Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm A New Celiac


ironspider33

Recommended Posts

ironspider33 Rookie

So, Saw my doctor almost three weeks ago. WEnt to him because I thought I had figure out i was lactose intolerant, which I am. I was drinking litres of milk a day, loved ice cream, let's not forget cheese.

Backstroy: I've done six ironmans, but have always looked puffy. The strange looks i would get runnign due to my stocky appearance were hilarious. I always raced around 200 lbs, but am now at 230 , and that's even down..so far

But i have been unable to successfully train since 2003. Chaulked it up to age, and drinking beer all the time (not helpful either)

So, finally i cut out dairy, fel a littel better, but still am gassy and bloated. I never wante d to think i had to give up my beloved beer. More importantly, i couldn't run very far without stopping. Felt like legs of lead, and getting out the dor to run was the hardest thing. and not opne poundfell off...ever.

So he orders the test and have another appointment in two weks. However, I went gluten free as soon as h said he was testing it. That day I had bloat and pain cause i had a few beer the night before, attempted to run 5k (stopped al ot felt miserable) and my blood pressure was through the roof! like 180 over 110 or some crazy number.

I tested it a week later after gluten free but at least the seocnd number was under 100. I have NEVER had blood pressure problems ever...in fact had my heart tested two years back on a treadmill etc, and everything was excellent. I have always had a low heart rate due to endurance training, and even at the docs officetwo weeks ago,the pressure was high but my resting heart rate is UNDER 60.

sigh.

ANyone else out there in my boat (bloat?)

So i's been 2.5 weeks since i went gluten free, and what a difference. I am wondering if its the power of suggestion, bt I am running fast again, and WELL...climbing hills, speed is up.

I drink the ol stronbows, but no bloat. in 2.5 weeks i lost almost 6 lbs . I had a spike on monday cause i think i dranks some fruit juice that kiiiiiled my stomach. was sickly and tired, and worst of all, on the crapper all day.

So, am i being impatient in thinkin i have to wait foreverfor weight to fall of? Not even three weeks, but i thought i t would go faster cause I am training better the lasttwo weeks, and feeling fantastic (cept for monday when i think i glutenned myself)

How long does anyone think it shoudl take for me to drop down to 200? weeks? months?

I also started reading eveything, and even think i am malnourished because of my fingernail ridges iam seeing.

I also want to know why i gained wait if malnourished instead of storing fat?

Im excited about the blood resutls, but already know I am gluten intolerant or allergic, it's rather opbvious cause and effect now.

Thank god i can still eat peanut butter.

Ialso don't crave things...like beer. is that weird? i craaaaaaved beer, may be my only source of nutriution?;)

If anyone else has a simlar story, i would love to hear it, and any comments on anythign i wrote.

Me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JillianLindsay Enthusiast

I am a fellow athlete and found that my performance has improved since going gluten free. My dear, if you have celiac disease you do need to give up beer, even strongbow! They are coming out with better and better gluten-free beers, but giving it up for a bit while your body heals is probably the best thing. And not all peanut butter is gluten-free, so make sure you check the label :)

Everyone's improvement, healing and weight loss or gain (depending on the situation) will come at a different pace. You'll find best results if you cut out gluten 100% and stick to a very strict diet (especially if you do in fact have celiac disease). An important thing to note though is that if your bloodwork comes up positive then your DR should be referring you to a GI and ordering an endoscopy (scope down your throat -- with a sedative -- to look at your stomach & small bowel and to take biopsies to test). If you need to have a scope done then you will need to continue eating gluten so that you don't get a false negative.

Some people feel better on the gluten-free diet and don't need a firm diagnosis while others need to know for sure before making such a drastic change, it's a very personal choice.

Good luck!

Jillian

So, Saw my doctor almost three weeks ago. WEnt to him because I thought I had figure out i was lactose intolerant, which I am. I was drinking litres of milk a day, loved ice cream, let's not forget cheese.

Backstroy: I've done six ironmans, but have always looked puffy. The strange looks i would get runnign due to my stocky appearance were hilarious. I always raced around 200 lbs, but am now at 230 , and that's even down..so far

But i have been unable to successfully train since 2003. Chaulked it up to age, and drinking beer all the time (not helpful either)

So, finally i cut out dairy, fel a littel better, but still am gassy and bloated. I never wante d to think i had to give up my beloved beer. More importantly, i couldn't run very far without stopping. Felt like legs of lead, and getting out the dor to run was the hardest thing. and not opne poundfell off...ever.

So he orders the test and have another appointment in two weks. However, I went gluten free as soon as h said he was testing it. That day I had bloat and pain cause i had a few beer the night before, attempted to run 5k (stopped al ot felt miserable) and my blood pressure was through the roof! like 180 over 110 or some crazy number.

I tested it a week later after gluten free but at least the seocnd number was under 100. I have NEVER had blood pressure problems ever...in fact had my heart tested two years back on a treadmill etc, and everything was excellent. I have always had a low heart rate due to endurance training, and even at the docs officetwo weeks ago,the pressure was high but my resting heart rate is UNDER 60.

sigh.

ANyone else out there in my boat (bloat?)

So i's been 2.5 weeks since i went gluten free, and what a difference. I am wondering if its the power of suggestion, bt I am running fast again, and WELL...climbing hills, speed is up.

I drink the ol stronbows, but no bloat. in 2.5 weeks i lost almost 6 lbs . I had a spike on monday cause i think i dranks some fruit juice that kiiiiiled my stomach. was sickly and tired, and worst of all, on the crapper all day.

So, am i being impatient in thinkin i have to wait foreverfor weight to fall of? Not even three weeks, but i thought i t would go faster cause I am training better the lasttwo weeks, and feeling fantastic (cept for monday when i think i glutenned myself)

How long does anyone think it shoudl take for me to drop down to 200? weeks? months?

I also started reading eveything, and even think i am malnourished because of my fingernail ridges iam seeing.

I also want to know why i gained wait if malnourished instead of storing fat?

Im excited about the blood resutls, but already know I am gluten intolerant or allergic, it's rather opbvious cause and effect now.

Thank god i can still eat peanut butter.

Ialso don't crave things...like beer. is that weird? i craaaaaaved beer, may be my only source of nutriution?;)

If anyone else has a simlar story, i would love to hear it, and any comments on anythign i wrote.

Me

Rosewied Rookie

Well, I had a longer post, but it was just deleted somehow when I went to edit it. So, to make a long story short I have been a life-long athlete and have had a lot of difficulty training the past 2 years. I ended up with a stress fracture training for a mini-marathon (how's that for malnutrition at 26yrs.?) I had blood test confirmation about two months ago and biopsy about a month after that. I went gluten-free after my blood test. My villi were still atrophied and had the lymphocytes and all that good stuff when I had my biopsy. The thing is it's a learning curve. So, unless you've emptied out your kitchen, replaced your cutting boards and headed to the health food store for a very expensive grocery run, you're going to be finding things that have secret gluten for awhile. Even if you're feeling better, you could still be getting some just a lot less than before. For me I can't afford to buy only food that's been tested for G so I've been doing a lot of research, label reading and contacting manufacturers. This is a little more risky, but like I said.

I'm curious about the BP and will be checking mine. I had never had BP issues until my pregnancies and have had borderline hypertension ever since.

Good luck I don't know if I could handle the lactose and gluten personally. I feel like I live off of cheese now!

Hopefully we'll both be competing in the spring!

Meagan

ang1e0251 Contributor

I am not an athlete but I enjoy watching athletes. Does that count?

I also gained weight while on gluten and have had high blood pressure for about 7 years, on meds for it. But this winter, I got stricter with my diet and cut out all grains except some rice every week and occasional corn. I increased my magnesium also and my blood pressure is now very good on half the medication and no diuretics! A very big step for me! I don't understand the science of it all but my belief is that the overall body inflamation from foods has caused my problems and as I narrow down all the culprits in my diet, my health just continues to improve.

ironspider33 Rookie
So, Saw my doctor almost three weeks ago. WEnt to him because I thought I had figure out i was lactose intolerant, which I am. I was drinking litres of milk a day, loved ice cream, let's not forget cheese.

Backstroy: I've done six ironmans, but have always looked puffy. The strange looks i would get runnign due to my stocky appearance were hilarious. I always raced around 200 lbs, but am now at 230 , and that's even down..so far

But i have been unable to successfully train since 2003. Chaulked it up to age, and drinking beer all the time (not helpful either)

So, finally i cut out dairy, fel a littel better, but still am gassy and bloated. I never wante d to think i had to give up my beloved beer. More importantly, i couldn't run very far without stopping. Felt like legs of lead, and getting out the dor to run was the hardest thing. and not opne poundfell off...ever.

So he orders the test and have another appointment in two weks. However, I went gluten free as soon as h said he was testing it. That day I had bloat and pain cause i had a few beer the night before, attempted to run 5k (stopped al ot felt miserable) and my blood pressure was through the roof! like 180 over 110 or some crazy number.

I tested it a week later after gluten free but at least the seocnd number was under 100. I have NEVER had blood pressure problems ever...in fact had my heart tested two years back on a treadmill etc, and everything was excellent. I have always had a low heart rate due to endurance training, and even at the docs officetwo weeks ago,the pressure was high but my resting heart rate is UNDER 60.

sigh.

ANyone else out there in my boat (bloat?)

So i's been 2.5 weeks since i went gluten free, and what a difference. I am wondering if its the power of suggestion, bt I am running fast again, and WELL...climbing hills, speed is up.

I drink the ol stronbows, but no bloat. in 2.5 weeks i lost almost 6 lbs . I had a spike on monday cause i think i dranks some fruit juice that kiiiiiled my stomach. was sickly and tired, and worst of all, on the crapper all day.

So, am i being impatient in thinkin i have to wait foreverfor weight to fall of? Not even three weeks, but i thought i t would go faster cause I am training better the lasttwo weeks, and feeling fantastic (cept for monday when i think i glutenned myself)

How long does anyone think it shoudl take for me to drop down to 200? weeks? months?

I also started reading eveything, and even think i am malnourished because of my fingernail ridges iam seeing.

I also want to know why i gained wait if malnourished instead of storing fat?

Im excited about the blood resutls, but already know I am gluten intolerant or allergic, it's rather opbvious cause and effect now.

Thank god i can still eat peanut butter.

Ialso don't crave things...like beer. is that weird? i craaaaaaved beer, may be my only source of nutriution?;)

If anyone else has a simlar story, i would love to hear it, and any comments on anythign i wrote.

Me

ironspider33 Rookie

THANKS FOR ALL THE REPLIES...

i also forgot to mention the reflux! It dissapeared like day two of going gluten free and has never come back.

let's not forget to mention bathroom trips are now less than five min in the AM rather than frequently aaaaaaaall day for at least 20 min a pop

Joint pain and aches. GONE! took about a coupla weeks for that...

wt Frik! i've been living sick all this time thinking it was normal! My days are now 18 hours long fulll of activity and energy, rather than needing a nap. I used to come home for work and like pass out till 7 or so, thinking it was the run that did me in. we just ripped out basement out adn starteed remodelling. I feel like superman now!

Now if only the weight would come off faster. I know i have to be patient. 2lbs a week is prob best...so far a drop of about 7 lbs is the deal since aug 31. Not bad i guess considering i couldnt lose any at all before.

I also noticed my fingernails are ridged and indented. holy malnutrition batman?

I have one more question. what is the science, concering the weight. I am now losing, but i read that it celiac affects you in one of two ways. ultra malourished and dethly thin, or weigh gain to the point of never being able to lose.

It ain't about excercise, cause for about three months this spring i somehow got up to 9 hours a week training, and couldnt lose.

so what is the science..?

ang1e0251 Contributor

I don't know the science. I am one of the weight gainers. I can only come back to my theory that overall inflamation is holding me back. The more I discover what foods bother me, the better I feel, and the more my weight creeps down as well as my blood pressure. I know it is also tied into insulin levels. I know I still need to cut down more sugar out of my diet. I've cut down a lot already and it's helping. Your weight loss is at a healthy level, just hang in there. Your progress is amazing!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dhd2000 Newbie

Hi, I was never an athlete until going gluten-free, I was always too tired and achy. Now gluten-free for 2 1/2 years I am really enjoying playing tennis and taking dance classes and long walks with the dog. I think as far as losing weight goes, if you replace the gluten in your former diet with lots of gluten-free bread products (muffins, cookies, bread, etc...) you are more likely to gain weight. The gluten-free breads have higher calorie counts that gluten ones. If you take the opportunity to really change and focus your diet on fruit/veggies and lean meats with less bread, you should really see a difference.

I am very careful about what I eat and that makes all the difference in the world. I do not miss at all my former way of eating because I feel so good and so full of energy.

Hang in there and know that you are on the right path to having a much healthier life, even if it takes a bit longer than you'd like. These are life-long changes you are making so the benefits will last forever!

Dee in NC

ironspider33 Rookie

update to my frustration with weight loss...

It's progressing! ran at lunch on a course that used to take me at least 50 min (with at least two or three minutre duration walk braks..watch stopped of course;) ) and today i rocked it. No stops...and 4 min faster over 9k!!!!!!!!!!!!woohooooo..

Then i stepped on the evil scale at the gym. you know, the lying one that is broken cause it doesnt tell ya what ya wanna hear....and I dropped another 2.5 lbs! suince like thursday...so my min expectation is approx 2lbs a week...which is like weight watchers rate of loss! i can live with that. Time to step up the workouts and get swimmiong and riding again!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.