for Celiac. Should I have testing done? Is it necessary? Will the information be valuable? I'd appreciate any information you have to share. Thanks! Sandra

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siligurl Rookie
siligurl
Posted
The tests I see that I should have are:

IGA

IgG

EMA

ttg

Am I missing anything? If I have the blood work done, I'd like to know if I have dificiencies. I have been eating gluten free for approximately 6 weeks and I am aware that this could skew the test for Celiac. Should I have testing done? Is it necessary? Will the information be valuable? I'd appreciate any information you have to share. Thanks! Sandra

Hey, I think those are all the tests... but if you've been gluten free for 6 wks, you'll skew the results. you have to be eating gluten for the tests to be accurate... i think they say about 4 slices of bread a day for about 4-6 wks... others here may be more knowledgable, but yes, you have to be ON a gluten diet for tests to work.

best, Jennifer

NOT-IN-2gluten Rookie
NOT-IN-2gluten
Posted
  • Author
Hey, I think those are all the tests... but if you've been gluten free for 6 wks, you'll skew the results. you have to be eating gluten for the tests to be accurate... i think they say about 4 slices of bread a day for about 4-6 wks... others here may be more knowledgable, but yes, you have to be ON a gluten diet for tests to work.

best, Jennifer

happygirl Collaborator
happygirl
Posted

Tests: Open Original Shared Link

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

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      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
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      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
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    • knitty kitty
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