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So Tired...

pchick

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pchick Rookie
pchick
Posted

I was wondering if anyone has gone through the same thing?

My test results were negative, but my IgA count was extremely low, so they wouldn't read positive even if I had celiac for sure.

current test results:

Triglycerides: 480

Blood sugar: 111

borderline anemic

CS1: +3 candida, +1 saprophytic fungi

GP2: no parasites

MB2 Total intestinal SIgA: <11 (normal range is 400-880)

MB3 Intestinal lysozyme: 4 (normal is 6)

MB4 Alph Anti-Chymotrypsin: <14 (normal is <60)

FG1 Chymotrypsin: <3 (normal is >9)

no allergy to milk, soy, egg

F14 Gliadin Ab SIgA: 7 negative

Because of this I went gluten free 3 weeks ago and so much is going better. My heartburn has stopped, I'm becoming more regular :) , I have less abdominal pain and a lot less bloated. My skin has almost cleared up completely (first time ever) and I'm thinking much more clearly so I'm having positive response to the diet.

The thing is though, for the last few days I've been VERY tired again. All I want to do is sleep, it's hard to keep moving sometimes and so I've been taking too many naps (and still not feeling rested).

So I'm wondering if anyone else has this? Could it be a healing response (I've been sick for a long time and now have leaky gut)? It almost feels like a detox ~ kind of a heaviness in the body and head. I don't know... maybe I was "glutened" but I don't think so. Everything else is holding fine - still regular and such, but I'm just really, really tired... and I have a strange tingling sensation all over, including my tongue.

Just looking for answers or someone who is experiencing the same thing ~ I'm so confused... and I really just want to feel normal for a little while.

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Amyleigh0007 Enthusiast
Amyleigh0007
Posted

B12 really helps me beat fatigue. I know it has helped many here too.

pchick Rookie
pchick
Posted
  • Author

Thanks Amyleigh, I just ordered gluten free multi vitamins... should get here Monday. Doc put me on enzymes and probiotics, and something to facilitate iron permeability.

I've been taking EmergenC's when I feel woozy... and I think that helps. I know the vitamins will help.

momxyz Contributor
momxyz
Posted

Could it be another sign of healing?

Did by chance, you have issues with insomnia as well as GI problems?

My daughter has been working on eliminating gluten too. (The big sources were easy, now I'm working with her to be aware of stuff where gluten is precent as an additive... ie read the fine print.)

One of her complaints was insomnia...trouble falling asleep, trouble staying asleep.. Last night she slept for over 11 1/2 hours. That's the first time that's happened in a long time.

Maybe your body needs the rest, and now, you can finally get it?

elle's mom Contributor
elle's mom
Posted

pchick-

I have been gluten free now for only 3 months but having a similar experience to you. I was always VERY tired and fatigued-needed naps every day-felt like I would die without. That feeling slowly began to get better after about two months of gluten-free, but came back again on & off. Til now I have chalked it up to female monthly issues-but maybe it is a healing response or something.

Googles Community Regular
Googles
Posted

I have been gluten-free for about a month and a half now. I still have days where I am exhausted and when I get home from work all I can do is fall into bed for two hours before I get up and eat dinner. It does seem to go in phases. Good luck with adding the vitamins, I hope it works. Have you had your vitamin D, folic acid and other vitamins checked to see if you need more than over the counter vitamins will provide?

pchick Rookie
pchick
Posted
  • Author

sorry to hear some of you are experiencing the same thing... but I'm glad to hear I'm not the only one. I'm motivated to keep it up in the diet dept. in hopes in a few months I'll be having all sorts of energy! Keep me posted ~ let me know when you all start feeling better ;)

as far as insomnia... I stay up late because I can't fall asleep easily ~ I usually fall asleep between 2 and 4am, but once I fall asleep I'm out until 10 the next day (with a few bathroom breaks). Lately, I've also been taking naps during the day.

If I know I'll get better, I can do this for a while.

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Chuck8268 Rookie
Chuck8268
Posted
I was wondering if anyone has gone through the same thing?

My test results were negative, but my IgA count was extremely low, so they wouldn't read positive even if I had celiac for sure.

current test results:

Triglycerides: 480

Blood sugar: 111

borderline anemic

CS1: +3 candida, +1 saprophytic fungi

GP2: no parasites

MB2 Total intestinal SIgA: <11 (normal range is 400-880)

MB3 Intestinal lysozyme: 4 (normal is 6)

MB4 Alph Anti-Chymotrypsin: <14 (normal is <60)

FG1 Chymotrypsin: <3 (normal is >9)

no allergy to milk, soy, egg

F14 Gliadin Ab SIgA: 7 negative

Because of this I went gluten free 3 weeks ago and so much is going better. My heartburn has stopped, I'm becoming more regular :) , I have less abdominal pain and a lot less bloated. My skin has almost cleared up completely (first time ever) and I'm thinking much more clearly so I'm having positive response to the diet.

The thing is though, for the last few days I've been VERY tired again. All I want to do is sleep, it's hard to keep moving sometimes and so I've been taking too many naps (and still not feeling rested).

So I'm wondering if anyone else has this? Could it be a healing response (I've been sick for a long time and now have leaky gut)? It almost feels like a detox ~ kind of a heaviness in the body and head. I don't know... maybe I was "glutened" but I don't think so. Everything else is holding fine - still regular and such, but I'm just really, really tired... and I have a strange tingling sensation all over, including my tongue.

Just looking for answers or someone who is experiencing the same thing ~ I'm so confused... and I really just want to feel normal for a little while.

NJKim Newbie
NJKim
Posted

I have been gluten free for 17 years and what I found that happens in cycles is I get extremely low iron enough to anemic and also I have trouble absorbing other nutrients. My recommendation would be take a a multi-vitamin but with an iron percentage less than 50%. This is because the iron will upset your stomach if you have too much because it is hard to absorb in the intestines. Also never take on an empty stomach. Hope this helps!

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
      Son's legs shaking

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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