Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Work Necessary And Which Tests?


NOT-IN-2gluten

Recommended Posts

NOT-IN-2gluten Rookie

Hello,

I am a new member so I hope this is the right area for my questions.

I am self diagnosed gluten intolerant. Got glutened last night. It was awful.

I am now wondering, what else can I do to feel better and get my energy back?

I had blood work done about 3 months ago due to not feeling well. I am searching for the paperwork, but as I recall, it looked like thyroid tests. Everything was fine except my protien levels were low. Could this be due to malabsorption? I eat a lot of protien! I am now considering going back to my gynocologist who is the only one that believed I am not feeling well and asking for more blood work. My family doctor told me to google my symptoms. (see my blog)

The tests I see that I should have are:

IGA

IgG

EMA

ttg

Am I missing anything? If I have the blood work done, I'd like to know if I have dificiencies. I have been eating gluten free for approximately 6 weeks and I am aware that this could skew the test for Celiac. Should I have testing done? Is it necessary? Will the information be valuable? I'd appreciate any information you have to share. Thanks! Sandra


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



siligurl Rookie
The tests I see that I should have are:

IGA

IgG

EMA

ttg

Am I missing anything? If I have the blood work done, I'd like to know if I have dificiencies. I have been eating gluten free for approximately 6 weeks and I am aware that this could skew the test for Celiac. Should I have testing done? Is it necessary? Will the information be valuable? I'd appreciate any information you have to share. Thanks! Sandra

Hey, I think those are all the tests... but if you've been gluten free for 6 wks, you'll skew the results. you have to be eating gluten for the tests to be accurate... i think they say about 4 slices of bread a day for about 4-6 wks... others here may be more knowledgable, but yes, you have to be ON a gluten diet for tests to work.

best, Jennifer

NOT-IN-2gluten Rookie
Hey, I think those are all the tests... but if you've been gluten free for 6 wks, you'll skew the results. you have to be eating gluten for the tests to be accurate... i think they say about 4 slices of bread a day for about 4-6 wks... others here may be more knowledgable, but yes, you have to be ON a gluten diet for tests to work.

best, Jennifer

happygirl Collaborator

Tests: Open Original Shared Link

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,201
    • Most Online (within 30 mins)
      7,748

    Karen LK
    Newest Member
    Karen LK
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.