Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me Read These Results!

Frances03

Recommended Posts

Frances03 Enthusiast
Frances03
Posted

Okay, to make a long story short, I picked up a copy of my results, they aren't complete yet but this is all I have, and the doctors are all gone for the rest of the week. No one has told me the results. I have no idea what this means, but this is what I have,

tissue transglutaminase iga 88

gliadin peptide ab iga and igg dont think I have hte results on yet

gliadin peptide ab, iga 105

immunoglobulin A 169

does this mean anything at all to anyone? THANK YOU.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Frances03 Enthusiast
Frances03
Posted
  • Author

it also says if detected at a level greater than 19 unites may suggest the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformus. and mine was 88 but doesnt say 88 what, just ways 88, flagged as high and reference of 0-19 units.

why can't I see my post on the board??? I hope someone else can see this.

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome. Your blood tests were postive for celiac or gluten intolerance. If you plan on going to have an endoscopy then make sure you keep eating gluten until that is done. You should go gluten free after all your testing is complete.

It can take a little bit of time for new topic posts to come up on the board but be assured it will.

Frances03 Enthusiast
Frances03
Posted
  • Author

thank you for replying. I did read that the first test can be a false positive in people with hashimoto's disease, which i have. Does anyone know about getting a false positive on that test? also on the test I got 105 on, it said anything above 39 was considered 'positive' but it had my result of 105 listed under normal, which I dont understand. so it looks like I might have 2 positives. The nurse laughed at me when I asked for the test, and said it was a disease of malabsorption in people underweight with diarrhea, which I am obviously not.

Welcome. Your blood tests were postive for celiac or gluten intolerance. If you plan on going to have an endoscopy then make sure you keep eating gluten until that is done. You should go gluten free after all your testing is complete.

It can take a little bit of time for new topic posts to come up on the board but be assured it will.

homemaker Enthusiast
homemaker
Posted
thank you for replying. I did read that the first test can be a false positive in people with hashimoto's disease, which i have. Does anyone know about getting a false positive on that test? also on the test I got 105 on, it said anything above 39 was considered 'positive' but it had my result of 105 listed under normal, which I dont understand. so it looks like I might have 2 positives. The nurse laughed at me when I asked for the test, and said it was a disease of malabsorption in people underweight with diarrhea, which I am obviously not.

I know what you mean about medical professionals laughing when asking for the bloodwork...

I had my bloodwork last week...

My sister has Celiac confirmed by bloodwork and endoscopy

I have symptoms as well

I call my MD to be screened...

The SAD thing is this...he had no idea why I would want to be tested because I did not have diarrhea and secondly he had not idea what kind of test to give me...he had to call the lab to ask what was required...Most primary physicians have no clue! I might be due to the fact we live in a rural area, but the ignorance is amazing!

pewpewlasers Rookie
pewpewlasers
Posted

Health care professionals are sometimes terrible. I had one call me saying I might have cancer after a routine screening. Turned out it was nothing and I still have no idea why they said that to me.

You know your body the best and if you feel like you need a test done you ask for it. Doctors can look past so many things and just want to sign prescriptons and see the next patient.

I think you are going in the right direction.

Good luck!

elle's mom Contributor
elle's mom
Posted
I know what you mean about medical professionals laughing when asking for the bloodwork...

I had my bloodwork last week...

My sister has Celiac confirmed by bloodwork and endoscopy

I have symptoms as well

I call my MD to be screened...

The SAD thing is this...he had no idea why I would want to be tested because I did not have diarrhea and secondly he had not idea what kind of test to give me...he had to call the lab to ask what was required...Most primary physicians have no clue! I might be due to the fact we live in a rural area, but the ignorance is amazing!

After our daughter was diagnosed, my husband and I both had this same exact type of reaction when we asked our doctors to be screened (one was a PCP and the other was an OBGYN-that's pretty much the only dr. I go to anymore lol). Anyway, it's pathetic to say the least. In hindsight, I'm sure they did not check our Total IgA, which we've since found our son is deficient. So, pretty much a waste of time and money, sad.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
thank you for replying. I did read that the first test can be a false positive in people with hashimoto's disease, which i have. Does anyone know about getting a false positive on that test? also on the test I got 105 on, it said anything above 39 was considered 'positive' but it had my result of 105 listed under normal, which I dont understand. so it looks like I might have 2 positives. The nurse laughed at me when I asked for the test, and said it was a disease of malabsorption in people underweight with diarrhea, which I am obviously not.

I don't believe myself that it would be a false positive, mainly because there are so many of us with thyroid issues. From my understanding false positives are really rare and it is possible to have both celiac and other autoimmune issues. Also many in the medical field are still woefully misinformed about celiacs who are overweight, there are many of us but most still believe you have to be emaciated to be celiac. I do hope you give the diet a good shot after you are done with your testing. You may even find that your throid issues are relieved a bit.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for...
    2. catnapt
      - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I...
    3. trents
      - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal.
    4. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one. We have held yearly conferences with continued education classes. We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott. In those many years we may have had 2 doctors attend. We sent them information, with no response. I talked to...
    5. Scott Adams
      - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,254
    • Most Online (within 30 mins)
      7,748
    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.