Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiacs Absorbing Iron?


Sparkle1988

Recommended Posts

Sparkle1988 Rookie

Hi

This may seem like a silly question, but can someone with celiac disease absorb iron in tablet form?

The reason I am asking is that I have loads of symptoms which would point to celiac, but I remember that a few years ago when my iron was at its lowest point, I was able to get my iron level back up again with a couple of month supply of iron tablets. Is it possible for this to happen with a person who has celiac?

I am getting my biopsy done on Friday to test for celiac.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jststric Contributor

Interesting correlation! I used to have a very healthy iron level and donated blood regularly. But two or three years prior to discovering I was gluten-intolerant, my iron level started dropping and I can no longer donate blood. My doc says its not anemic, but runs on the very low side of normal. She had me taking an iron supplement but I eventually had to stop because I discovered it had milk in it and I'm also dairy-intolerant. I recently discovered Kirkman Labs, an online vitamin/supplement company that makes gluten-free,dairy-free, allergen-free products and ordered some of their liquid iron. My doc prescribed that I take double the amount called for to see if it will build me back up some. I never would have thought of my iron issues being correlated with my gluten issues, though. I don't think my doc has made that connection either. But its certainly worth exploring! Let us know what you find out!!

gfb1 Rookie
Hi

This may seem like a silly question, but can someone with celiac disease absorb iron in tablet form?

The reason I am asking is that I have loads of symptoms which would point to celiac, but I remember that a few years ago when my iron was at its lowest point, I was able to get my iron level back up again with a couple of month supply of iron tablets. Is it possible for this to happen with a person who has celiac?

I am getting my biopsy done on Friday to test for celiac.

Thanks

my wife has had to have parenteral iron (i.e., iron infusions) for the last 6.5 yrs to keep fe, ferritin, & hb levels up to normal. for some unknown reason, although she has been diagnosed as being celiac for ~10 yrs and her gi tract is apparently 'healed' - she has been unable to absorb iron normally.

this may have had something to do with her having manganese poisoning due to intake of herbal supplements and vitamins around the same time (a very long story, i'm afraid), but has lasted well beyond the resolution of that issue. we have gotten the timing of her infusions to approx once every 6-8 wks.

curiously, after moving out of state, it has been 9 wks since her last iron infusion, her blood levels are well within normal ranges, and our 'new' doc is suggesting waiting a few more weeks, then do a blood test to determine if the malabsorption issues have resolved themselves.

i do NOT recommend this for everyone/anyone, as regular infusions carry significant risk (even in the doctors office). but we exhausted all other possibilities and infusions remained as 'the answer' (for her). as to whether this is celiac related, nutritional issue -- or something completely different -- i haven't a clue.

Sparkle1988 Rookie

Thanks for your replies guys.

I'm just wondering if Celiac Disease would be ruled out of the list of possiblities for me as I managed to absorb iron tablets a few of years back? (when my symptoms starting gradually getting worse)

Thanks

ang1e0251 Contributor

I don't think you can make that leap in reasoning as each person with celiac disease is so different. I don't really think that the medical community has a good handle on malabsorption; how exactly it works and how each person responds to it. It would make it easier if we could just plug into a computer for diagnostics like we do our cars!

tarnalberry Community Regular

no, being able to absorb iron tablets does not rule out celiac.

many celiacs are NOT iron deficient, or B-vit deficient, or calcium deficient, or vit-D deficient... the damage can be spotty, and is not uniform in how is affects absorption. it may have played a role in why you were unable to absorb enough iron from your regular diet, and had to take higher potency pills in order to make your iron go up.

lovegrov Collaborator
Thanks for your replies guys.

I'm just wondering if Celiac Disease would be ruled out of the list of possiblities for me as I managed to absorb iron tablets a few of years back? (when my symptoms starting gradually getting worse)

Thanks

Definitely not.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sparkle1988 Rookie

Thanks for all your replies guys!

I get my biopsy tomorrow morning so I will let you know how it goes. I'm a bit worried in case they find nothing....

Sparkle1988 Rookie

Hi again

Just thought I would let you know that my biopsy wen really well yesterday. I have still got a sore throat though. My results are going to take 3 weeks which sucks! I just want to know.....

Once my biopsy was done, the doctors couldn't tell me anything about what they seen, they said that they can't tell until the results come through. Is it normal for them not to know roughly what they saw?

Thanks

jkr Apprentice
Hi again

Just thought I would let you know that my biopsy wen really well yesterday. I have still got a sore throat though. My results are going to take 3 weeks which sucks! I just want to know.....

Once my biopsy was done, the doctors couldn't tell me anything about what they seen, they said that they can't tell until the results come through. Is it normal for them not to know roughly what they saw?

Thanks

Yes, that's what my doctor told me after my endoscopy was done last Wednesday.

Sparkle1988 Rookie
Yes, that's what my doctor told me after my endoscopy was done last Wednesday.

Ok, thanks for your reply jkr :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.