Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Musings On Compassion And celiac disease


Lisa16

Recommended Posts

Lisa16 Collaborator

A few months back I heard an interview with Tich Nhat Hahn. One question was


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Hear hear to that, Lisa! Beautifully said. I totally agree.

Am just starting to write some memoirs with celiac as the underlying theme. Compassion out of suffering has got to be there...

Bea

darkhorse Apprentice

I agree with this completely. You may feel empathy toward others in bad situations and try your best to help or not make the situation worse, but you wouldn't understand or have compassion without experiencing something similar yourself.

My example of this would be that I am a teacher. One of my kids was diagnosed with diabetes over winter break last year. I tried my best to help her out and make sure she had everything she needed and the other kids didn't say mean things. I also tried to be empathetic when we had parties and things so she wouldn't feel left out. Looking back I know that I truly didn't understand even though I wanted to.

It wasn't until I found out I was gluten/dairy intolerant that I truly understood where she was coming from and what she was going through. It was only then that I saw how frustrating, disappointing, and sad it makes you to have tons of food available that you used to love and not be able to eat any of it. It was only then that I stated going out of my way to find alternatives that she could have as treats or for parties.

I am a strong believer that everything happens for a reason. The idea that we suffer so we can be more human, so we can feel compassion follows that same belief.

ravenwoodglass Mentor
And then I thought about this disease, because people with celiac disease do suffer. Sometimes horribly. Compassion, then, must be another gift of this disease.

Because just as this disease changes how you live your life, it also has the power to change how you see other people. It empowers us to reach out and help, to listen, and it forces us to understand. No horrible story or embarassing moment or desperate act is unknown to us or unimaginable any longer. Each one of those things affirms our own experience and existence.

This disease has made us all more human. And just maybe we can use that to make the world a better place.

I firmly believe this to be true. It doesn't just apply to disease but also to poverty, abuse and all the horrible things that happen to us. It also is a choice though, we can let our experiences make us bitter and resentful or we can choose to let them make us more understanding and kind to all. I think pretty much everyone here fits into the latter catagory. :)

maile Newbie

Word!

Thank you for posting that!

mushroom Proficient

Those who lead a charmed life have no idea how the the rest of the world lives. Nuff said.

chasbari Apprentice

So that's why this is one of the most compassionate and giving sites on the internet.... I knew there was a reason!

CS


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

    2. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    4. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    5. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748

    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.