Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support For Beginning Days Of Going Gf


fritzicurls

Recommended Posts

fritzicurls Rookie

I am very new to going gluten free. I am convinced that this is a life path for me. Is it usual to have several good days then have some bad days? I know that I have been gluten-free because the ONLY things I have eaten are meat and rice and a few fresh veggies. Also have checked all cosmetic products, supplements, etc.

I'd like to hear how it went for others in the "early days"!!!

fritzicurls


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I also had good and bad days at first. I really didn't start feeling alot better until month 3 and then it took me a few more to get back to normal.

Everyone has different times for when they start feeling better but it takes time for your body to get used to this new way of eating and for your body to heal.

That's great you have been on top of things and checked makeup, supplements, etc. That eliminates alot of risks of contamination right there.

Feel better soon and hang in there :D

Canadian Karen Community Regular

What you are experiencing is typical, I think.....

Keep on reminding yourself that it took years of gluten damaging your system to get you to this point and it is not going to turn around overnight..... There will be good days, bad days, days where you wonder if it is worth the hassle, days where you will thank your lucky stars you went gluten free, and a myriad of different feelings in between.

Everybody's bodies heal differently,some quicker than others......

Hang in there! ;)

Karen

tarnalberry Community Regular

I think it's also possible (not like we need to make matters worse, but hey, we're human!) that as the first few days go by on a gluten-free diet, first few weeks and months as well, we tend to by SO hypervigilant about how we are feeling physically that we no longer overlook small things we may have overlooked in the past. So, because we're looking so very closely, we may feel worse sometimes, than we might otherwise. Essentially, becoming hypersensitive to how we're feeling. (I don't necessarily use hypersensitive in a bad sense though. While it's possible to take it too far, I would argue that most of us - well, most Americans in general, I don't know... once you've got celiac disease and go down that path, I don't think it's true any longer - are not sensitive/aware enough of how our bodies are feeling.

ianm Apprentice

It seems that the average time to start feeling better is 3 months and a year to reach the healthy point. That is the way it was for me too. It is so worth it to follow this path. You will make mistakes along the way and get nailed with gluten from time to time. The only thing you can do is keep yourself as healthy as possible so that you can weather the storm better.

I have been gluten-free for over a year and last night I accidently used my sons Teenage Mutant Ninja Turtles toothpaste, with gluten of course. Fortunately the amount must have been really small and the only reaction I had was a tingling sensation in my mouth and a nightmare. The only time I dream is when I get nailed with gluten. Even us veterans slip up sometimes.

Ally2005 Apprentice

I can relate to what Tiffany said about being hypersensitive to what's going in our bodies. Shortly after learning about celiac disease two months ago, I noticed how sore/irritated by gut actually was. I am observant about everything that goies on with my body to the point that it has become obsessive. I am trying to get over this and hopefully as my GI symptoms improve I will also put my thoughts on the back burner.

Patience is the key.

Ally

fritzicurls Rookie

Thanks to all of you for your replies. I think I figured out the culprit!!! I helped clean out an old barn yesterday and all the dust and mold did a number on me!!!

I am going to persevere no matter what. There are too many great stories on this site to give me the inspiration that I need. Thanks everyone!

fritzicurls


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

In the future you should wear a good particle mask when cleaning dirty area. I have to wear one just cleaning out my garage because the dirt and dust makes me rather ill.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748

    patanddiane
    Newest Member
    patanddiane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.