Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tested Positive But Have 0 Symptoms

Trymester

Recommended Posts

Trymester Contributor
Trymester
Posted

People who test positive for Celiac's Disease are advised to not eat Gluten. I tested negative for Celiac's. I tested positive for colitis antibodies. A colonoscopy and small bowel series were used to rule out Crohn's. I have neither constipation or diahrea. As I did test positve for Saccharomyces cerevisiae antibodies is there any specific foods I should be avoiding? Thanks.

P.S.- Is it possible it could've been a false positve? Do these things happen with Saccharomyces cerevisiae antibody tests?

P.P.S.- I know this is not Celiac's but on another board I was told to follow the same diet as Celiac's.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JillianLindsay Enthusiast
JillianLindsay
Posted

Hi and welcome to the forum :)

I can't answer most of your questions (sorry!) but your post left me wondering... if you were asymptomatic, then what prompted you to get tested? There was likely something that brought you to the DR and led your DR to order the tests you mentioned. celiac disease isn't just about GI problems, it also includes vitamin deficiencies among a very large number of other symptoms.

I would focus on the ailments that brought you to the DR in the first place. Give the gluten-free diet a try and see if those specific problems begin to get better after a few months.

Hopefully someone else here knows more about Saccharomyces cerevisiae and can speak to those questions specifically. When I googled it I found this: https://www.celiac.com/articles/1163/1/Anti...ease/Page1.html

Good luck!

Jillian

People who test positive for Celiac's Disease are advised to not eat Gluten. I tested negative for Celiac's. I tested positive for colitis antibodies. A colonoscopy and small bowel series were used to rule out Crohn's. I have neither constipation or diahrea. As I did test positve for Saccharomyces cerevisiae antibodies is there any specific foods I should be avoiding? Thanks.

P.S.- Is it possible it could've been a false positve? Do these things happen with Saccharomyces cerevisiae antibody tests?

P.P.S.- I know this is not Celiac's but on another board I was told to follow the same diet as Celiac's.

Trymester Contributor
Trymester
Posted
  • Author

Thank you for your reply Jillian. I went to the GI because of Acid Reflux symptoms. He decided to run a bunch of blood tests. Among these were checking for the colitis antibodies, Hepatitis, Celiac's disease, etc.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you for your reply Jillian. I went to the GI because of Acid Reflux symptoms. He decided to run a bunch of blood tests. Among these were checking for the colitis antibodies, Hepatitis, Celiac's disease, etc.

If you are having acid reflux symptoms you are not symptom free. Chances are you are also having other impacts that you may not realize are celiac related. Be thankful this was found in the earlier stages and you have found a good place to learn about all the ins and outs of the diet.

Trymester Contributor
Trymester
Posted
  • Author
If you are having acid reflux symptoms you are not symptom free. Chances are you are also having other impacts that you may not realize are celiac related. Be thankful this was found in the earlier stages and you have found a good place to learn about all the ins and outs of the diet.

Would you say that the Enterolab stool tests are more reliable than blood tests? I mean, my blood test said I have no Celiac's disease.

I had been problem free for 24 years and eating EVERYTHING. Ice Cream, curry, I'm Hispanic so I've always eaten alot of oil and spicy food. I think that maybe when I Went to Japan and ate less "bad" food, my digestive system must've gone haywire. In October, I had a muscle injury plus stress, and that may have brought about the GERD. The discovery of colitis antibodies was so "random". I'm still not sure if I have this. But I will do my best to try to try a Gluten-free diet if it does turn out that I am gluten intolerant. (soory for the rambling).

Rosewied Rookie
Rosewied
Posted

The discovery of colitis antibodies was so "random".

As far as the colitis antibodies go did you have a colonoscopy? I have lymphocytic colitis, a type of microscopic colitis, after research probably the best to have. It was only found after the biopsy from my colonoscopy. It won't be found by the colonoscopy itself they have to do the biopsy to find it.

I am going for my endoscopy in the morning. My blood test came back positive. My dr hasn't suggested enterolab testing.

here's some random info on my symptoms and history.

Although having terrible symptoms for the past 21 months. It started after the birth of my second child when I was eating boxes of graham crackers with peanut butter for dinner every night. It's all I wanted, everything else made me sick.

I have thyroid disease so I spent 15 months blaming it and getting my tsh and t4 levels tested every 6 weeks.

But really most of my life everything was manageable, just thought i had IBS and thyroid disease, and my mom and grandma were like, "I was like that at your age too." My mom's doing a gluten challenge right now. She had cut out most breads because they always make her feel bloated. She gets her blood test in a week, I'm betting on celiac.

I'm 27 and if I hadn't gone through the horrible pain of the last year or so I don't know if I ever would have been able to give up gluten. It's hard enough right now before I know for sure. I keep thinking well I don't know for sure it's poison yet and after I find out I know I won't be able to let myself eat it. It's the only thing that explains a lot of random things in my medical history too. Like missing enamel on permanent teeth.

Good luck and hopefully the diet will help you. Acid reflux can be horrible and severely damaging to your esophagus and the rest of your digestive system.

Meagan

still seeking DX

positve blood test 8/09

ravenwoodglass Mentor
ravenwoodglass
Posted
Would you say that the Enterolab stool tests are more reliable than blood tests? I mean, my blood test said I have no Celiac's disease.

I had been problem free for 24 years and eating EVERYTHING. Ice Cream, curry, I'm Hispanic so I've always eaten alot of oil and spicy food. I think that maybe when I Went to Japan and ate less "bad" food, my digestive system must've gone haywire. In October, I had a muscle injury plus stress, and that may have brought about the GERD. The discovery of colitis antibodies was so "random". I'm still not sure if I have this. But I will do my best to try to try a Gluten-free diet if it does turn out that I am gluten intolerant. (soory for the rambling).

In my opinion yes. Enterolab cannot diagnose you with celiac officially but they can tell you if you are making antibodies. If you are making antibodies to something your body doesn't want it.

Celiac generally has a 'trigger', it usually appears after an emotional or physical stress. In women a lot of times pregnacy and delivery will trigger it but a severe injury will also. I am not aware of that happening with GERD, not saying it can't I just haven't heard of it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Trymester Contributor
Trymester
Posted
  • Author

Oh, I forgot to mention, even though my name is "Trymester" I am a male.

I need to wait until November-ish to get to Japan to have the Enterolab tests done. They don't work within New York, where I am now.

ravenwoodglass Mentor
ravenwoodglass
Posted
Oh, I forgot to mention, even though my name is "Trymester" I am a male.

I need to wait until November-ish to get to Japan to have the Enterolab tests done. They don't work within New York, where I am now.

Just wondering why you have to wait until you are out of NY, I live in NY and had no problem with getting the tests done. I simply contacted Enterolab and they sent me the kit, I sent it in and got my results within a couple of weeks. It wasn't covered by insurance but it was still possible to test.

Trymester Contributor
Trymester
Posted
  • Author
Just wondering why you have to wait until you are out of NY, I live in NY and had no problem with getting the tests done. I simply contacted Enterolab and they sent me the kit, I sent it in and got my results within a couple of weeks. It wasn't covered by insurance but it was still possible to test.

When did you get the Enterolab tests done. I ordered them 2 weeks ago, and even used MasterCard to put the order in online. The day after I received a call telling me that they don't have a license to practice in the state of New York. I was ready, willing, and able to do it.

I then saw that they also do tests in Asia, and Japan is the next place I'm going after NY, so I have to wait until that time to get it done unfortunately.

ravenwoodglass Mentor
ravenwoodglass
Posted
When did you get the Enterolab tests done. I ordered them 2 weeks ago, and even used MasterCard to put the order in online. The day after I received a call telling me that they don't have a license to practice in the state of New York. I was ready, willing, and able to do it.

I then saw that they also do tests in Asia, and Japan is the next place I'm going after NY, so I have to wait until that time to get it done unfortunately.

I had mine done in 2002. Things must have changed since then. I think it ridiculous that folks can no longer get testing form them here.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      12

      New Celiac Mama in My 30s

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that...
    2. RMJ
      - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and g...
    3. knitty kitty
      - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

      @Riley., Welcome to the forum, but don't do it! Don't continue to eat gluten! The health problems that will come if you continue to eat gluten are not worth it. Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually. There's many of us oldsters on the forum who wish they'd been diagnosed...
    4. knitty kitty
      - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      12

      New Celiac Mama in My 30s

      @tiffanygosci, Hello. I apologize for your thread being hijacked. I recognize your symptoms as being similar to what I experienced, the migraines, food and chemical sensitivities, hives, nausea, the numbness and tingling, joint pain, tummy problems, sleep problems, emotional lability, and the mom brain. My cycle returned early after I had my...
    5. trents
      - trents replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748
    volivier
    Newest Member
    volivier
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      Outgrow celiac?

      By RMJ · Posted

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      Outgrow celiac?

      By knitty kitty · Posted

      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Hello.  I apologize for your thread being hijacked.   I recognize your symptoms as being similar to what I experienced, the migraines, food and chemical sensitivities, hives, nausea, the numbness and tingling, joint pain, tummy problems, sleep problems, emotional lability, and the mom brain.  My cycle returned early after I had my son, and I became pregnant again with all my symptoms worsening.  Unfortunately, I lost that baby.  In hindsight, I recognized that I was suffering so much from Thiamine deficiency and other nutritional deficiencies that I was not able to carry it.   Celiac Disease affects the absorption of nutrients from our food.  There's eight B vitamins that must be replenished every day.  Thiamine Vitamin B1 becomes depleted first because it cannot be stored very long, less than two weeks.  Other B vitamins can be stored for two months or so.  But Thiamine can get low enough to produce symptoms in as little as three days.  As the thiamine level gets lower, symptoms worsen.  Early symptoms like fatigue and anxiety are often attributed to life situations, and so frequently go unrecognized by medical professionals who "have a pill for that".   I used to get severe migraines and vomiting after gluten consumption.  Thiamine and the other B vitamins are needed to turn carbohydrates, fats and proteins into fuel for our bodies.  With a large influx of carbohydrates from gluten containing foods, the demand for Thiamine increases greatly.  Available thiamine can be depleted quickly, resulting in suddenly worsening symptoms.  Emotional stress or trauma, physical activity (athletes and laborers) and physiological stresses like pregnancy or injury (even surgery or infection) increase the need for Thiamine and can precipitate a thiamine insufficiency. Pregnancy requires more thiamine, not just for the mother, but for the child as well.  The mother's Thiamine stores are often depleted trying to meet the higher demand of a growing fetus.  Thiamine insufficiency can affect babies in utero and after birth (autism, ADHD).  Having babies close together doesn't allow time for the mother to replenish thiamine stores sufficiently.   Thiamine insufficiency can cause migraines, pins and needles (paresthesia), and gastrointestinal Beriberi (gas, bloating, diarrhea or constipation, back pain).   Thiamine deficiency can cause blurry vision, difficulty focusing, and affect the eyes in other ways.  Thiamine deficiency can damage the optic nerves.  I have permanent vision problems.  High histamine levels can make your brain feel like it's on fire or swelling inside your cranium.  High histamine levels can affect behavior and mood.  Histamine is released by Mast Cells as part of the immune system response to gluten.  Mast Cells need Thiamine to regulate histamine release.  Mast Cells without sufficient thiamine release histamine at the slightest provocation.  This shows up as sensitivities to foods, smelly chemicals, plants, and dust mites.  Thiamine and the other B vitamins are needed to lower histamine levels.  Vitamin D is needed to calm the immune system and to regulate our hormones.  Menstrual irregularities can be caused by low Vitamin D.   Celiac Disease is a disease if Malabsorption of Nutrients.  We must take great care to eat a nutritionally dense diet.  Our bodies cannot make vitamins.  We must get them from what we eat.  Supplementation with essential vitamins and minerals is warranted while we are healing and to ensure we don't become deficient over time.  Our bodies will not function properly without essential vitamins and minerals.  Doctors have swept their importance under the rug in favor of a pill that covers the symptoms but doesn't resolve the underlying issue of malnutrition. Do talk to your doctor and dietician about checking for nutritional deficiencies.  Most blood tests for the eight B vitamins do not reflect how much is available or stored inside cells.  Blood tests reflect how much is circulating in the blood stream, the transportation system.  Blood levels can be "normal" while a deficiency exists inside cells where the vitamins are actually used.  The best way to see if you're low in B vitamins is to take a B Complex, and additional Thiamine and look for improvement.   Most vitamin supplements contain Thiamine Mononitrate, which is not easily absorbed nor utilized by the body.  Only thirty percent of thiamine mononitrate listed on the label is absorbed, less is actually utilized.  This is because thiamine mononitrate is shelf stable, it won't breakdown sitting on a shelf in the grocery store.  It's so hard to breakdown, our bodies don't absorb it and can't turn it into a form the body can use.  Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) which the body can utilize much better.  (Ask for an Erythrocyte Transketolace Activity test for Thiamine level.  Though not accurate, this test does better picking up on a thiamine deficiency than a blood test.) Are you keeping your babies on a gluten free diet?  This can prevent genetically susceptible children from developing Celiac Disease.   P. S. Interesting Reading  Thiamine deficiency in pregnancy and lactation: implications and present perspectives https://pmc.ncbi.nlm.nih.gov/articles/PMC10158844/ Descriptive spectrum of thiamine deficiency in pregnancy: A potentially preventable condition https://pubmed.ncbi.nlm.nih.gov/37458305/ B vitamins and their combination could reduce migraine headaches: A randomized double-blind controlled trial https://pmc.ncbi.nlm.nih.gov/articles/PMC9860208/
    • trents
      Outgrow celiac?

      By trents · Posted

      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.