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Heath117t

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Heath117t Newbie

Hello all,

I was just offically diagnosed with celiac disease yesterday. After going back and forth with different doctors and an IBS diagnosis my family physician decided to do a celiac panel blood test. This came back with only one abnormal result. GI doctor decided to do the scope and to his surprise he said that the biopsy was consistent with damage due to celiac disease. What to do now? I'm relieved to finally have an answer to why I constantly feel sick after eating, etc. but I'm very overwhelmed with all this new information. Just wondering if anyone has any suggestions of a good way to start my Gluten-free life?

Thanks much,

Heather


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grainfree Newbie

Heather, so sorry to hear you have been unwell but good news that it can now be changed. I believe I am a couple of steps away from a positive result of celiac disease. I am sure others will reply very soon about your next steps. I felt/feel a little scared as well about what a diagnosis of celiac disease will mean, but knowing that feeling better and staying better is achievable is very good motivation to stay on a gluten free diet. I does seem daunting. Holding my hand out toward you in support.

LDJofDenver Apprentice

Welcome to healing! There's a lot of support here, and we're all in the same shoes.

It can be a little overwhelming at first, but before you know it, you'll have it down.

If you don

Rissmeek Newbie
Welcome to healing! There's a lot of support here, and we're all in the same shoes.

It can be a little overwhelming at first, but before you know it, you'll have it down.

If you don

missy'smom Collaborator
if you use cast iron you'll have to start over with new. There's no way to get rid of the gluten that's on and in it.

You can toss cast iron in the oven on self cleaning cycle(as is-no cleaners). The extremely high heat blasts everything to dust. Messy but effective. When it's done and cooled down, scub it well, reseason and dedicate it to gluten-free only.

Heath117t Newbie

Thanks for all the tips and support. I'm so glad to have this site to learn from everyone who already has gone through this. Everyone is very helpful...I appreciate it! :D

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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