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Ive Been Gluten Free For Five Days......


Twiggy

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Twiggy Rookie

I have vast improvement in my symptoms already,the stomach pain has eased and the bloating is starting to go down.I have'nt got the results of my gut biopsy back yet but i was feeling so poorly that i thought i'd go gluten free for 7 days to see if i felt any better and i'm glad i did.There is just one thing thats bothering me though,i think ive had DH since my mid-teens (i'm 39 now) and if i stop eating gluten would i get a false negative on my skin test the same as for the gut test??? Input would be greatly apreciated,thanks :P


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The Fluffy Assassin Enthusiast
I have vast improvement in my symptoms already,the stomach pain has eased and the bloating is starting to go down.I have'nt got the results of my gut biopsy back yet but i was feeling so poorly that i thought i'd go gluten free for 7 days to see if i felt any better and i'm glad i did.There is just one thing thats bothering me though,i think ive had DH since my mid-teens (i'm 39 now) and if i stop eating gluten would i get a false negative on my skin test the same as for the gut test??? Input would be greatly apreciated,thanks :P

I don't have DH, but as I understand it, the skin test can only be taken when you have an outbreak (and only from skin right next to an outbreak). If it's DH, you'll only have an outbreak if you eat gluten. Therefore, if you're off gluten, you shouldn't have an outbreak again and a skin test wouldn't be possible (or needed). But if you have a powerful need to know for sure that it's DH, yes, you would need to keep eating gluten until you have an outbreak to be tested.

ang1e0251 Contributor

My DH took about as long to clear up as it was a problem for me; 6 - 8 weeks gluten-free. I've read other posters say that the antibodies take a while to leave your skin. Is your test soon? I think you could eat enough to break you out again. I don't think it's like the long term usage you need for and endoscopy. Maybe someone will post who knows more than I.

Twiggy Rookie

Hmm,i feel too well to risk making myself ill again....i dont know what to do :) I dont know if i really do need a dignosis,i'm convinced i have DH so thats prob good enough and besides that,if i dont eat anymore gluten it wont be a problem in the future.I have noticed however that i seem to get upset and a washing-machine type tummy now when i have milk or milk products (cottage cheese) i will just persist with this cause many of you say its temparey until you heal a bit.I cant believe that when i go to the loo im starting to have sem-normal stools without ''that'' familiar smell i'd gotten so used to.The thing thats also putting me off getting tested is that by the time i have a flare up,show my GP and wait for an appt with a skin specialist the rash will have cleared again.Sometines it lasts a month sometimes a week and sometimes it may clear completely for a month....tricky right?

ang1e0251 Contributor

Don't jump the gun! You haven't even heard the results from your biopsy. Don't assume you need the DH to get a dx. I know it's hard to wait but hang in there. I didn't feel the need to make myself sick again for a dx. My body told me what I needed to know. That's a personal desicion you have to make but you are cool here at the forum whether you go for further testing or not.

The Fluffy Assassin Enthusiast
Hmm,i feel too well to risk making myself ill again....i dont know what to do :) I dont know if i really do need a dignosis,i'm convinced i have DH so thats prob good enough and besides that,if i dont eat anymore gluten it wont be a problem in the future.I have noticed however that i seem to get upset and a washing-machine type tummy now when i have milk or milk products (cottage cheese) i will just persist with this cause many of you say its temparey until you heal a bit.I cant believe that when i go to the loo im starting to have sem-normal stools without ''that'' familiar smell i'd gotten so used to.The thing thats also putting me off getting tested is that by the time i have a flare up,show my GP and wait for an appt with a skin specialist the rash will have cleared again.Sometines it lasts a month sometimes a week and sometimes it may clear completely for a month....tricky right?

Not that it's a diagnosis, but you can always look at pictures of DH and see if they at least look familiar, eg: Open Original Shared Link

Twiggy Rookie

Thanks for the Link Fluffy :D it sums my rash up to a ''T'',i'm just going to continue with my gluten-free lifestyle regardless of a DX,i feel fab!


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    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
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    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
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