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How Long Have U Had Cd?

wickedclown

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wickedclown Newbie
wickedclown
Posted

hey i was diagnosed with celiac disease april 1999 and i wanted to know how long you ppl have been diagnosed

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minibabe Contributor
minibabe
Posted

I was diagnosed with celiac disease in December of 2004, but I was sick for about 3 years prior

Carriefaith Enthusiast
Carriefaith
Posted

Almost 14 months!

KaitiUSA Enthusiast
KaitiUSA
Posted

I was diagnosed in January of 2004 but I was sick 2 years prior to that. I have been gluten free about 16 months

tarnalberry Community Regular
tarnalberry
Posted

I figured it out in 2003, but I don't have many symptoms and I don't think I had it as a child....

celiac3270 Collaborator
celiac3270
Posted

Diagnosed in Feb. 2004, so I've been gluten-free for about 14 months...... I've had celiac disease much longer.

flagbabyds Collaborator
flagbabyds
Posted

So I was diagnosed when I was 20 montsh old in 1992 so that would be 13 years+ :) Long time:)

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stargirl Apprentice
stargirl
Posted

I'm with Kaiti at 16 months but I was sick on off through my childhood.

yllehs91 Apprentice
yllehs91
Posted

Diagnosed 9/27/04 but had a few symptoms ever since i was about 3 or so...all the docs said I'd grow out of it....ha--sure ;)

ErraticBinxie Explorer
ErraticBinxie
Posted

I am almost 18, have been gluten-free since I was 9.

The funny thing is that I always think about the last gluten thing I ate intentionally when I think about how long I have been gluten-free. I was in fourth grade. I ate some animal crackers. Never again did I intentionally eat gluten. What a lame thing to end my gluten-filled life with huh?

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I have always had Celiac Disease.

I was diagnosed 2 years ago, though.

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

I know I'm not a teenager, but I was diagnosed in November of 1997, right in the middle of college.

teeta Newbie
teeta
Posted

Hello i am almost 17 and was diagnosed when i was 2 by my mother so that is about 15 years

DoctorDave Newbie
DoctorDave
Posted

Was diagnosed when I was 2 so about 21 years.....

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

OK, I'm not a teenager either. Does it count, when you look like one??? :P (hugs to all the baby-faces out there) I'm kind of self-diagnosed. My doc still doesn't really believe it. He's like: 'Ok, you're blood-levels were just slightly elevated and didn't show much and you had no biopsy. But, heck, if you feel better... just do what you want...and when you feel bad come back'. Other than the "Amstel light"-mistake I never felt bad again :P . So this "diagnosis" I got 07/21/04. But I suffered really severe for 7 years until anything came out. I also think, I had it all my life, but not as severe.

ianm Apprentice
ianm
Posted

I had symptoms that would come and go all of my life. In my mid-20's they started to become really severe. I didn't learn what was wrong until early 2004 at the age of 36 when I tried the Atkins diet. Dozens of doctors never once suggested a food intolerance. Since then my life has changed dramatically for the better. I am not the man I used to be at all and that is a GOOD thing.

kings-kid Newbie
kings-kid
Posted

I was diagnosed in 1999. I am also dairy intolerant, and have some problems with fruits as well

CrashLanden7 Newbie
CrashLanden7
Posted

This is my first post on the site, but I've been reading for a while. I live in Wyoming and feel like pretty much a loner up here. I am 20 years old and was diagnosed on my 14th birthday <_< , so... Gluten-Free for almost 7 years.

  • 2 weeks later...
dyingboy Newbie
dyingboy
Posted

hey guys i just got diagnosed for celiac today, it kinda sucks because my parents cooked a big meal and i couldnt have it. :blink:

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I don't think it sucks. You will have to start cooking for yourself then.

My family would ahve their meals and I would make my own. I still make my own but now that my Mom and borther were diagnosed they eat glutenfree, too. I just prefer to cook my own food because I did before.

KaitiUSA Enthusiast
KaitiUSA
Posted
hey guys i just got diagnosed for celiac today, it kinda sucks because my parents cooked a big meal and i couldnt have it. :blink:

We don't have it that bad..we can still have alot of really good foods..you'll get used to it and realize it's not so bad.

explodingmonkey Newbie
explodingmonkey
Posted

sorry for having the rude account name before as "dyingboy" i found it a little offensive

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    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

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    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
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      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
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