Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Struggling...


Evie4

Recommended Posts

Evie4 Apprentice

So I am 100% gluten and dairy free now since I got my labs results Sep 18th and this round of my cyclic IBS is worse than it has been in years. I've had so much pain and fatigue and just feeling crappy that I missed a couple days of work this week


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Just want to let you know, My cyber should is here to lean on. Whine away! ;)

ang1e0251 Contributor

I'm sorry you're feeling bad! My cycles are the worst too. My dr finally put me on continuous birth control to stop them.

You could be one of those people who starts out crappy then gets better over time. You might want to lay off the gluten-free processed foods for a bit. Those alternate grains can be rough on your digestion while you're healing. Back off to basic whole foods for a bit and see if things don't improve.

tarnalberry Community Regular

Outside of removing gluten and dairy, how has your diet changed?

Are you now consuming soy milk where you weren't before?

Are you now eating significantly more corn or rice than you were before?

Are you getting less fiber because you used to get fiber primarily through whole wheat/oats/etc.?

Are you eating more of any particular foods?

You may have other intolerances - either foods that you really can't eat without feeling bad, or foods that you have to limit how much you have in order to avoid symptoms. (Soy, for instance, I think affects many people this way. How much soy generates symptoms varies significantly, of course.)

Evie4 Apprentice
Outside of removing gluten and dairy, how has your diet changed?

Are you now consuming soy milk where you weren't before?

Are you now eating significantly more corn or rice than you were before?

Are you getting less fiber because you used to get fiber primarily through whole wheat/oats/etc.?

Are you eating more of any particular foods?

You may have other intolerances - either foods that you really can't eat without feeling bad, or foods that you have to limit how much you have in order to avoid symptoms. (Soy, for instance, I think affects many people this way. How much soy generates symptoms varies significantly, of course.)

Thanks for responding everyone. I have been careful to not introduce new foods into my diet and I actually decided to stay away from gluten-free baked goods for now for the very reason that I read of other people having problems with gluten-free flours. I probably have eaten more fruit than usual and likely more rice. I'm avoiding soy--I think it can cause issues with me. Very little corn and been avoiding legumes just to be safe. I cut down coffee comsumption to one cup and do a rice milk/coconut milk mix for "cream". I've cut tea out for months now. Nothing with yeast in the past few weeks. No prepared foods. I did have potato chips week before last, but I decided I'd give those up for now too (don't really need those calories and I only get them a couple times a year anyway).

I guess maybe the coconut milk could be a no-no. I sure hope not. I use it in cooking occasionally, so it isn't new to my system. I'll keep my eye on it. My capuccino is my one indulgence...I'll be so sad if I can't have at least that.

Evie4 Apprentice
I'm sorry you're feeling bad! My cycles are the worst too. My dr finally put me on continuous birth control to stop them.

You could be one of those people who starts out crappy then gets better over time. You might want to lay off the gluten-free processed foods for a bit. Those alternate grains can be rough on your digestion while you're healing. Back off to basic whole foods for a bit and see if things don't improve.

I thought about the pill before...hoping it might help. But when I did take it in my twenties, even the lowest doses made me sick in the morning. I nailed my symptoms to the hormone fluctuation...not fair! :angry: Heaven only knows what might happen when "the change" comes!!!!!!

ang1e0251 Contributor

I actually am on the Nuva Ring now. I resisted but it's actually the best I've been on. It's gentle with low doses of hormones and you insert it once a month. Now that I'm getting older, dr wants me to have a vaginal ablation to stop my periods. I'm wondering what will happen to my hormones if I'm off all the stuff. Past experience has not been good!

Oh well, don't have to worry about it now. Can't afford it.

Take a look at the thread for the SCD diet. I'm not on it but I do follow some of it's ideas that have helped me. Maybe something on there will jump out at you and help you. I hope it does!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.