Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Have U Had Cd?


wickedclown

Recommended Posts

wickedclown Newbie

hey i was diagnosed with celiac disease april 1999 and i wanted to know how long you ppl have been diagnosed


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor

I was diagnosed with celiac disease in December of 2004, but I was sick for about 3 years prior

Carriefaith Enthusiast

Almost 14 months!

KaitiUSA Enthusiast

I was diagnosed in January of 2004 but I was sick 2 years prior to that. I have been gluten free about 16 months

tarnalberry Community Regular

I figured it out in 2003, but I don't have many symptoms and I don't think I had it as a child....

celiac3270 Collaborator

Diagnosed in Feb. 2004, so I've been gluten-free for about 14 months...... I've had celiac disease much longer.

flagbabyds Collaborator

So I was diagnosed when I was 20 montsh old in 1992 so that would be 13 years+ :) Long time:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stargirl Apprentice

I'm with Kaiti at 16 months but I was sick on off through my childhood.

yllehs91 Apprentice

Diagnosed 9/27/04 but had a few symptoms ever since i was about 3 or so...all the docs said I'd grow out of it....ha--sure ;)

ErraticBinxie Explorer

I am almost 18, have been gluten-free since I was 9.

The funny thing is that I always think about the last gluten thing I ate intentionally when I think about how long I have been gluten-free. I was in fourth grade. I ate some animal crackers. Never again did I intentionally eat gluten. What a lame thing to end my gluten-filled life with huh?

MySuicidalTurtle Enthusiast

I have always had Celiac Disease.

I was diagnosed 2 years ago, though.

VegasCeliacBuckeye Collaborator

I know I'm not a teenager, but I was diagnosed in November of 1997, right in the middle of college.

teeta Newbie

Hello i am almost 17 and was diagnosed when i was 2 by my mother so that is about 15 years

DoctorDave Newbie

Was diagnosed when I was 2 so about 21 years.....

stef-the-kicking-cuty Enthusiast

OK, I'm not a teenager either. Does it count, when you look like one??? :P (hugs to all the baby-faces out there) I'm kind of self-diagnosed. My doc still doesn't really believe it. He's like: 'Ok, you're blood-levels were just slightly elevated and didn't show much and you had no biopsy. But, heck, if you feel better... just do what you want...and when you feel bad come back'. Other than the "Amstel light"-mistake I never felt bad again :P . So this "diagnosis" I got 07/21/04. But I suffered really severe for 7 years until anything came out. I also think, I had it all my life, but not as severe.

ianm Apprentice

I had symptoms that would come and go all of my life. In my mid-20's they started to become really severe. I didn't learn what was wrong until early 2004 at the age of 36 when I tried the Atkins diet. Dozens of doctors never once suggested a food intolerance. Since then my life has changed dramatically for the better. I am not the man I used to be at all and that is a GOOD thing.

kings-kid Newbie

I was diagnosed in 1999. I am also dairy intolerant, and have some problems with fruits as well

CrashLanden7 Newbie

This is my first post on the site, but I've been reading for a while. I live in Wyoming and feel like pretty much a loner up here. I am 20 years old and was diagnosed on my 14th birthday <_< , so... Gluten-Free for almost 7 years.

  • 2 weeks later...
dyingboy Newbie

hey guys i just got diagnosed for celiac today, it kinda sucks because my parents cooked a big meal and i couldnt have it. :blink:

MySuicidalTurtle Enthusiast

I don't think it sucks. You will have to start cooking for yourself then.

My family would ahve their meals and I would make my own. I still make my own but now that my Mom and borther were diagnosed they eat glutenfree, too. I just prefer to cook my own food because I did before.

KaitiUSA Enthusiast
hey guys i just got diagnosed for celiac today, it kinda sucks because my parents cooked a big meal and i couldnt have it. :blink:

We don't have it that bad..we can still have alot of really good foods..you'll get used to it and realize it's not so bad.

explodingmonkey Newbie

sorry for having the rude account name before as "dyingboy" i found it a little offensive

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,164
    • Most Online (within 30 mins)
      7,748

    JennyK
    Newest Member
    JennyK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.