Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free And Itchy Itchy Itchy!


wendstress

Recommended Posts

wendstress Rookie

I've been gluten-free since the beginning of 2009 and feel like I've been slowly and steadily healing. I never had DH rashes before diagnosis. (Nor do I now).

Over the last 2-3 months my legs have been so itchy I am going crazy. No rash. Just itching. One time I itched so hard I caused my inner thigh to bruise.

No changes to detergents, soaps, etc.

This may not be Celiac related, but since it generally seems like everything is related to celiac disease, I thought I'd ask.

Any thoughts? Ideas?

I've also gone light on dairy, and am trying to give up caffeine. At times more successfully than others!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I truly sympathize (from experience) with your itchiness. It can drive you crazy. :o

I am sorry to say, if my personal experience is any guide, that these itches are probably caused by one or more additional food intolerances. Since I gave up gluten almost two years ago the following food groups have caused me itching (with or without rashes): (I would identify one, only to find that there were others! -- layer upon layer of them): soy, citric acid, potatoes. With potatoes I had mostly eliminated nightshades, but then decided to have half my husband's baked potato one night and blam!! 4:00 a.m. itching. I then cut out potato starch from the gluten free flour mixes I was using, and the remaining itching went away. I had itching variously on neck, chest, upper arms, thighs abdomen, back, wrists, sometimes it seemed like everything itched.

I hope that you have only one food causing your itching. You have probably read on here to keep a food diary. The best I can advise is to cut out most of the likely itching candidates and add them back in one at a time, keeping a diary, and see how it goes. If I had done that it would not have taken me so long to figure it all out. :huh:

Good luck on achieving an itch-free body. :D

VioletBlue Contributor

I agree a food diary is the best way to figure out what is making you itch. It is most likely an allergic reaction.

In the mean time there are a couple things that worked for me. Claritan stops the itching but it takes thirty or forty minutes from the time I take it. If it's an allergy it will respond to things like Claritan and Benedryl.

There are also anti-itch creams you can use and I used a spray at one point that was heavenly. Take a look in the drug store. Benedryl makes a cream and there are others. I had a dozen or so products to choose from when I went looking.

The most drastic choice is a capsicum cream. Basically it's hot pepper, really hot pepper. It deadens the nerve endings in your skin pretty much on contact but it can also cause a burning sensation if you use too much, and you need to use gloves or some kind of applicator because it's very hard to wash off your hands. It's a last resort; though when I used it and mistakenly applied too much I came to realize I preferred the burning sensation to the itching, LOL.

tiggsy Newbie

I agree with everything that's been said, but one thing you said made me pause:

No changes to detergents, soaps, etc.

It's not unusual for household and hygiene products and makeup to contain gluten. My article "Open Original Shared Link" discusses this issue. You need to check everything! You may be lucky and discover that gluten is your only problem - just hidden in places you don't expect.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,199
    • Most Online (within 30 mins)
      7,748

    Andrea Spencer
    Newest Member
    Andrea Spencer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.