Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will My Digestion Be Messed Up For Life?

jasonD2

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

In addition to celiac I have all these food sensitivities and recent GI tests revealed candida & C.difficle overgrowth along with malabsorption markers. Ive been pumping myself with probiotics (Ther Biotic Complete & Symbion & S. Boulardi). I had to stop the boulardi cause it was causing bad constipation, however, the other probiotics are causing problems as well. I pretty much need to take magnesium or oxypowder every single night or i wont go at all. Will i ever be able to get my system balanced out? If probiotics are supposed to help then why are they constipating me? seems like most people who take probiotics have improved bowel function but not me

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

A lot of probiotics have dairy and I noticed your sig says you are lactose intolerant. Do you like saurkraut? If you do you could try eating that once a day for a bit instead as it has the same good stuff as the bottled probiotics. If you have issues with dairy that may be causing the C.

jasonD2 Experienced
jasonD2
Posted
  • Author

No I take probiotics that are dairy (and allergen) free

ang1e0251 Contributor
ang1e0251
Posted

As the PP said the fermented cabbage is excellant for the gut. You could look over the SCD diet that has a long thread under leaky gut. It is reported to be good for the conditions you have and the thread can tell you all you need to know about it. I think it would do you good. I don't follow it to the letter but I have improved my health with what I have learned.

jasonD2 Experienced
jasonD2
Posted
  • Author

problem is if i cut out the carbs i lose weight- and i cant afford to lose any more

ang1e0251 Contributor
ang1e0251
Posted

That is a problem. But it doesn't stop all carbs just has you focus on certain ones. I was only saying some carbs are a problem for me. But you could look at a few pages of the thread and see what you think. Maybe you could put some of your problems to them and see what those folks say.

The reason I mention it is many of the people who contribute to that thread tend to have similar problems to the ones you have mentioned. They have lived with it and are improving their digestion so I felt you might find some valuable info there.

burdee Enthusiast
burdee
Posted
In addition to celiac I have all these food sensitivities and recent GI tests revealed candida & C.difficle overgrowth along with malabsorption markers. Ive been pumping myself with probiotics (Ther Biotic Complete & Symbion & S. Boulardi). I had to stop the boulardi cause it was causing bad constipation, however, the other probiotics are causing problems as well. I pretty much need to take magnesium or oxypowder every single night or i wont go at all. Will i ever be able to get my system balanced out? If probiotics are supposed to help then why are they constipating me? seems like most people who take probiotics have improved bowel function but not me

In my experience probiotics helped normalize regularity. Whether I had hard stools or diarrhea, taking probiotics helped me have more 'normal' stools.

However, my doc discouraged me from using S. Boulardi with c-diff treatment, because several of his other patients developed yeast overgrowth even from that 'beneficial' yeast (SB). When I had candida (yeast) overgrowth, I was chronically constipated. So perhaps S. boulardi overgrowth caused your current constipation.

Also, my initial symptoms for c-diff were constipation, not diarrhea. So ongoing (or even recurrent) c-diff infection could influence your constipation. C-diff is often difficult to eliminate (25% of cases get recurrences). I had 3 recurrences even after taking flagyl and vancomycin in addition to probiotics. I'm now doing tapered or 'pulse' dosing with vancomycin, which studies have shown to successfully resolve recurrent c-diff. I have experienced NO constipation since I started treating for c-diff 4 months ago. That's a long time for me, because I had chronic constipation most of my life. I had also taken magnesium supplements for years just to have regular (yet hard) bowel movements. While treating for c-diff I needed to reduce how much magnesium I take to avoid diarrhea.

Do you have any other c-diff symptoms, like bloating, gas, cramping pain, dizziness or nausea?

SUE

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlakeNYC Newbie
BlakeNYC
Posted

One comment -- I notice that you do not have celiac disease. So just curious, why are you posting on this site? It seems like your issues would be better addressed via a forum that deals with constipation and leaky gut.

Just trying to keep the forum focused.

ravenwoodglass Mentor
ravenwoodglass
Posted
One comment -- I notice that you do not have celiac disease. So just curious, why are you posting on this site? It seems like your issues would be better addressed via a forum that deals with constipation and leaky gut.

Just trying to keep the forum focused.

All are welcome to post on this site as long as they are respectful of others and follow the board rules. In addition the poster actually has been diagnosed as producing antibodies to gluten which makes him gluten sensitive or celiac and he has a gene that is associated with it. DQ8.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to tiffanygosci's topic in Coping with Celiac Disease
      14

      New Celiac Mama in My 30s

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well...
    2. SusanJ
      - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was...
    3. knitty kitty
      - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      14

      New Celiac Mama in My 30s

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body. See my blog. Click on my name to go to my page...
    4. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      14

      New Celiac Mama in My 30s

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that...
    5. RMJ
      - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and g...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,981
    • Most Online (within 30 mins)
      7,748
    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      Outgrow celiac?

      By RMJ · Posted

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.