Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mind And Body Connection - Any Suggestions?


jlr

Recommended Posts

jlr Apprentice

I was diagnosed with Celiac disease 5 years ago and I have been on a gluten free diet ever since. It took some time but the diet has significantly improved my health.

I suffered from celiac symptoms - diareaha, malabsorption, anxiety and depression - for 15 years before I was diagnosed. During those years, I developed a phobia and anticipatory anxiety over the celiac symptoms and episodes.

The gluten free diet has significantly improved my health and has almost eliminated my symptoms, but as most of you have experienced - I occassionally get "glutened" after eating out.

My main reaction is still diareaha but it is nowhere near as severe as it used to be - the problem that I am still struggling with is the psycholgical symptoms. When I experience the diareaha, I also immediately start having a panic attack - shortness of breath, hyperventilation, body shakes and nausea. I can usually keep a full blown attack at bay by breathing into a paper bag but I am always on the edge.

I am sure these attacks are the result of the multiple episodes that I suffered for 15 years before I was diagnosed and the emotional toll that goes along with that.

Does anyone else have these panic attacks? Has anyone been able to work through these attacks and move past them?

Any suggestions would be greatly appreciated.

Thanks,

Janet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Well I can definately identify with how you are feeling. My panic attacks were severe and eventually made me a person trapped in my own home and even at one point restricted where I could be in there. I lived like that for a long time. I finally decided to try and get some help a few months ago. I started seeing a counselor and was put on the generic form of Xanax, alprazolam, and it is helping a great deal. I would suggest talking to your doctor about this or calling your local mental health organization. The one thing you don't want to do is nothing as this sort of anxiety can start to spiral out of control. I can now walk my dog and go out in the yard and have even been to a movie, things I could in no way do a year ago. You really don't want to get to that point.

ranger Enthusiast

I, like Raven, experienced panic attacks for years ( especially while driving), that became debilitating. I got a book , can't remember the name of it, unfortunately, that taught me how to stop them using deep breathing exercises. I was at a point where I couldn't leave the house either! It' a terrible thing to live with. I don't have them anymore, unless I'm driving. I think it was the combo of the breathing and gradually exposing myself to go out further and further that helped. I hope you can overcome your situation. Getting glutened does't help, either.

Susan

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,753
    • Most Online (within 30 mins)
      7,748

    Jay Heying
    Newest Member
    Jay Heying
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
    • knitty kitty
      If a Celiac person is successful in following a gluten-free diet, they can go into remission.   They may not have a reaction to gluten without a precipitating event like an injury or infection or even emotional or mental stress.   Following a strict gluten-free diet at home, then indulging in gluten containing products abroad without a reaction can be explained by this remission.  
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • Beverage
      I order tea from https://www.republicoftea.com/ All gluten free. Sign up for the newsletter and they send discounts regularly. 
    • Gigi2025
      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.