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"fell Off The Wagon"

Niteyx13

By Niteyx13
in Coping with Celiac Disease

Recommended Posts

KaitiUSA Enthusiast
KaitiUSA
Posted

3 Muskateers are gluten free Sally :D

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Rikki Tikki Explorer
Rikki Tikki
Posted

Thanks Kaiti. I don't know why I have always thought they had gluten

Nadtorious Rookie
Nadtorious
Posted

To reiterate and add my 2 cents to this argument, I can't really relate to people who don't have time to be gluten free. Granted, I don't have children, but I work full time, go to school, train for and race mountain bikes, sew, and maintain a fairly active social life. If and when I am ever glutened, everything stops. I might be able to crawl around at work, but seriously, life comes to a standstill til it's out of my system. Since going gluten free 3 years ago, I have become so much more productive and actually interested in life. I can't imagine giving up my wonderful health these days for convenience.

I can empathize with folks who experience very mild to no symptoms, but only to a point. If you're showing signs of osteoporosis or anemia, damage is being done. But we all know that.

I don't live off convenience foods. I make everything from scratch, and yes, sometimes it is a pain in the butt, but what are my other options? I feel so much better now. We could be much worse off, and for those who are not sticking to their diet, you're just asking for trouble. Life tastes a whole lot better than pizza.

Sorry if I offended anyone. We're all in the same boat.

Peace-Nadia

ianm Apprentice
ianm
Posted

Well said Nadia. We just can't afford to sacrifice our health for the sake of convenience. It really doesn't take as much effort as some like to believe to maintain a healthy diet. Time management skills are something you are just going to have to discipline yourself to have. The few minutes you save eating glutenized processed crap is not worth it. The two minutes you save now is going to drastically reduce the quantity and quality of the years remaining in your life. The gluten-free lifestyle takes some work but it is worth it to not just you but your loved ones as well. So quit talking about it and just do it!

tarnalberry Community Regular
tarnalberry
Posted

For everyone who says that some people just don't have the will power that other people do, please remember that will power is not some inate gift - it's a skill learned by practice. You CAN have strong will power, just by saying no one temptation at a time. Missing one doesn't put you back at the starting gate, it's just a little ground to recover.

Nadtorious Rookie
Nadtorious
Posted

Well said Tiffany :rolleyes:

lovegrov Collaborator
lovegrov
Posted

I'm walking proof that willpower can be learned. I'm not a very disciplined person and I thought I had very little willpower, but in the past three years I've quit eating gluten, quit smoking, quit drinking, and lost 25 pounds. If I can do it...

richard

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ianm Apprentice
ianm
Posted

It just depends on how badly you want to be healthy. The few moments of pleasure you get from cheating is not worth the long term health problems you most certainly will suffer. Eating gluten when you are angry or upset to get at somebody else does them no harm but it does harm you.

Rikki Tikki Explorer
Rikki Tikki
Posted

I think that has been well said by all of you. I wanted to let all of you know I will be off the boards for awhile. I have been very sick the last few weeks. It's not celiac disease but I am going to my mom's for awhile until I see a doctor at UCSF. I will miss all your posts and the support each of you have given me.

:D

ianm Apprentice
ianm
Posted

I wish you well. I've enjoyed your posts and let us know how you are doing as soon as you can.

cmom Contributor
cmom
Posted

I wish you well Sally and hope you are feeling better soon. Mom's are great when we're ill, even at my age (45)!

steadyed Newbie
steadyed
Posted

Sally.

No, they don't sell the meat. What I do is bring my own bread. I don't see why anyone in Subway wouldn't make a sandwich for you if you bring in your own bread and explain why.

Ed

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  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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