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Not Having A Good Day

Jennifer2

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Jennifer2 Explorer
Jennifer2
Posted

I've been gluten-free since Thursday.

I've been really carefull with everything I've eaten.

Today I am feeling pretty nauseous.

Is it just not long enough on the diet yet to expect results? Before dx I had some good days and some bad days.

Could I be replacing my normal diet with too many veggies too much too soon? Previously, I'd have a salad or veggie side dish with dinner, but that was pretty much it. Now, I'm using them as snacks on top of what I eat at dinner.

Did I accidentally eat something with gluten? I've been really carefull, but again, I only have 6 days now of experience!

Is it just my body saying, "hey, where the heck is my bread" I haven't ventured into the breads/pastas yet and I've never been a big rice eater, so I've been kind of down a food group for the last few days.

Or, did I just pick up a stomach bug of some type? I guess not everytime I get sick will it be because of gluten right?

Jennifer

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RideAllWays Enthusiast
RideAllWays
Posted

It takes a while to feel better. It could be that you have glutened yourself by accident, either by cross contamination or by eating something you never would have guessed had gluten in it (i did this a lot at the start...) Give it time. If it has only been six days you're body is most likely still adjusting. Drink lots of water and hang in there! :)

JillianLindsay Enthusiast
JillianLindsay
Posted

Hi Jennifer,

Sorry you aren't feeling well and I can certainly relate. I have been gluten-free for 3 weeks now and it has been a roller-coaster. I felt fantastic for a few days and then was back to feeling lousy for the next few. Some have said it is gluten withdrawl ("where the heck is my bread?" symptoms). Of course, double-check all supplements/medications you are taking and clean out your kitchen to make sure you're not getting cross-contamination. Keep being diligent and checking labels and food ingredients, but also be patient while your body heals. It is so hard and this is a great place to get support from people who have been (or are) there and understand. Everyone heals at a different rate and in different ways so hang in there and don't give up, relief is on the way!

Good luck

I've been gluten-free since Thursday.

I've been really carefull with everything I've eaten.

Today I am feeling pretty nauseous.

Is it just not long enough on the diet yet to expect results? Before dx I had some good days and some bad days.

Could I be replacing my normal diet with too many veggies too much too soon? Previously, I'd have a salad or veggie side dish with dinner, but that was pretty much it. Now, I'm using them as snacks on top of what I eat at dinner.

Did I accidentally eat something with gluten? I've been really carefull, but again, I only have 6 days now of experience!

Is it just my body saying, "hey, where the heck is my bread" I haven't ventured into the breads/pastas yet and I've never been a big rice eater, so I've been kind of down a food group for the last few days.

Or, did I just pick up a stomach bug of some type? I guess not everytime I get sick will it be because of gluten right?

Jennifer

shendler Rookie
shendler
Posted

Oh how I understand..everything I've been eating lately no matter what makes me wanna throw up :( ! Hang it there though with time it should get better.

ang1e0251 Contributor
ang1e0251
Posted

If you don't like rice, how about potatoes? I especially like them sliced over a salad. Yum!

yogamommytrainer99 Apprentice
yogamommytrainer99
Posted

I've been gluten free for over 3 weeks and it has been tough, I read labels - I pay attention. But, I am still sick to my stomach... Some of that could be accidental glutenizing (love that word), some is due to increased fruit and veggie intake, and the rest is due to wheat-withdrawl...

I think that it's the nature of the beast!

My doc explained it as an adjustment period - I'd think I'd like to call it something else! My regular routines have been altered, my energy is lowered, etc.

But, there is a bright side! Things will get better for you (and for me), as long as we stick with the diet/lifestyle our bodies and minds will thank us by getting better, stronger, healthier!

Hang in there and read these boards for support!

Jennifer2 Explorer
Jennifer2
Posted
  • Author

Thanks everyone

I had some glutino crackers and Sprite and am starting to feel better. I think I need to find a gluten free version of saltines. Saltines and sprite always helped when I was a kid to settle an upset stomach.

I think it just might take some time to adjust.

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    • knitty kitty
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      By knitty kitty · Posted

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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