Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elimination Diet


kimis

Recommended Posts

kimis Collaborator

has anyone ever tried the eliminatiom diet? It looks hard and loooooooong! Going gluten free was no problem at all for me.....you can still have everything...just a bit differently. It seems like a good diet to try if you are having unexplainable symptoms, but it also seems like a pain in the a$$.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMG Rookie

I am in the middle of the elimination diet for myself and my two daughters. We started almost a month ago. It is annoying, but also very enlightening. It also gets easier as we add back more items and notice no reactions. The downside is that that everyone seems to be reacting to different things, so I'm going to have to permanently modify my cooking accordingly.

Are you continuing to have symptoms that you hope to alleviate with the elimination diet?

kimis Collaborator
I am in the middle of the elimination diet for myself and my two daughters. We started almost a month ago. It is annoying, but also very enlightening. It also gets easier as we add back more items and notice no reactions. The downside is that that everyone seems to be reacting to different things, so I'm going to have to permanently modify my cooking accordingly.

Are you continuing to have symptoms that you hope to alleviate with the elimination diet?

Yes! I have a whole bunch of things bothering me. Joint muscle and headaches are the worst, and acne, weight gain and foggy headedness are bad too.

What kind of symptoms did you have? How long did they take to go away after starting? What are your reactions like? What kind of foods did you start out with? Sorry for all the questions....I just really want to know what it's like :D

CMG Rookie
Yes! I have a whole bunch of things bothering me. Joint muscle and headaches are the worst, and acne, weight gain and foggy headedness are bad too.

What kind of symptoms did you have? How long did they take to go away after starting? What are your reactions like? What kind of foods did you start out with? Sorry for all the questions....I just really want to know what it's like :D

Most of my symptoms had gone away after going gluten free. Most significantly, I have rheumatoid arthritis. I noticed a big improvement after going gluten free, then another big improvement on the elimination diet. Same with minor intestinal symptoms that continued even after going gluten-free. All the symptoms that you have mentioned are ones that my naturopath has indicated are typical of food sensitivities and that people see clearing after doing the elimination diet. Also, my eye doctor says I should expect improvement in my dry eye symptoms.

I started out with mostly whole fruits and veggies, fish and white meat, rice, quinoa, potatoes and such. I had to eliminate all the common allergens, some of which surprised me: gluten, dairy, soy, eggs, beef, pork, citrus, strawberries, corn, chocolate, vinegars, shellfish, caffeine, alcohol. (I've cheated a bit on the wine, but have noticed no ill effects.) Arthritis flared up when I added back corn. Heart palpitations from beef. So far everything else I have added back has been ok - soy, eggs, citrus, pork.

One of my daughters complained of tummy aches and some intestinal upset after eating beef. The other had big dark circles under her eyes, rash on her cheeks and was whiny and irritable all day after both soy and eggs. (I already knew she had issues with soy.)

I hope this helps. I'm happy to share more if you are interested - either on the board or by PM.

burdee Enthusiast
has anyone ever tried the eliminatiom diet? It looks hard and loooooooong! Going gluten free was no problem at all for me.....you can still have everything...just a bit differently. It seems like a good diet to try if you are having unexplainable symptoms, but it also seems like a pain in the a$$.

I also had continuing symptoms (mostly fatigue, cramping pain, bloating and irregularity) after eliminating gluten and casein. I did NOT want to guess or unnecessarily restrict my diet with an elimination diet. So I found a naturopath who heads a local IBS treatment center. He's also a celiac who believes that many gut symptoms are usually caused by celiac disease, food allergies, parasites, bacteria or fungus (like candida). He uses blood tests (ELISA) to diagnosed food allergies (or intolerances for purists) mediated by IgG, IgE or IgA antibodies. He uses stool tests to diagnose bacteria, parasites and fungus.

Since I had already eliminated gluten, dairy and soy (self-diagnosed from symptoms) before the ELISA test, that test diagnosed my cane sugar and egg allergies. A stool test diagnosed Klebsiella. After eliminating sugar and eggs and treating klebsiella bacteria, I still had lingering symptoms. Another version of the ELISA test (for herbs and spices) diagnosed vanilla and nutmeg allergies. I would have never guessed those allergies from 'elimination' diets, but accidental contamination since those diagnoses confirmed what the ELISA results said about vanilla and nutmeg.

Because I continued to have gut symptoms I continued to take regular stool tests which diagnosed 2 more bacteria, a parasite and candida during the past 3 years. An elimination diet would have never diagnosed those gut bugs. I've since eliminated all but the last bacteria, which I'm still treating with tapered doses of an antibacterial drug while I take probiotics to repopulate my gut with good bacteria. After I finish the antibacterial drug, I will take a very high dose probiotic (127 billion good bacteria per dose) for a week to quickly restore my good bacteria back to normal levels.

I realize that tests for food allergies and gut bugs are expensive. However, some health insurance covers alternative medical care (mine partially reimburses). Nevertheless, I might still be doing 'elimination diets' and maybe doctor shopping to determine the source of my symptoms if I had not tested for other allergies and gut bugs.

SUE

CMG Rookie
I also had continuing symptoms (mostly fatigue, cramping pain, bloating and irregularity) after eliminating gluten and casein. I did NOT want to guess or unnecessarily restrict my diet with an elimination diet. So I found a naturopath who heads a local IBS treatment center. He's also a celiac who believes that many gut symptoms are usually caused by celiac disease, food allergies, parasites, bacteria or fungus (like candida). He uses blood tests (ELISA) to diagnosed food allergies (or intolerances for purists) mediated by IgG, IgE or IgA antibodies. He uses stool tests to diagnose bacteria, parasites and fungus.

Since I had already eliminated gluten, dairy and soy (self-diagnosed from symptoms) before the ELISA test, that test diagnosed my cane sugar and egg allergies. A stool test diagnosed Klebsiella. After eliminating sugar and eggs and treating klebsiella bacteria, I still had lingering symptoms. Another version of the ELISA test (for herbs and spices) diagnosed vanilla and nutmeg allergies. I would have never guessed those allergies from 'elimination' diets, but accidental contamination since those diagnoses confirmed what the ELISA results said about vanilla and nutmeg.

Because I continued to have gut symptoms I continued to take regular stool tests which diagnosed 2 more bacteria, a parasite and candida during the past 3 years. An elimination diet would have never diagnosed those gut bugs. I've since eliminated all but the last bacteria, which I'm still treating with tapered doses of an antibacterial drug while I take probiotics to repopulate my gut with good bacteria. After I finish the antibacterial drug, I will take a very high dose probiotic (127 billion good bacteria per dose) for a week to quickly restore my good bacteria back to normal levels.

I realize that tests for food allergies and gut bugs are expensive. However, some health insurance covers alternative medical care (mine partially reimburses). Nevertheless, I might still be doing 'elimination diets' and maybe doctor shopping to determine the source of my symptoms if I had not tested for other allergies and gut bugs.

SUE

Very helpful information, Sue. My naturopath also does stool tests for parasites etc. My daughter has 2 parasites, one of which is "abundant". She currently is being treated. I also have a mild case of one parasite, but am not being treated yet, as I am allergic to the medication that was prescribed and I have not heard back about an alternative treatment. I'm interested in the ELISA test and will look into it. This has been a very frustrating process. My older daughter and I seem to react to all of the same things - gluten, dairy, corn, beef. My younger daughter has a whole separate set of issues - dairy, soy, egg, pork. So far. We are still in process of adding things back.

Catherine

kimis Collaborator

how do yo find a doctor like that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMG Rookie
how do yo find a doctor like that?

I found mine just by chance - reading this board. Someone posted a link to an article, and the doctor who had written it has a practice about 20 minutes from where I live.

I just did a quick search and found a site naturopathic[dot]org, which has a tool to find a naturopathic practitioner in your area. You also might try posting in the 'doctors' section of this board to see if anyone can recommend someone.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mmoc replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Blood tests low iGA 4 years later digestive issues

    2. - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Gluten free nuts

    3. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,388
    • Most Online (within 30 mins)
      7,748

    Whirlwind acres
    Newest Member
    Whirlwind acres
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
    • Aretaeus Cappadocia
      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.