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Pen Pal


Jocammie

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Jocammie Newbie

Hi, I'm relatively new to the gluten free life (6 months). In general I don't like talking to groups, I prefer a one-on-one, close friend kind of thing. I was originally hoping I could meet other people who lived in Washington to talk with, but I haven't had much luck. I realized maybe it'd be easier to find a good pen pal or two who are in a similar boat. If you also feel the need to have a specific individual or two to talk to about all the various challenges and joys of having to give up gluten, then I'd love to become pen pals! (Email, or for that matter old traditional mail pen pals if that suits you better)

I am 25 year old female who lives in WA with my husband and 3 other roommates.. none of them are gluten free. I originally went gluten free at the suggestion of a natruropathic doctor. Within a week I felt amazingly better. Several months later when I heard about Celiac it was too late to test accurately. I saw a massage therapist (who specializes in energy work) when she took one look at me she was shocked at the damage she could feel in my stomach and said I must be a Celiac, but I can't really use that as proof for my doctor. I really love how much healthier I feel being gluten free, but I'm also finding it hard to have to be so cautious about what I eat, and I'm still trying to work out how to fit my gluten free lifestyle into my social life.

Anyhow, I'd love to meet a good pen pal so we can share everything we are going through in more of a one-on-one setting! If you want to try at pen pals email me:

(jocammie at yahoo dot com)

Thanks


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RideAllWays Enthusiast

I emailed you :) from d.hoholuk@hotmail.com

Devon

Ms27 Newbie

I emailed you too. :)

Chuck8268 Rookie
Hi, I'm relatively new to the gluten free life (6 months). In general I don't like talking to groups, I prefer a one-on-one, close friend kind of thing. I was originally hoping I could meet other people who lived in Washington to talk with, but I haven't had much luck. I realized maybe it'd be easier to find a good pen pal or two who are in a similar boat. If you also feel the need to have a specific individual or two to talk to about all the various challenges and joys of having to give up gluten, then I'd love to become pen pals! (Email, or for that matter old traditional mail pen pals if that suits you better)

I am 25 year old female who lives in WA with my husband and 3 other roommates.. none of them are gluten free. I originally went gluten free at the suggestion of a natruropathic doctor. Within a week I felt amazingly better. Several months later when I heard about Celiac it was too late to test accurately. I saw a massage therapist (who specializes in energy work) when she took one look at me she was shocked at the damage she could feel in my stomach and said I must be a Celiac, but I can't really use that as proof for my doctor. I really love how much healthier I feel being gluten free, but I'm also finding it hard to have to be so cautious about what I eat, and I'm still trying to work out how to fit my gluten free lifestyle into my social life.

Anyhow, I'd love to meet a good pen pal so we can share everything we are going through in more of a one-on-one setting! If you want to try at pen pals email me:

(jocammie at yahoo dot com)

Thanks

Hi,nice text,and ive been celiac disease for 6 yrs.Its tough,esprcially like now getting ready to go on vacation.You can email me anytime to talk

Chuck

JillianLindsay Enthusiast

Hi Jocammie,

I'm a 26 year old female and was just diagnosed with celiac disease a month ago. I live with my husband and our foster son, both of whom eat gluten. I'm a full time University student and work as a social worker with teens. I am a huge sports nut :)

I've found this forum very supportive and helpful at learning about celiac disease and adjusting to the gluten-free diet. It's been a bit of a roller coaster up and down since my Dx!

Anyway, if you want to chat with a fellow Celiac female around your age, feel free to add me to FB or MSN -- jillian_enright@hotmail.com

Good luck to all of us!

Jillian

NJKim Newbie

Hello there!!

Well I have to let you know you are not alone at all! I'm 21 years old and have had Celiac's for 17 years now... So for me, its become what I am used to but I understand how difficult it is for others. If you would like to discuss anything at all, feel free to. I have A LOTTTT of experience with the challenges faced and have had many issues as well. My email is klull.18@gmail.com. Drop a line or two or any questions.

Sincerely,

Kim

  • 2 weeks later...
blueshift Apprentice

I am 60 years old and anybody here who wants to exchange emails with me concerning celiac disease is free to. I never figured it out until I was 56 and had discomfort that long.

r.pease@sbcglobal.net


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    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
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