Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Period Of Time Eating Gluten That Then Leads To Other Autoimmune Disease?


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Was watching this:

And in short immune response created by celiac gets the immune system hyper which then eventually leads to further auto immune diseases but how long is the time frame from simply immune response to gluten too other auto immune diseases?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ENF Enthusiast

I don't know the answer to your question, but I wouldn't put too much stock in the words of the nutritionist featured in that video. She spends 15 minutes going on and on about Celiac Disease, and never once uses the term, or even the word "Celiac". She will only call it Gluten Intolerance. There are other things about her that led me to believe that she's a quack, in particular her clinic that offers chelation therapy.

Gemini Experienced
Was watching this:

And in short immune response created by celiac gets the immune system hyper which then eventually leads to further auto immune diseases but how long is the time frame from simply immune response to gluten too other auto immune diseases?

I think the answer to that is a big mystery. As most people cannot tell when they actually triggered for Celiac and mostly make a guess at when, it may be impossible to set up a time frame. Plus the fact that people are different with regards to the mechanism of acquiring more autoimmune diseases so it could vary from person to person.

I think the best response is that it partly depends on how long it took for a diagnosis to occur and at what age a person is diagnosed. The younger you catch it, the less likely you will move on to other autoimmune problems. I was diagnosed at 46 and by then, I had 3 other autoimmune diseases on top of Celiac, of which I had had symptoms for years. :(

JillianLindsay Enthusiast

Isn't the reverse also true: that other autoimmune diseases can put you at higher risk for celiac disease? I was dx'ed with asthma as a child and celiac disease as an adult. I have a cousin who has diabetes and is checked for celiac disease and watches for signs of it because of the comorbidity. I don't know if it's that celiac disease actually causes other autoimmunte diseases, it's more likely that having one creates a greater likelihood that you have another. [sorry if this is a bit out of context, I did not watch the video]

Jillian

ravenwoodglass Mentor
I think the best response is that it partly depends on how long it took for a diagnosis to occur and at what age a person is diagnosed. The younger you catch it, the less likely you will move on to other autoimmune problems. I was diagnosed at 46 and by then, I had 3 other autoimmune diseases on top of Celiac, of which I had had symptoms for years. :(

I agree with this completely. I had celiac from around age 5 but I didn't develop other autoimmune issues until I was in my thirties. Then they hit hot and heavy. Thankfully many of my other autoimmune related problems have gone into 'remission' in the years since I was diagnosed.

Everyone is different and celiac can present in many different ways so it is really hard to give a real time frame though. I do think though that the longer undiagnosed the stronger the chance of that development because the antibodies have more time to effect our organs. I think that after we are diagnosed and on the diet strictly that our chances for developing another autoimmune issue may go down.

Gemini Experienced
I agree with this completely. I had celiac from around age 5 but I didn't develop other autoimmune issues until I was in my thirties. Then they hit hot and heavy. Thankfully many of my other autoimmune related problems have gone into 'remission' in the years since I was diagnosed.

Everyone is different and celiac can present in many different ways so it is really hard to give a real time frame though. I do think though that the longer undiagnosed the stronger the chance of that development because the antibodies have more time to effect our organs. I think that after we are diagnosed and on the diet strictly that our chances for developing another autoimmune issue may go down.

Yup....I think this is the crucial point that the medical profession is missing. Wheat is SUCH an antagonist to the immune system in many people, and considering that 70% of your immune system is developed in the gut, it would make sense that continued ingestion of wheat is going to place a huge load on the human body.

If a person goes many years without a diagnosis, the immune system will constantly be looking to other organs for attack. With all this constant inflammation going on, AI diseases start to accumulate.

In hindsight, I am convinced I triggered at a very young age because I always had stomach issues as a kid and my appendix blew when I was 8 years old. When they did the operation to remove it, my intestinal tract was VERY inflamed....which they blamed on my appendix. Then I hit the honeymoon phase and I had very little problems throughout my teen years. It came back with a vengeance in my mid to late 20's and then it took another 20 years to obtain a diagnosis. In all fairness, no one looked for Celiac Disease back in the 1970's. I am convinced I would not have had all these other AI diseases had I been diagnosed at a younger age. However, like Ravenwoodglass, my other issues have greatly improved following the gluten-free diet. They are still there BUT they are much better.

UnhappyCoeliac Enthusiast

Well im 23 diagnosed at 22 last year.

Dont believe I had celiac too long. Never had any sortof gastro issues till 21. At 21 I simply kept getting diarrhea all the time. I put it down to too many pizzas but then Celiac was discovered. In the year I have been diagnosed I went 3 mths gluten free recovered all deficiencys and only had slightly raised gliden or whatever it is, then fell off the wagon for like 6 mths probably undid all my work, on and off for a few others and im a few days clean.

I am trying to pull myself together enoough to realise Ive got a chance to miss out on all the other nasty stuff since im only 23 if I can just stick to the diet and not let my stomach get the better of me!

Good answers people, is is interesting that ther auto immune disease somewhat resolve with the elimination of gluten


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    Bryan s
    Newest Member
    Bryan s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.