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Doctors To Avoid (for Celiac And Intolerance)

nu-to-no-glu

By nu-to-no-glu
in Doctors

Recommended Posts

nu-to-no-glu Apprentice
nu-to-no-glu
Posted

I've been wanting to start a thread to help others, like so many here, that go from Dr to Dr looking for answers. We spend so much time and money to get support. I want to mention that I'm not bashing any dr, but I wish I could have looked on here and seen if anyone else had met these Drs and whether they knew anything about celiac. So here are my suggestions:

In Kansas, these Drs are not well versed in celiac/gluten intolerance (but are in other GI issues):

Dr. Eaker

Dr. Buser

Dr. Pravin Patel

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finally diagnosed Apprentice
finally diagnosed
Posted
I've been wanting to start a thread to help others, like so many here, that go from Dr to Dr looking for answers. We spend so much time and money to get support. I want to mention that I'm not bashing any dr, but I wish I could have looked on here and seen if anyone else had met these Drs and whether they knew anything about celiac. So here are my suggestions:

In Kansas, these Drs are not well versed in celiac/gluten intolerance (but are in other GI issues):

Dr. Eaker

Dr. Buser

Dr. Pravin Patel

In my opinion this is Dr. Bashing. I look to this site for support, and questions ie: product information, new rest info. I do not wish to be part of a web site that will bash doctors for not being versed in Celiac. This is something that a lot of docs are still learning about. It is good to vent regarding something. But to personally name someone is wrong. You have no idea if they have a relative or loved one or a patient on this site.

twe0708 Community Regular
twe0708
Posted

I hear what you both are saying, but if one Dr. is better than another it helps one from wasting their time. It's not that he or she is saying these are bad doctors. They may just be saying that they aren't as experienced with celiac disease as we would want them to be. :)

nu-to-no-glu Apprentice
nu-to-no-glu
Posted
  • Author

Ooh, that wasn't the intention at all, if you notice I said that they are very well informed drs, just not as informed in celiac disease. I was trying to be helpful to those who are searching and have limited time and funds, it's not an easy disease and many are not as specialized, hopefully, this won't be the case for long. I don't see it as "bashing" at all, and appologize if you see it that way.

RESO Apprentice
RESO
Posted

Since America is the country of lawsuits, my opinion would be to change the thread to "doctors who are knowledgeable" and maybe come at it that way. Of course, it's not slander if it's the truth, and I am not the biggest fan of many western docs. I completely understand that your intentions are very good. Just my two cents.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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