Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"fell Off The Wagon"

Niteyx13

By Niteyx13
in Coping with Celiac Disease

Recommended Posts

KaitiUSA Enthusiast
KaitiUSA
Posted

3 Muskateers are gluten free Sally :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rikki Tikki Explorer
Rikki Tikki
Posted

Thanks Kaiti. I don't know why I have always thought they had gluten

Nadtorious Rookie
Nadtorious
Posted

To reiterate and add my 2 cents to this argument, I can't really relate to people who don't have time to be gluten free. Granted, I don't have children, but I work full time, go to school, train for and race mountain bikes, sew, and maintain a fairly active social life. If and when I am ever glutened, everything stops. I might be able to crawl around at work, but seriously, life comes to a standstill til it's out of my system. Since going gluten free 3 years ago, I have become so much more productive and actually interested in life. I can't imagine giving up my wonderful health these days for convenience.

I can empathize with folks who experience very mild to no symptoms, but only to a point. If you're showing signs of osteoporosis or anemia, damage is being done. But we all know that.

I don't live off convenience foods. I make everything from scratch, and yes, sometimes it is a pain in the butt, but what are my other options? I feel so much better now. We could be much worse off, and for those who are not sticking to their diet, you're just asking for trouble. Life tastes a whole lot better than pizza.

Sorry if I offended anyone. We're all in the same boat.

Peace-Nadia

ianm Apprentice
ianm
Posted

Well said Nadia. We just can't afford to sacrifice our health for the sake of convenience. It really doesn't take as much effort as some like to believe to maintain a healthy diet. Time management skills are something you are just going to have to discipline yourself to have. The few minutes you save eating glutenized processed crap is not worth it. The two minutes you save now is going to drastically reduce the quantity and quality of the years remaining in your life. The gluten-free lifestyle takes some work but it is worth it to not just you but your loved ones as well. So quit talking about it and just do it!

tarnalberry Community Regular
tarnalberry
Posted

For everyone who says that some people just don't have the will power that other people do, please remember that will power is not some inate gift - it's a skill learned by practice. You CAN have strong will power, just by saying no one temptation at a time. Missing one doesn't put you back at the starting gate, it's just a little ground to recover.

Nadtorious Rookie
Nadtorious
Posted

Well said Tiffany :rolleyes:

lovegrov Collaborator
lovegrov
Posted

I'm walking proof that willpower can be learned. I'm not a very disciplined person and I thought I had very little willpower, but in the past three years I've quit eating gluten, quit smoking, quit drinking, and lost 25 pounds. If I can do it...

richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ianm Apprentice
ianm
Posted

It just depends on how badly you want to be healthy. The few moments of pleasure you get from cheating is not worth the long term health problems you most certainly will suffer. Eating gluten when you are angry or upset to get at somebody else does them no harm but it does harm you.

Rikki Tikki Explorer
Rikki Tikki
Posted

I think that has been well said by all of you. I wanted to let all of you know I will be off the boards for awhile. I have been very sick the last few weeks. It's not celiac disease but I am going to my mom's for awhile until I see a doctor at UCSF. I will miss all your posts and the support each of you have given me.

:D

ianm Apprentice
ianm
Posted

I wish you well. I've enjoyed your posts and let us know how you are doing as soon as you can.

cmom Contributor
cmom
Posted

I wish you well Sally and hope you are feeling better soon. Mom's are great when we're ill, even at my age (45)!

steadyed Newbie
steadyed
Posted

Sally.

No, they don't sell the meat. What I do is bring my own bread. I don't see why anyone in Subway wouldn't make a sandwich for you if you bring in your own bread and explain why.

Ed

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AnneSN
      - AnneSN commented on Jefferson Adams's article in Additional Concerns
      1

      Are Delimex Taquitos Gluten-Free?

      Sure wish I had checked here first. Had 3 of the Delimex Beef taquitos for lunch, thinking these were gluten-free, but suffered so bad afterward w painful swollen stomach etc etc. Had no other food except lettuce from my own kitchen w my own homemade salad dressing which I 100% know is safe, so these taquitos have to be the culprit. Darn!
    2. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    3. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    4. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    5. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.