Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cured Of Celiac

magaka

Recommended Posts

magaka Newbie
magaka
Posted

I have been told by one person that they had celiac at birth but no longer have it. I have met two other people who said they had relatives who once had celiac but no longer have it. Everything I read says there is no cure and yet three people have insisted that they or their relatives no longer have it. It is not just that they are symptom free. Can they be correct?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

At certain stages in a young person's life the symptoms seem to leave, or lesson. Some believe that active hormons may have something to do with this, as they are most active in the teen age years and early 20s.

But there is no cure for Celiac, if they were properly diagnosed before, they still have it. ;)

gf4life Enthusiast
gf4life
Posted

I've heard this from multiple people as well. I think what Viola said is true. If they were properly diagnosed before, then they still have it. It could have gone into a sort of remission during puberty, but it is not gone, and they should still be gluten-free if they don't want to be sick again. There is always the possiblity that they were misdiagnosed in the first place, but the chances are slim. Years ago almost no one was diagnosed with celiac disease. So if I hear a story about a person diagnosed 20 years ago who outgrew the disease, chances are that they were actually correctly diagnosed. But they were told then that it was a childhood disease that COULD be outgrown. :(

I always cringe when people tell me their son (or daughter, sister, brother, etc.) "had that, but they outgrew it". I try to explain to them that it isn't possible to outgrow the disease, but sometime the symptoms appear to go away. Most are not receptive to hearing it. They don't want to think that they might have to do the diet again, but for me the diet might be a challenge, but it is so worth it to have myself and my kids healthy.

God bless,

Mariann

KaitiUSA Enthusiast
KaitiUSA
Posted

They have not been cured...if they had it then they have it now. Sometimes symptoms can go away so you think you are ok then but your not. You can't outgrow it.

Guest gfinnebraska
Guest gfinnebraska
Posted

Can I add a different twist to this topic? Are there many out there that believe in healing? Not through medicine but through God? I am praying for a healing... will it happen? I don't know! But I can pray!! :) Just curious if there are any other believers in miracles out there. :) God has healed me of other "minor" problems in my past... so I am believing for this as well!!!

Rikki Tikki Explorer
Rikki Tikki
Posted

Yes Kimberley I do believe in the power of prayer. I have been praying to be healed for a long time. I don't know if he is not listening or if he has another purpose for all of this. Miracles can and do happen. Keep praying.

KaitiUSA Enthusiast
KaitiUSA
Posted

Yes Kimberly I do believe in the power of prayer. I have seen it work in so many cases... and it can't hurt...just because God may not answer your prayer right away or at all doesn't mean He doesn't care or He is not listening. So keep praying :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dan Newbie
Dan
Posted

If the symptoms lesson during puberty, does the damage also lesson?

lovegrov Collaborator
lovegrov
Posted

" If the symptoms lesson during puberty, does the damage also lesson?"

I don't think anybody, even an expert, can guarantee anything on this. I think it stands to reason that if symptoms disappear and tests come back normal or nearly so, the damage would be less. But are the heightened chances for all complications reduced? I don't think anybody could say.

richard

KaitiUSA Enthusiast
KaitiUSA
Posted
If the symptoms lesson during puberty, does the damage also lesson?

If symptoms go away that doesn't really tell much because alot of celiacs don't get symptoms but they still get damage.

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

How ironic?

I was back in Ohio this past weekend.

I decided to have a bite to eat at this small restaurant run/owned by a talented chef.

Anyway, that day, the bartender had called in sick. So, the General Manager had to work behind the bar. We started talking and "Celiac" came up -- his ex-girlfriend has it, so he was well acquainted and recommended a great appetizer for me.

Anyway, he told me that one of "thier" friends had been cured of it and there was a journal/study in the New England Journal of Medicine about it. He claimed this person was "definitely cured" and there was medical proof.

I called him a liar and demanded another glass of wine....funny, eh?

Donna F Enthusiast
Donna F
Posted

Oh, that would be so nice - to be spontaneously cured! :P

I went into a sort of "remission" a few years ago. I went from the diet to eating "normal" and felt fine for several months until it finally caught up with me again just 5 or 6 months later. I had less antibodies before the remission, when I had been feeling really, really aweful. However, as soon as my symptoms returned (and not nearly to the extent I had had them previously) my antibody count was much higher. I guess that means they were building up regardless of the symptom-free period I went through.

Ah well, I pray for a cure or remedy or something. I can't wait to have my freedom back! Sure, I may be eating healthier overall, and I feel great now, but it would also be nice not to have to scrutinize every single ingredient and worry about contamination everywhere I go!

-donna

celiac3270 Collaborator
celiac3270
Posted

Absolutely ridiculous....I was looking at samples from their archives online a few weeks ago--nothing of the sort--(btw, I was looking at their publication on the oats study...unfortunately, I would've had to pay to read it). No cure...I liked your response. :lol:

Maggie1956 Rookie
Maggie1956
Posted

Yes Kimberley, I truly believe in the power of prayer and the healing power of God. I have been healed of asthma, which I had most of my childhood.

As we wait for the LORD to heal us, we need to totally and completely stick to a gluten-free diet. If God does heal us, and that decission is His alone, then we still have to have be tested again with all the tests necessary to confirm it.

Keep well, and stay happy. :D

Rikki Tikki Explorer
Rikki Tikki
Posted

I was thinking today that if the end of my life was near, I would eat everything in sight.

Anyway, I don't think there is a cure, I think there would be too much damage, that maybe we couldn't see.

I don't want to take the chance. It took too many years for the doctor's to figure out what was wrong!

ianm Apprentice
ianm
Posted

I had periods of time where I would not feel fatigue or brain fog but as I got older those times would be few and far between. It is possible to go into remission but it never really goes away.

As far as the prayer thing here is how I look at it. The gluten free diet IS the answer to my prayers. God will show you the path but it is up to you to find it and follow it. He's not going to just drop it in your lap and everything will be a happily ever after fairytale. Nope, just doesn't work that way. Once I learned what the problem was and how to fix it I embraced it whole heartedly and without hesitation. If you are waiting for some dramatic miracle I think you are going to be waiting for a very long time. Miracles happen all the time but they usually don't involve any form of obvious divine intervention.

Guest gillian502
Guest gillian502
Posted

I agree wholeheartedly with the above post. I pray all the time for better health and for a "miracle", but I would never go off this diet no matter how much better I felt. That would be like praying for more money to help yourself through a financial hardship, and quitting your job in the meantime! Just doesn't work that way. God helps those who help themselves...stay on the diet, keep seeing doctors, and God will work through them AND you.

Guest gfinnebraska
Guest gfinnebraska
Posted

I agree that you should stay on the diet... BUT, God can completely heal! Miracles ARE for today... staying on the gluten-free diet is not being healed. It is like praying for money and God giving you a loan you have to pay back ~ God doesn't work THAT way. We could go on and on with this discussion and different points of view. I was just curious how many people on this board with celiac disease believe in the power of God to completely heal us. I am glad that I am not the only one! :D:D:D

ianm Apprentice
ianm
Posted

I guess it really comes down to how you define healed. If being "healed" means that I get to eat processed crap then no thank you I don't want to be healed. If being "healed" means being forced to eat better foods, exercising and generally living a healthier lifestyle then to me that is really the better way to go. Yes there are certain foods I can't eat but to me that is a small price to pay for the drastically improved life I am now living.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,898
    • Most Online (within 30 mins)
      7,748
    MLucia
    Newest Member
    MLucia
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.