Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help With My Dx Please


anneh

Recommended Posts

anneh Newbie

Hi, I thought I would come to the "experts" for the right advice :) I am 70yo and never had any indication of any gluten problems. However I do have Hashis thyroiditis dx about 15 years ago. Recently went to my holistic Dr and he recommended a saliva test for my adrenal function. As he expected it came back low but I was surprised to see a score of 20 for Gliadin Ab SigA (anything over 15 being positive). He suggested I go gluten free which I have been doing for a month. As I had no gluten intolerance symptoms to start with of course I don't feel any different. So my main question is whether judging by my test results you all feel I am really gluten intolerant especially with my age, would think by now I would have some serious issues. I have gone to the link on this forum regarding saliva tests but didn't really answer my question. Thanks for any input :) anneh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast
Hi, I thought I would come to the "experts" for the right advice :) I am 70yo and never had any indication of any gluten problems. However I do have Hashis thyroiditis dx about 15 years ago. Recently went to my holistic Dr and he recommended a saliva test for my adrenal function. As he expected it came back low but I was surprised to see a score of 20 for Gliadin Ab SigA (anything over 15 being positive). He suggested I go gluten free which I have been doing for a month. As I had no gluten intolerance symptoms to start with of course I don't feel any different. So my main question is whether judging by my test results you all feel I am really gluten intolerant especially with my age, would think by now I would have some serious issues. I have gone to the link on this forum regarding saliva tests but didn't really answer my question. Thanks for any input :) anneh

Gluten intolerance can pop up at any age and doesn't always cause gastro symptoms although it is still doing damage all the same. I would recommend the celiac panel but it may come back false negative since you've been gluten free for a month. Not sure about the specific tests that your holistic Dr. did but maybe others can shed light for you. I believe the saliva test will just tell you if you carry the genes for celiac but can't diagnose you since 40% of the population carry the genes without turning those genes on. I did the swab in cheek test that was sent off to a lab for gene results so don't know much about the saliva one's. I know its all very confusing especially since you don't have the typical symptoms. I have a friend who was diagnosed with celiac at age 47. Her only symptoms were severe lower back pains and fatigue. They suspected Celiac when they discovered she was anemic and already showing signs of osteoporosis. A blood panel and endo biopsy showed celiac and now gluten free all her back aches and fatigue are gone. The bright side is that it is an illness that usually goes into remission with diet alone, no meds ect. Hope you find answers!

happygirl Collaborator

The test the original poster had done is not the Celiac gene test.

The saliva tests are generally not used to diagnose Celiac. If you aren't feeling better on the diet, go back to eating gluten, and then you may consider following up and having the full Celiac panel run (which is blood tests, not saliva).

JillianLindsay Enthusiast

When you say holistic DR, does this person actually have an M.D.? In my humble opinion, I would suggest eating gluten again for 2 weeks then going to a medical doctor (general practitioner or specialist if possible) for a Celiac panel (blood test). There is nothing wrong with holistic medicine, but IMHO one should exhaust all scientific, medical avenues first.

Good luck :)

Jillian

Hi, I thought I would come to the "experts" for the right advice :) I am 70yo and never had any indication of any gluten problems. However I do have Hashis thyroiditis dx about 15 years ago. Recently went to my holistic Dr and he recommended a saliva test for my adrenal function. As he expected it came back low but I was surprised to see a score of 20 for Gliadin Ab SigA (anything over 15 being positive). He suggested I go gluten free which I have been doing for a month. As I had no gluten intolerance symptoms to start with of course I don't feel any different. So my main question is whether judging by my test results you all feel I am really gluten intolerant especially with my age, would think by now I would have some serious issues. I have gone to the link on this forum regarding saliva tests but didn't really answer my question. Thanks for any input :) anneh
anneh Newbie

thanks everyone for your kind responses. Yes my Dr is an MD btw but I do think it makes sense to have the blood work done. It was just that the saliva test for adrenal function also showed the gluten result so he thought it was a good idea to go gluten-free for a few months. I think I will stick with gluten-free for the time frame he suggested but if I see no difference or purpose to it then I will go back to eating gluten stuff and then get blood test. Thanks :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,902
    • Most Online (within 30 mins)
      7,748

    WOLINM
    Newest Member
    WOLINM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.