Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Risk Of Going Gluen Free .....help?


DVjorge

Recommended Posts

DVjorge Apprentice

Hi everybdody,

Thanks to all you for your time and help. I am wondering if going gluten free can become me intolerant in case I don't have Celiac. I don't know if there is some risk of going gluten free for a while??????. I went gluten free after my biopsia and got a lot better. The biopsia came back negative and my dr told me to try gluten. I did and everything turned back again. I don't know if it means I am intolerant or if been gluten free for a month affected me. Please, any help.

Thanks,

George.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sugarsue Enthusiast
Hi everybdody,

Thanks to all you for your time and help. I am wondering if going gluten free can become me intolerant in case I don't have Celiac. I don't know if there is some risk of going gluten free for a while??????. I went gluten free after my biopsia and got a lot better. The biopsia came back negative and my dr told me to try gluten. I did and everything turned back again. I don't know if it means I am intolerant or if been gluten free for a month affected me. Please, any help.

Thanks,

George.

Hi, I'm sorry, I have not been around lately so you may have already answered these questions.... I assume you had a Celiac panel blood work done? What were your results? You can be non-celiac gluten intolerant and suffer as much as if you were diagnosed with Celiac. Many doctors don't get this. Also, I imagine you could still have Celiac with a negative biopsy.

Good luck to you!

Susan

ravenwoodglass Mentor
Hi everybdody,

Thanks to all you for your time and help. I am wondering if going gluten free can become me intolerant in case I don't have Celiac. I don't know if there is some risk of going gluten free for a while??????. I went gluten free after my biopsia and got a lot better. The biopsia came back negative and my dr told me to try gluten. I did and everything turned back again. I don't know if it means I am intolerant or if been gluten free for a month affected me. Please, any help.

Thanks,

George.

What you did was a challenge and your body gave you the answer as to whether or not you should eat gluten. You should let your doctor know what happened. A challenge can be part of the diagnostic process and an important one. If your body feels better without gluten that is, in my opinion, the most important thing.

CGally81 Enthusiast
Hi everybdody,

Thanks to all you for your time and help. I am wondering if going gluten free can become me intolerant in case I don't have Celiac. I don't know if there is some risk of going gluten free for a while??????. I went gluten free after my biopsia and got a lot better. The biopsia came back negative and my dr told me to try gluten. I did and everything turned back again. I don't know if it means I am intolerant or if been gluten free for a month affected me. Please, any help.

Thanks,

George.

I'd read in the book "Going Gluten-Free For Dummies", and MANY places online, that there is a strong chance of a false negative when it comes to tests for gluten intolerance. Furthermore, the longer you'd been going gluten-free before taking the test, the greater the chance of it turning up negative, especially if it's a gastroenterologist's test rather than, say, a genetic test or something else.

So I'd say you have Celiac/GI, but the test was wrong. I'd recommend avoiding gluten, period. If your doctor doesn't believe you, well, lots of people said they had the same problem.

ang1e0251 Contributor

Eating gluten free for a time does not make you gluten intolerant. You probably eat certain foods for holidays or special events that you don't eat at other times of the year. Do you react to those foods? No, because not eating them all year does not make you intolerant to them. If you are reacting to gluten you body is telling you, that you cannot tolerate it. Listen to you body, don't eat gluten.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,432
    • Most Online (within 30 mins)
      7,748

    Betty Alex
    Newest Member
    Betty Alex
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.