Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy/colonoscopy Today, Yeehaw!

Frances03

Recommended Posts

Frances03 Enthusiast
Frances03
Posted

First of all, if anyone else ever reads this and their doctor gives them TriLyte for colon prep, RUN AWAY. Run FAR away. This has to be one of the worst things I've ever done, and I've given birth 3 times, 2 natural childbirth, and I am not a wimp. I cannot swallow any more of that stuff. I have thrown it up a couple times now. It is BAD. There has to be a better way. I will never do this again. I will insist on some other way of colon prep than this gallon of crap. Anyway, I'm going in in about 2 hours and would appreciate any prayers anyone wants to send up for me. I've spend a long time worrying that I have colon cancer, and I'm 97% positive now that I have celiac disease and when I get out of that hospital I intend to start my gluten free life. I dont care what the endoscopy says, I've got TWO positive bloods tests, both the ttg iga and the gliadin peptide antibody iga, which says both my body is attacking itself because of gluten, and my body is making antibodies to gluten. I think that is enough to diagnose celiac right there, but I am doing this endoscopy for my children, so that I can say without a DOUBT when I take them to get tested, that I have tested positive. So, I would also appreciate prayers that this doctor I have never met knows what he is doing and knows what to look for, because I KNOW that I have damage in there. Thank you very much to anyone who prays for me or even sends positive thoughts. I'll update later.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Best wishes, the worst is over. I will keep you in my thoughts and pray the doctor takes lots of biopsies. I am glad to hear you will be gluten free as soon as the tests are done.

dultimate1 Newbie
dultimate1
Posted

My blood test were negative and I ended up having an EGD a little over a week ago. My appointment to find out the results of that test is later today. I, too, have had the lower scope done and yes, it makes me seriously ill, just like it did to you. I feel for you and hope you get your results soon. By the way, from what I understand, if your blood work came back positive, your a Celiac. You generally don't have to have the biopsy done, unless your blood work comes back negative and they are still pretty certain you have Celiac. I am praying that your test go well for you today and I hope you get some good news from this round of test.

Gemini Experienced
Gemini
Posted
First of all, if anyone else ever reads this and their doctor gives them TriLyte for colon prep, RUN AWAY. Run FAR away. This has to be one of the worst things I've ever done, and I've given birth 3 times, 2 natural childbirth, and I am not a wimp. I cannot swallow any more of that stuff. I have thrown it up a couple times now. It is BAD. There has to be a better way. I will never do this again.

Now this is scary! :o For a woman who has given birth twice, au naturale, and says the colonoscopy prep is worse than that, I have to have the utmost respect for!

I admire your courage and know you will be OK, after all is said and done. I have not had a colonoscopy because I am having no problems which would warrant having one done but have heard many people say the same thing as you have....the prep is ghastly while the test itself is a breeze. Rest assured you do have Celiac Disease.....a positive blood screen is a diagnosis. I am sure there will be nothing serious going on and all your problems are gluten related. My best to you and remember....after today, it will be nothing but a bad memory and your life will begin anew as a gluten-free convert! Best of health to you and hang in there, Lady!

ang1e0251 Contributor
ang1e0251
Posted

I'm thinking of you today. Today is the first day of your gluten-free life!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748
    Bryan s
    Newest Member
    Bryan s
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.