Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help With My Dx Please


anneh

Recommended Posts

anneh Newbie

Hi, I thought I would come to the "experts" for the right advice :) I am 70yo and never had any indication of any gluten problems. However I do have Hashis thyroiditis dx about 15 years ago. Recently went to my holistic Dr and he recommended a saliva test for my adrenal function. As he expected it came back low but I was surprised to see a score of 20 for Gliadin Ab SigA (anything over 15 being positive). He suggested I go gluten free which I have been doing for a month. As I had no gluten intolerance symptoms to start with of course I don't feel any different. So my main question is whether judging by my test results you all feel I am really gluten intolerant especially with my age, would think by now I would have some serious issues. I have gone to the link on this forum regarding saliva tests but didn't really answer my question. Thanks for any input :) anneh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast
Hi, I thought I would come to the "experts" for the right advice :) I am 70yo and never had any indication of any gluten problems. However I do have Hashis thyroiditis dx about 15 years ago. Recently went to my holistic Dr and he recommended a saliva test for my adrenal function. As he expected it came back low but I was surprised to see a score of 20 for Gliadin Ab SigA (anything over 15 being positive). He suggested I go gluten free which I have been doing for a month. As I had no gluten intolerance symptoms to start with of course I don't feel any different. So my main question is whether judging by my test results you all feel I am really gluten intolerant especially with my age, would think by now I would have some serious issues. I have gone to the link on this forum regarding saliva tests but didn't really answer my question. Thanks for any input :) anneh

Gluten intolerance can pop up at any age and doesn't always cause gastro symptoms although it is still doing damage all the same. I would recommend the celiac panel but it may come back false negative since you've been gluten free for a month. Not sure about the specific tests that your holistic Dr. did but maybe others can shed light for you. I believe the saliva test will just tell you if you carry the genes for celiac but can't diagnose you since 40% of the population carry the genes without turning those genes on. I did the swab in cheek test that was sent off to a lab for gene results so don't know much about the saliva one's. I know its all very confusing especially since you don't have the typical symptoms. I have a friend who was diagnosed with celiac at age 47. Her only symptoms were severe lower back pains and fatigue. They suspected Celiac when they discovered she was anemic and already showing signs of osteoporosis. A blood panel and endo biopsy showed celiac and now gluten free all her back aches and fatigue are gone. The bright side is that it is an illness that usually goes into remission with diet alone, no meds ect. Hope you find answers!

happygirl Collaborator

The test the original poster had done is not the Celiac gene test.

The saliva tests are generally not used to diagnose Celiac. If you aren't feeling better on the diet, go back to eating gluten, and then you may consider following up and having the full Celiac panel run (which is blood tests, not saliva).

JillianLindsay Enthusiast

When you say holistic DR, does this person actually have an M.D.? In my humble opinion, I would suggest eating gluten again for 2 weeks then going to a medical doctor (general practitioner or specialist if possible) for a Celiac panel (blood test). There is nothing wrong with holistic medicine, but IMHO one should exhaust all scientific, medical avenues first.

Good luck :)

Jillian

Hi, I thought I would come to the "experts" for the right advice :) I am 70yo and never had any indication of any gluten problems. However I do have Hashis thyroiditis dx about 15 years ago. Recently went to my holistic Dr and he recommended a saliva test for my adrenal function. As he expected it came back low but I was surprised to see a score of 20 for Gliadin Ab SigA (anything over 15 being positive). He suggested I go gluten free which I have been doing for a month. As I had no gluten intolerance symptoms to start with of course I don't feel any different. So my main question is whether judging by my test results you all feel I am really gluten intolerant especially with my age, would think by now I would have some serious issues. I have gone to the link on this forum regarding saliva tests but didn't really answer my question. Thanks for any input :) anneh
anneh Newbie

thanks everyone for your kind responses. Yes my Dr is an MD btw but I do think it makes sense to have the blood work done. It was just that the saliva test for adrenal function also showed the gluten result so he thought it was a good idea to go gluten-free for a few months. I think I will stick with gluten-free for the time frame he suggested but if I see no difference or purpose to it then I will go back to eating gluten stuff and then get blood test. Thanks :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748

    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.