Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mind And Body Connection - Any Suggestions?


jlr

Recommended Posts

jlr Apprentice

I was diagnosed with Celiac disease 5 years ago and I have been on a gluten free diet ever since. It took some time but the diet has significantly improved my health.

I suffered from celiac symptoms - diareaha, malabsorption, anxiety and depression - for 15 years before I was diagnosed. During those years, I developed a phobia and anticipatory anxiety over the celiac symptoms and episodes.

The gluten free diet has significantly improved my health and has almost eliminated my symptoms, but as most of you have experienced - I occassionally get "glutened" after eating out.

My main reaction is still diareaha but it is nowhere near as severe as it used to be - the problem that I am still struggling with is the psycholgical symptoms. When I experience the diareaha, I also immediately start having a panic attack - shortness of breath, hyperventilation, body shakes and nausea. I can usually keep a full blown attack at bay by breathing into a paper bag but I am always on the edge.

I am sure these attacks are the result of the multiple episodes that I suffered for 15 years before I was diagnosed and the emotional toll that goes along with that.

Does anyone else have these panic attacks? Has anyone been able to work through these attacks and move past them?

Any suggestions would be greatly appreciated.

Thanks,

Janet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Well I can definately identify with how you are feeling. My panic attacks were severe and eventually made me a person trapped in my own home and even at one point restricted where I could be in there. I lived like that for a long time. I finally decided to try and get some help a few months ago. I started seeing a counselor and was put on the generic form of Xanax, alprazolam, and it is helping a great deal. I would suggest talking to your doctor about this or calling your local mental health organization. The one thing you don't want to do is nothing as this sort of anxiety can start to spiral out of control. I can now walk my dog and go out in the yard and have even been to a movie, things I could in no way do a year ago. You really don't want to get to that point.

ranger Enthusiast

I, like Raven, experienced panic attacks for years ( especially while driving), that became debilitating. I got a book , can't remember the name of it, unfortunately, that taught me how to stop them using deep breathing exercises. I was at a point where I couldn't leave the house either! It' a terrible thing to live with. I don't have them anymore, unless I'm driving. I think it was the combo of the breathing and gradually exposing myself to go out further and further that helped. I hope you can overcome your situation. Getting glutened does't help, either.

Susan

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,204
    • Most Online (within 30 mins)
      7,748

    Sarahmegan
    Newest Member
    Sarahmegan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.