Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back Pain When Having A Digestive Flair-up?

Lynayah

By Lynayah
in Coping with Celiac Disease

Recommended Posts

Lynayah Enthusiast
Lynayah
Posted
  • Author
yep, upper right back moving under the shoulder blade. one of my conclusive signs that I've been glutened

maile: I know it is off topic, kindly forgive me everyone, but I just had to say that your puppy photo is beyond CUTE!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lynayah Enthusiast
Lynayah
Posted
  • Author

Do any of you find that an Epsom Salt bath helps a bit?

purrcep4 Newbie
purrcep4
Posted
Oh wow this happens to ME! I was diagnosed in August and I have been gluten free until 2 days ago. My kids asked for cookies at the store. Normally I would make them myself but I said ok to the treat. Well of course the kids wanted one now. I put one in my mouth w/o thinking!! I had to RACE home to go to the bathroom, had back pain and shoulder pain for the remainder of the day. I NEVER thought that it could be from the gluten.

Wow!! I have been getting incredible right shoulder pain, and almost a paralysis of my arm. It's very debilitating. I also get low back pain which I have had for years and always thought it was due to deterioration of discs, according to many doctors and therapists. But I have learned recently since working on being gluten free that it is the gluten and maybe dairy.

Annie

purrcep4 Newbie
purrcep4
Posted
Does anyone have any tips for alleviating any of these symptoms after being glutened? I find that if I drink organic oj for the vitamin c with magnesium carbonate to help relax, take bifido pro biotics to get my bacteria growing and eat organic blueberries for the antioxidants, it calms the response. It doesn't make it go away, but it becomes more tolerable.

I get very debilitated from the gluten, with right shoulder pain and arm pain, my arm almost seems to go out of place, and just hang. The right low back pain is very intense, and I cannot stand up straight without incredible pain. The back of my head feels like it is caving in, and sometimes I have trouble getting words out. I can wake up in the night with all of this going on at once, along with intense cramping and tingling in my legs. I will be in a fetal position unable to straighten my legs, and grabbing my hair and pulling on it.

Thank you for this site. I finally feel that I am not alone.

Annie
Swimmr Contributor
Swimmr
Posted
Wow!! I have been getting incredible right shoulder pain, and almost a paralysis of my arm. It's very debilitating. I also get low back pain which I have had for years and always thought it was due to deterioration of discs, according to many doctors and therapists. But I have learned recently since working on being gluten free that it is the gluten and maybe dairy.

Annie

I am curious now to know if my fluctuating tingly-ness...or warm flushing feeling of my left arm may be a gluten reaction. Then slight dizziness/strange feeling occurs after that and by then I've taken an Ativan (which is Rx) and all is happy for me. Sometimes after this I will have what my doc thinks is a panic attack (if I don't pop the pill) which started happening last December unannounced and sudden. But by the time the dizziness sets in I've take my Rx Ativan...and then all is happy for me...literally. Seeing as how I've correlated my panic attacks and being glutened together on occasion, I wouldn't see why the tingly-ness WOULDN'T be from being glutened.

Sometimes it's in my right arm but mostly in my left. Sometimes I don't have a panic attack afterwards. It just continues to feel warm, then cool with clammy palm...then back warm again.

Doc didn't seem concerned that it's circulation or my heart...since there are no other symptoms that could be heart...unless it's my brain, but he isn't concerned about that either.

Why has everything got to be so complicated?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748
    dcarter1682
    Newest Member
    dcarter1682
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.