Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intermitent Dizzyness


Googles

Recommended Posts

Googles Community Regular

Hi,

I have a question about intermittent dizziness. I went gluten-free about two months ago. I am now experiencing intermittent dizziness. I have not been able to connect it to any one specific thing. It happens in the morning and at night. It isn't enough to make me faint but it does make me feel like I'm on a rocking boat. When it happens even sitting in a chair and moving my head can make me dizzy. I don't feel nauseous at all along with it. It does get worse if I bend over and I can get it from rolling over in bed to turn off my alarm clock. Does anyone have any idea what might be causing this? Is it the gluten? Could it be my other meds (anti-depressants) are getting absorbed differently and now I'm having reactions to them? Has anyone else experienced this? I don't think I'm getting cc'ed anywhere.

Thanks for any advice (even guesses).

Googles


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ohsotired Enthusiast

Have you had vitamin levels checked? Vit D? Iron & Ferritin? B12 & Folic Acid?

Severe vitamin deficiencies can cause this, and a host of other symptoms.

Googles Community Regular

I had my vitamin levels checked when I was diagnosed and my vit D was low. I have been taking supplements for that, and for B12, and calcium along with a multi vitamin. All the other tests were in the normal range, though maybe I should get them checked again. Get to meet a new doctor (I moved).

The Fluffy Assassin Enthusiast
Hi,

I have a question about intermittent dizziness. I went gluten-free about two months ago. I am now experiencing intermittent dizziness. I have not been able to connect it to any one specific thing. It happens in the morning and at night. It isn't enough to make me faint but it does make me feel like I'm on a rocking boat. When it happens even sitting in a chair and moving my head can make me dizzy. I don't feel nauseous at all along with it. It does get worse if I bend over and I can get it from rolling over in bed to turn off my alarm clock. Does anyone have any idea what might be causing this? Is it the gluten? Could it be my other meds (anti-depressants) are getting absorbed differently and now I'm having reactions to them? Has anyone else experienced this? I don't think I'm getting cc'ed anywhere.

Thanks for any advice (even guesses).

Googles

The Mayo Clinic's take: Open Original Shared Link

JillianLindsay Enthusiast

How's your blood pressure? I was having really bad dizzy spells before my Dx and my bp was very low. Going gluten-free has helped :) Also getting regular exercise, taking your vitamins and making sure you're not accidentally getting glutened will help.

How long have you been on the anti-depressants? It is possible that it's a side-affect, have you read the drug information to see if it's listed as a possible SA? Sorry for the obvious question, but did you call the manufacturer to make sure the medication is gluten-free?

If it doesn't subside or even gets worse be sure to talk to your doctor.

Good luck & hope you figure it out,

Jillian

Hi,

I have a question about intermittent dizziness. I went gluten-free about two months ago. I am now experiencing intermittent dizziness. I have not been able to connect it to any one specific thing. It happens in the morning and at night. It isn't enough to make me faint but it does make me feel like I'm on a rocking boat. When it happens even sitting in a chair and moving my head can make me dizzy. I don't feel nauseous at all along with it. It does get worse if I bend over and I can get it from rolling over in bed to turn off my alarm clock. Does anyone have any idea what might be causing this? Is it the gluten? Could it be my other meds (anti-depressants) are getting absorbed differently and now I'm having reactions to them? Has anyone else experienced this? I don't think I'm getting cc'ed anywhere.

Thanks for any advice (even guesses).

Googles

RiceGuy Collaborator

You've gotten good advice thus far. I would add magnesium to the list of possible deficiencies. Also, keep in mind that blood tests don't accurately show deficiencies in all nutrients.

In my experience, magnesium and B12 resolved the dizziness (and tons of other symptoms).

It is very possible that you are now absorbing more effectively, and thus the antidepressants may need to be lowered. Many on this board have reported that with time on the gluten-free diet, they were able to get completely off meds, including antidepressants.

Googles Community Regular

I went to the doctor (I was surprised to be able to get a same day appointment but the semester hasn't started yet.) She said that it was garden variety vertigo and gave me meds to help. Now as long as they don't make me sleep through my interview tomorrow, all hopefully will be good in the next couple of weeks. And yes to your question about my meds. The pharmacy checked for gluten. But with the vertigo meds they weren't sure. Aparently it isn't listed as an ingredient on it, but I don't know how much i trust the pharmacy. I think I might have to find out the manufacturer and call myself to be sure. I checked and it does not.

I'm glad to finally have some problem which is garden variety, being as nothing else recently has been. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

I tend to dizzy when my blood sugar is too low and the most common times for my blood sugar to be low is morning and bed time. Could that be your problem? Can the dizziness be relieved by eating a protein, cheese or a slice of lunchmeat?

Googles Community Regular

It doesn't have anything to do with blood pressure for me. The Dr. said it was a reaction to a virus that was going around. After getting over the virus (don't know why after) you can get dizzy. For me I went to the doctor finally when the dizziness lasted all day. I did try eating and drinking thinking that it might help, but in my case (this time) it was beyond my control. I seem to be mostly over it (at least I hope).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.