Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Soon Do You See A Reaction?


positivenrgfairy

Recommended Posts

positivenrgfairy Apprentice

I have been slowly cutting out gluten for the last several weeks and I cheated last night and I'm feeling pretty crummy today. There's no way one cheesy biscuit could possibly be making me feel so bloated and depressed this soon.

...is there?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Some react immediately. Others take hours before symptoms begin. After a significant ingestion, my symptoms develop in about 12 hours and are serious for a few days then decline and are gone in about a week.

When I say a significant ingestion, I am not referring to CC, but something like eating the wrong cookie by mistake.

I don't suppose that was what you were hoping to hear...

positivenrgfairy Apprentice
Some react immediately. Others take hours before symptoms begin. After a significant ingestion, my symptoms develop in about 12 hours and are serious for a few days then decline and are gone in about a week.

When I say a significant ingestion, I am not referring to CC, but something like eating the wrong cookie by mistake.

I don't suppose that was what you were hoping to hear...

So you have a reaction if you eat ONE cookie?

JillianLindsay Enthusiast

I have a reaction if someone uses the same fork for something with gluten and then I use it. Yes, even trace amounts make celiacs sick.

It's recommended that people go off gluten "cold turkey" and not slowly wean off of it becasue of the harm that even crumbs can do, although it is completely your personal choice to make, and tapering off may be better if it makes it easier for you and will help you stick to the diet in the future.

If I even have one little crumb of bread (or anything gluteny) I am sick for 4-5 days (FATIGUED AND MOODY big time, sometimes GI problems, stomach pain, bloating, etc. also) and it takes a full 7-10 days for me to be back to 100%.

On the plus side, you can take control of your health :) The gluten-free diet can be a healthier, more adventurous diet and you will feel SO much better once you commit to it 100%! Keep coming here for advice and support, talking to your DR, getting educated and you will do great.

Good luck,

Jillian

So you have a reaction if you eat ONE cookie?
positivenrgfairy Apprentice
I have a reaction if someone uses the same fork for something with gluten and then I use it. Yes, even trace amounts make celiacs sick.

It's recommended that people go off gluten "cold turkey" and not slowly wean off of it becasue of the harm that even crumbs can do, although it is completely your personal choice to make, and tapering off may be better if it makes it easier for you and will help you stick to the diet in the future.

If I even have one little crumb of bread (or anything gluteny) I am sick for 4-5 days (FATIGUED AND MOODY big time, sometimes GI problems, stomach pain, bloating, etc. also) and it takes a full 7-10 days for me to be back to 100%.

On the plus side, you can take control of your health :) The gluten-free diet can be a healthier, more adventurous diet and you will feel SO much better once you commit to it 100%! Keep coming here for advice and support, talking to your DR, getting educated and you will do great.

Good luck,

Jillian

Are all celiacs like this? it seems that I've been finding people have a gluten sensitivity on many various levels. I'm very new to all of this. thank you for your help.

psawyer Proficient
So you have a reaction if you eat ONE cookie?

Yes, I do. I haven't had an incident in a long time, so it is hard to be sure, but in terms of an autoimmune trigger, one typical cookie contains a large amount of gluten.

emcmaster Collaborator
Are all celiacs like this? it seems that I've been finding people have a gluten sensitivity on many various levels. I'm very new to all of this. thank you for your help.

Yes, all Celiacs have sensitivity to the smallest amounts of gluten. The difference between Celiacs is whether you have symptoms at all levels of ingestion. 1/48th of a slice of bread is enough to cause villi damage - so ONE cookie is most definitely going to cause problems for you, even if you don't have a visible reaction.

I react within 2 hours if it is serious ingestion (like eating a piece of bread) and within 24-48 hours if it is cross contamination. My symptoms gradually decrease over a week and then will sometimes pop up for randomly and last shortly for the next week or so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
I have been slowly cutting out gluten for the last several weeks and I cheated last night and I'm feeling pretty crummy today. There's no way one cheesy biscuit could possibly be making me feel so bloated and depressed this soon.

...is there?

ABSOLUTELY! "One" cheesy biscuit has a whole crapton of gluten, and you only need a TINY amount (crumbs), in order to start the immune reaction that damages the gut and causes the symptoms of celiac disease. Removal of gluten needs to be as close to 100% as you can do.

I tend to react somewhere between 30 minutes and 12 hours, depending on the level of contamination. I can't imagine how incredibly awful I would feel if I ate a whole bite of gluten-containing food. /urp

ang1e0251 Contributor

The autoimmune system in your body is microscopic so it can react to microscopic amounts of gluten.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.