Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Feeling So Good!


lillylou

Recommended Posts

lillylou Newbie

I was diagnosed in Dec. 08 with celiac disease. I am dealing with major stress in my life which is causing me to have diarehha daily. My stomach cramps after eating almost everything. I am loosing weight also. Is there anything I can eat that would be gentle on my gut during this time and allow healing? My diet consists of fresh fruits/veggies and chicken and fish. I could use some guidance. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I was diagnosed in Dec. 08 with celiac disease. I am dealing with major stress in my life which is causing me to have diarehha daily. My stomach cramps after eating almost everything. I am loosing weight also. Is there anything I can eat that would be gentle on my gut during this time and allow healing? My diet consists of fresh fruits/veggies and chicken and fish. I could use some guidance. Thanks.

I am sorry you are still feeling so bad. Are you on any medications or supplements? If yes have you checked with the maker to be sure they are gluten free? Are you taking precautions against cross contamination? For example you need a dedicated gluten free toaster, your own condiments and nut butters etc to prevent CC from gluten eaters in your home 'double dipping'. Do you eat out often? Many restaurants are not very knowledgeable about cross contamination and for many we need to avoid restaurant food until we heal. Have you eliminated dairy? Many need to until we heal. If you are strictly gluten free and are still having issues this bad you may want to call your GI and make an appointment to make sure that nothing else is going on.

As far as stuff that is gentle on the tummy to eat, cream of Buckwheat is very soothing and sprinkling a bit of cinnamon on it will also help the tummy. Other than that plain fresh meats and fresh unprocessed foods are going to help you heal with less chance of CC.

lillylou Newbie
I was diagnosed in Dec. 08 with celiac disease. I am dealing with major stress in my life which is causing me to have diarehha daily. My stomach cramps after eating almost everything. I am loosing weight also. Is there anything I can eat that would be gentle on my gut during this time and allow healing? My diet consists of fresh fruits/veggies and chicken and fish. I could use some guidance. Thanks.

Thank you for your response and great questions. I do take synthroid and supplements. I do know that my supplements are gluten-free. I also take bioidentical hormones. I don't know where to look to check the ingredients of the hormone cream. I don't eat out very much. Thank you for mentioning CC. I will be purchasing another toaster. I have eliminated dairy and eggs. I will definitely try the cream of Buckwheat. What about coffee/tea? I think stress has triggered this episode I am having because 3 weeks ago, I was doing pretty good. I don't have a GI. I was diagnosed through test done at home and sent off to the lab, so I do not have a local GI. I don't want to take any medication if I can avoid it!

Thanks again for your support!

Ahorsesoul Enthusiast

Some flavored teas and coffees might not gluten free so check those. Same if you drink soda, not all of them are gluten free either. Just remember to read labels of anything that goes into your mouth including gum, toothpaste and mouthwash. Better to check everything than be sorry.

ang1e0251 Contributor

Could the stress have made you extra sensitive to some of the food you normally eat? Some people don't do well with nightshades, a food group that includes potatoes, peppers, eggplant and paprika. Do those ever bother you?

Are you eating processed foods? You didn't mention anything made with flours but you mentioned getting a new toaster. If you are using mixes or processed foods, you may be getting very small amounts of gluten through them. Some are very sensitive to those.

When ever I seem to have a set back, I back off to a very simple diet until I improve. I may have to go back to a food diary to actually "catch" the culprit food. Sometimes you just have to be a detective.

lillylou Newbie
Could the stress have made you extra sensitive to some of the food you normally eat? Some people don't do well with nightshades, a food group that includes potatoes, peppers, eggplant and paprika. Do those ever bother you?

Are you eating processed foods? You didn't mention anything made with flours but you mentioned getting a new toaster. If you are using mixes or processed foods, you may be getting very small amounts of gluten through them. Some are very sensitive to those.

When ever I seem to have a set back, I back off to a very simple diet until I improve. I may have to go back to a food diary to actually "catch" the culprit food. Sometimes you just have to be a detective.

[/b I don't eat potatoes regularly but I do eat red bell peppers almost daily. That's something I will really pay attention to. I just recently made Bobs Red Mill Hearty Wholegrain Bread. That is what I wanted the toaster for because I was using the one I've used for regular bread. Other than that, I do not eat processed foods. I am not cooking with any flours but I am paying closer attention to CC.

I have gotten back to keeping a food journal. I would be open to hearing examples of what you mean when you eat simple.

Thank you so much for support!

ang1e0251 Contributor

I thought that BRM Hearty Whole Grain bread had gluten. You should check that.

Simple whole foods are what I revert back to. No grains just meats, vegetables, beans and fruits. Single ingredient spices. Lots of eggs. Those are foods for me that are non-reactive. Once I feel better again, than I can use my food diary and add in new things one at a time and see how I react. It's the only way I could figure out things like tea and flavorings when they were bothering me. Both of those foods are gluten-free but they bothered me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lillylou Newbie
I thought that BRM Hearty Whole Grain bread had gluten. You should check that.

Simple whole foods are what I revert back to. No grains just meats, vegetables, beans and fruits. Single ingredient spices. Lots of eggs. Those are foods for me that are non-reactive. Once I feel better again, than I can use my food diary and add in new things one at a time and see how I react. It's the only way I could figure out things like tea and flavorings when they were bothering me. Both of those foods are gluten-free but they bothered me.

You know, I did check the ingredients on the BRM Hearty bread and it does have maltodextrin in it. I checked and that is on the "AVOID" list. How can they claim it to be gluten-free if it has that in it? Goes to show ya that we really do have to be "food detectives"! I will go to eating very simple and clean. I use alot of Olive Oil and fresh herbs (from our garden).

Thanks again for your suggestions. I am ready to feel better again because it's been almost a month now.

ravenwoodglass Mentor
[/b I don't eat potatoes regularly but I do eat red bell peppers almost daily. That's something I will really pay attention to. I just recently made Bobs Red Mill Hearty Wholegrain Bread. That is what I wanted the toaster for because I was using the one I've used for regular bread. Other than that, I do not eat processed foods. I am not cooking with any flours but I am paying closer attention to CC.

I have gotten back to keeping a food journal. I would be open to hearing examples of what you mean when you eat simple.

Thank you so much for support!

Although the bread mix is gluten free it does contain flours that most of us have not consumed a lot of before diagnosis. I would drop the bread for bit and see if you feel better then perhaps try it again after you have felt well for a month or so and see if it bothers you again.

When I think of eating simple I think of foods that have a minimum of ingredients. Whole unprocessed of course and items that have less than 5 ingredients. It is not unusual for us to have other foods that don't agree with us. A food diary can help to pinpoint other foods our bodies don't like and it is easier to see a pattern when we introduce stuff as simply as possible.

Wolicki Enthusiast
I was diagnosed in Dec. 08 with celiac disease. I am dealing with major stress in my life which is causing me to have diarehha daily. My stomach cramps after eating almost everything. I am loosing weight also. Is there anything I can eat that would be gentle on my gut during this time and allow healing? My diet consists of fresh fruits/veggies and chicken and fish. I could use some guidance. Thanks.

Are you taking probiotics and enzymes? I would definitely add those if you are not. I am three months gluten-free, and still cannot tolerate legumes and grains. They're much tougher to digest. I also took another poster's advice, who said spinach was hard to digest when raw. So now, I cook it just a bit in some coconut oil and it's much easier on my tummy. Keep the food diary, and you'll find what is bothering you. Feel well soon.

lillylou Newbie
Although the bread mix is gluten free it does contain flours that most of us have not consumed a lot of before diagnosis. I would drop the bread for bit and see if you feel better then perhaps try it again after you have felt well for a month or so and see if it bothers you again.

When I think of eating simple I think of foods that have a minimum of ingredients. Whole unprocessed of course and items that have less than 5 ingredients. It is not unusual for us to have other foods that don't agree with us. A food diary can help to pinpoint other foods our bodies don't like and it is easier to see a pattern when we introduce stuff as simply as possible.

Thank you for your thoughts and suggestions. I will keep it to 5 ingredients for a while.

lillylou Newbie
Are you taking probiotics and enzymes? I would definitely add those if you are not. I am three months gluten-free, and still cannot tolerate legumes and grains. They're much tougher to digest. I also took another poster's advice, who said spinach was hard to digest when raw. So now, I cook it just a bit in some coconut oil and it's much easier on my tummy. Keep the food diary, and you'll find what is bothering you. Feel well soon.

I am taking probiotics and enzymes. Thanks for the tip on cooking the spinach and I am keeping a very detailed food diary.

Thank you.

  • 1 month later...
mark6556 Newbie
I am taking probiotics and enzymes. Thanks for the tip on cooking the spinach and I am keeping a very detailed food diary.

Thank you.

You might want to take a look at the SCD diet. Wikipedia has a write up on it and the book called "breaking the vicious cycle" covers it in more detail. I've read it and found it to be a logical approach for getting around intestinal problems. One thing they recommend is cooking vegetables and even fruits in the beginning to make them easier to digest as well as targeting foods that can be absorbed without any extra work by the small intestine. This makes sense if you have seriously damaged villi as I do. I just started this approach myself but haven't been doing it long enough to know if it will help or not.

haleym Contributor
You know, I did check the ingredients on the BRM Hearty bread and it does have maltodextrin in it. I checked and that is on the "AVOID" list. How can they claim it to be gluten-free if it has that in it? Goes to show ya that we really do have to be "food detectives"! I will go to eating very simple and clean. I use alot of Olive Oil and fresh herbs (from our garden).

Thanks again for your suggestions. I am ready to feel better again because it's been almost a month now.

I just wanted to say regarding the BRM hearty bread mix....

BRM uses an ELISA assay to make sure stuff is gluten free. Maltodextrin can be from corn, or wheat. In the states, its usually from corn. I dont think BRM would be able to market it as gluten free if they have maltodextrin in it that was from a gluten source. The MALTO part can throw us off, because we think of MALT but some AVOID lists still have it in there.

I would check with BRM on this. I have eaten tons of the stuff and been totally fine.. On the other hand, I know theres a lot of nuts and different unusual grains, as well as cocoa powder and coffee powder in it, so other ingredients in it may bother you too...

Let us know what you come up with :):)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748

    bobadigilatis
    Newest Member
    bobadigilatis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.