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Enterolab.com Testing? Who Has Done It?

pufffee

By pufffee
in Coping with Celiac Disease

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pufffee Apprentice
pufffee
Posted

Hi

Any one have luck or use Enterolab.com testing?

I have been gluten free for one week now, and decided to do the diet after multiple negative results, for IBS, Chrons, UC, SIBO, etc. I have blood work and edoscopy for Celiac but both were negative. My new Dr thinks they did not take enough Biopsy's to confirm or deny Celiac. My mom has it so I figured I should start diet to get rid of symtoms of Diarrhea and bad stomach issues I have had for over 8 months.

Has anyone done this testing and what test have they done? I was thinking of doing this test. but not sure?

Gene Test for Gluten Sensitivity/Celiac Sprue ($149)

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Welda Johnson Newbie
Welda Johnson
Posted

Hi,

Welcome to the site! A couple of years ago I ordered the "Full Spectrum" test for my newly-born grandson. That tested for Celiac/gluten intolerance/intolerance to milk & dairy. I ordered the "Celiac Only" tests for my 3 grown children, and my sister and brother. My 3 children didn't take the test and send it in, but my sister and brother did. My sister has it, my brother doesn't. My grandson showed intolerances to all grains and all milk & dairy. I am 64 and have had symptoms since age 8. After using all my money for doctors, specialists, allergy testing and shots, with no success in getting rid of my symptoms, I started conducting my own elimination diets, rotation diets, and anything else I thought would work. When I went for a Colonoscopy a few years ago the nurse said, "Oh you have Celiac!" after looking at my history of food allergies, and I said, "I knew there was a name for it!" because I had heard that term before. I came to this site, began to learn more, and eventually eliminated all grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food starch, and msg. Those are the foods and additives that send me into bronchial spasms and lead to bronchial infections and eventually pneumonia. I was happy to find those tests, and was personally quite satisfied with the results. I have read that there is now a test that uses your saliva to determine Celiac. You might want to check on that. Best wishes for your success. Welda

chiroptera Apprentice
chiroptera
Posted

We love Enterolab. My husbands mother, my childrens father, has Celiac - diagnosed via blood and the gold standard biopsy. My twin daughers were sick for two years and I was getting nowhere with our doctor. They ran a Celiac panel on one but did not do the Total Iga so the panel was not even complete. I couldn't afford to go all the Enterolab testing on both right away so I did the gluten sensitivity the child who was having the most "typical" symptoms. It came back positive.

Then we were able to do the panels for casein, eggs, yeast and soy so we did our other daughter (they are identical so we kind of thought why do the gluten test too since money is an issue and a big one for us) and she came back positve for egg and casein senstivity. We took her off those and gluten and she and here sister are SO SO much better; we feel Enterolab helped us more than our doctors.

They have a little brother and we decided to do the gluten sensitivity for him and it came back positive as well. He hadn't grown for two years (he is five) and because we are all tall the doctor said he was fine. Well, he has finally outgrown his clothes and is filling out. He lost weight last summer and I was so worried and the doctor said it was because he was more active. Well, he was even more active this summer and gained a bunch!

Probably too much info but .....I like Enterolab because you do not need to involve a doctor and there are no risks involved. Now most insurances do not pay for the testing, but heck, we have real high co pays anyhow when we do use our insurance.

Btw, I would have never guessed eggs were a problem for my daughter but they sure were!

miles2go Contributor
miles2go
Posted

I've been wondering about this for four years now. And I feel so much better in the meantime.

So, I'd say, if you want to/can afford it, go for it.

I haven't gotten there yet.

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