Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Celiac Wife


Rothane

Recommended Posts

Rothane Newbie

My husband was diagnosed with celiac disease four days ago, which is when we went gluten-free in our house. He was diagnosed when a routine blood panel showed he was severely anemic, which led to tests, and more tests, and finally the celiac disease diagnosis. He had almost no other symptoms, which is fortunate.

I made the decision to go gluten-free with him at home ... mostly. The only thing I'm probably not going to go gluten-free on is breakfast cereal, because I don't really like corn or rice based cereal all that much. I've already discovered that Lundberg wild rice cakes are very yummy ... much better than the disks of styrofoam I remember as old style rice cakes and a more than suitable substitute for wheat crackers, which was a common afternoon snack for me.

We have some things going for us. First, we live in a fairly large urban area, with a lot of good groceries (yay Wegmans!), specialty stores, and a long list of restaurants with gluten-free menus. Second, we are both avid cooks who mostly cook from scratch anyway, so really about the only things we needed to evict from the pantry were my breadbaking supplies and our whole-wheat pasta (yay for Tinkyada!). Third, we like a wide variety of ethnic food, so we have a wide variety of choices. And fourth, we have no kids, so this means only the two of us need to switch.

And I do know I don't need to switch (well, as far as I know anyway), but I want to. It'll make cooking a lot easier. Though honestly, it's a short list of recipes in my usual stable that will need any real changes.

Tomorrow we're going on a tour of some of the specialty shops, and I've got a shopping list from a new gluten-free baking cookbook I bought (Gluten-Free Baking Classics by Annalise Roberts). I was an avid breadbaker before all this, and hope I might be able to learn to make decent gluten-free breadlike products. I do understand that it's hard to adapt gluten free bread recipes to a bread machine, so that's a bit disappointing, but I'll learn to bake it the old fashioned way. Crusty bread and beer are going to be the two things we'll miss the most. We've tried several brands of gluten free beer (we started experimenting a few weeks ago when it became clear what direction all the testing was going), but when your benchmark is Goose Island IPA and Stone Arrogant Bastard ... well, we'll stick to hard cider. I know I can still have beer, but somehow it seems rude to drink it in front of him. :D

So, we've been at this less than a week for real, but my husband says he can already tell his digestive system feels better (I think his exact words were "I didn't even realize I was feeling bad much of the time until I wasn't"). I know this is just the beginning, but if it makes him feel better, I'm certainly game.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac-mommy Collaborator

Welcome!! I sure wish more family members were as supportive as you, your husband sounds like a lucky guy!!

You will find many avid bakers here, so if you need help with a recipe, I'm sure you will get a lot of help! I bake my own bread regularly and it freezes well, so I can do a few loaves at a time. Instead of dumping all the ingredients into the bread machine, I dump them into my Kitchenaid mixer, proof in the oven, bake, and that's it! There are also some amazing crusty french bread recipes out there. I've got one for kalamata rosemary bread that is to die for if you want it ;)

Take care!

Rothane Newbie
Welcome!! I sure wish more family members were as supportive as you, your husband sounds like a lucky guy!!

You will find many avid bakers here, so if you need help with a recipe, I'm sure you will get a lot of help! I bake my own bread regularly and it freezes well, so I can do a few loaves at a time. Instead of dumping all the ingredients into the bread machine, I dump them into my Kitchenaid mixer, proof in the oven, bake, and that's it! There are also some amazing crusty french bread recipes out there. I've got one for kalamata rosemary bread that is to die for if you want it ;)

Take care!

And me with fresh rosemary growing on the porch ...

Please send!!!

misserinmog Newbie

Hi there and Welcome!

I know what he means about not even realizing he was feeling bad until he wasn't. Part of what makes diagnosis difficult is that some symptoms are not things you think of as "symptoms" but as "normal" like bloating, indigestion, fatigue, headaches, etc. It's not something that's alarming, and so you don't even give it a second thought. Then when it goes away, you feel better, and suddenly you're like "woah, that really sucked before!"

It sounds like you really enjoy baking. I like baking too, but I'm not that great at gluten-free baking yet. What I did find was helpful in learning about how gluten-free flours and recipes work is that it's easier to do the first try with a ready-made baking mix, see how you like the results, and then use the Ingredients list to tweak a recipe from there. Since gluten-free baking is less "science" than glutenous baking is, this has worked out very well for me. If you're hankering for something sweet while trying to figure out gluten-free baking, I recommend Bob's Red Mill gluten-free cake mixes, and Betty Crocker's gluten-free chocolate chip cookies are good, though really different.

Keep in touch, I love these forums--TONS of good resources and support. :)

-Erin

My husband was diagnosed with celiac disease four days ago, which is when we went gluten-free in our house. He was diagnosed when a routine blood panel showed he was severely anemic, which led to tests, and more tests, and finally the celiac disease diagnosis. He had almost no other symptoms, which is fortunate.

I made the decision to go gluten-free with him at home ... mostly. The only thing I'm probably not going to go gluten-free on is breakfast cereal, because I don't really like corn or rice based cereal all that much. I've already discovered that Lundberg wild rice cakes are very yummy ... much better than the disks of styrofoam I remember as old style rice cakes and a more than suitable substitute for wheat crackers, which was a common afternoon snack for me.

We have some things going for us. First, we live in a fairly large urban area, with a lot of good groceries (yay Wegmans!), specialty stores, and a long list of restaurants with gluten-free menus. Second, we are both avid cooks who mostly cook from scratch anyway, so really about the only things we needed to evict from the pantry were my breadbaking supplies and our whole-wheat pasta (yay for Tinkyada!). Third, we like a wide variety of ethnic food, so we have a wide variety of choices. And fourth, we have no kids, so this means only the two of us need to switch.

And I do know I don't need to switch (well, as far as I know anyway), but I want to. It'll make cooking a lot easier. Though honestly, it's a short list of recipes in my usual stable that will need any real changes.

Tomorrow we're going on a tour of some of the specialty shops, and I've got a shopping list from a new gluten-free baking cookbook I bought (Gluten-Free Baking Classics by Annalise Roberts). I was an avid breadbaker before all this, and hope I might be able to learn to make decent gluten-free breadlike products. I do understand that it's hard to adapt gluten free bread recipes to a bread machine, so that's a bit disappointing, but I'll learn to bake it the old fashioned way. Crusty bread and beer are going to be the two things we'll miss the most. We've tried several brands of gluten free beer (we started experimenting a few weeks ago when it became clear what direction all the testing was going), but when your benchmark is Goose Island IPA and Stone Arrogant Bastard ... well, we'll stick to hard cider. I know I can still have beer, but somehow it seems rude to drink it in front of him. :D

So, we've been at this less than a week for real, but my husband says he can already tell his digestive system feels better (I think his exact words were "I didn't even realize I was feeling bad much of the time until I wasn't"). I know this is just the beginning, but if it makes him feel better, I'm certainly game.

Ahorsesoul Enthusiast

For your crusty bread fix try 'Against the Grain' Baguettes.

celiac-mommy Collaborator
And me with fresh rosemary growing on the porch ...

Please send!!!

I've also subbed the olives for whole cloves of garlic---LOTS of cloves!!! I also don't ever use the recommended flours in this recipe. I replace with whatever basic blend I have and it always turns out great!

Open Original Shared Link

julesjewels Newbie

I am sitting here with tears in my eyes because I had no idea a forum like this existed! Rachelle, thanks so much for posting the link for the bread recipe! I have had to change my eating habits drastically the past ten months and cooking has been turned upside-down in my house. I've never been the most confident of cooks and this disease has brought what I know to a halt. I can still prepare dishes for my family but then I'm left wondering what I will eat. Cooking two meals is not my idea of fun. I will be reading all the posts, looking for more recipes. I am so excited about this and about eating bread again!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



momxyz Contributor
I am sitting here with tears in my eyes because I had no idea a forum like this existed! Rachelle, thanks so much for posting the link for the bread recipe! I have had to change my eating habits drastically the past ten months and cooking has been turned upside-down in my house. I've never been the most confident of cooks and this disease has brought what I know to a halt. I can still prepare dishes for my family but then I'm left wondering what I will eat. Cooking two meals is not my idea of fun. I will be reading all the posts, looking for more recipes. I am so excited about this and about eating bread again!!!

Have you tried brown rice pasta yet? Its something you can cook for the whole family. Tinkyada brand is delicious!

Rothane Newbie
Have you tried brown rice pasta yet? Its something you can cook for the whole family. Tinkyada brand is delicious!

"Tinky pasta" is excellent ... just watch it carefully because it's really pretty bad when it overcooks. But then again, so is semolina pasta; it's just that with rice pasta there seems to be a shorter window of good vs. not good. Also, be sure to put a little oil in the water and stir often, because it does stick a bit more than standard pasta. One of those pasta servers (the big spoons with the prongs) helps a LOT for stirring it and keeping it separated. Other than that, you could probably serve Tinky pasta to people and they'd never even know they were eating non-standard pasta.

I definitely recommend the book GLUTEN-FREE BAKING CLASSICS by Annalise Roberts. I made the multigrain artisan bread over the weekend and it was wonderful -- the teff flour made it taste a bit like buckwheat. I'm told the other recipes are just as good.

Also, learn to love your slow cooker. I've been a big believer of the slow cooker for awhile, but the nice thing about it is that most of the recipes require little to no adaptation. Almost all the recipes use corn starch or tapioca to thicken recipes anyway. I very much recommend NOT YOUR MOTHER'S SLOW COOKER.

  • 2 weeks later...
kera87 Newbie

It is so nice to hear that you are going gluten-free at home for your husband...Celiac can be confusing and frustrating in the beginning and I'm sure you making that decision is helping him heal even faster. My boyfriend is just as supportive as you are and I can tell you it makes things 100 times better. When we go out to eat he is often the one reinforcing "no seasonings or flour" to the waiter haha.

I cook gluten-free dinners from scratch all the time and it is actually so much fun! You can modify basically any recepie to be gluten-free...I'm even going to be making crab cakes this week. Wegmans is AMAZING! It is so affordable because their brand always puts a little G on the package if it is gluten-free...some things off the top of my head I get there are their tomato sauce which is like 99 cents (thats good for being gluten-free! haha), syrup, marinades, sauces, pudding, brownies (they have a whole freezer section of gluten-free goodies!) Enjoy, this is going to be fun for the both of you.

julesjewels Newbie
Have you tried brown rice pasta yet? Its something you can cook for the whole family. Tinkyada brand is delicious!

I've only tried Mrs. Leeper's... not a huge fan. It's okay, considering I live in a small town with very few options. I was surprised to find ANY gluten-free pasta!!! I need to make a trip into the next city and get to one of the bigger stores. I'll look for the "Tinky" pasta! Very excited to try it! Thanks!

carsondcat Newbie

I joined this site a couple of days ago, and it was a big yay for me to find it having only just moved to the States 3 weeks ago. I love all the hints and tips people post, I know it will help me heaps in finding my way around the American gluten-free experience.

I was diagnosed with celiac disease 8 years ago and although my teenage children never got it my husband did, and he would monitor them when i couldn't so they wouldn't accidently cross contaminate my food.... Now the 'kids' are all grown up and left home my husband is gluten-free with me so i have no more worries at home, at all, anymore. I really appreciate that he has done this for me and to be honest for himself as well as it is a healthier way of eating and if I'm honest, it really simplifies things as you don't have to cook seperate meals or keep different cooking implements.

So good for you in going gluten-free as well :D

Ahorsesoul Enthusiast
My husband was diagnosed with celiac disease four days ago, which is when we went gluten-free in our house.

You are another one of my heroes for going gluten free with your spouse!

Rothane Newbie
You are another one of my heroes for going gluten free with your spouse!

Well, it may have been a very good thing. I started noticing my own digestive issues when we went gluten free, and then when I would eat gluten containing foods when we went out to dinner. I just got tested yesterday myself.

So it might have pointed out an issue I didn't even know I had. We'll see.

...Rothane

Gemini Experienced
My husband was diagnosed with celiac disease four days ago, which is when we went gluten-free in our house. He was diagnosed when a routine blood panel showed he was severely anemic, which led to tests, and more tests, and finally the celiac disease diagnosis. He had almost no other symptoms, which is fortunate.

I made the decision to go gluten-free with him at home ... mostly. The only thing I'm probably not going to go gluten-free on is breakfast cereal, because I don't really like corn or rice based cereal all that much. I've already discovered that Lundberg wild rice cakes are very yummy ... much better than the disks of styrofoam I remember as old style rice cakes and a more than suitable substitute for wheat crackers, which was a common afternoon snack for me.

We have some things going for us. First, we live in a fairly large urban area, with a lot of good groceries (yay Wegmans!), specialty stores, and a long list of restaurants with gluten-free menus. Second, we are both avid cooks who mostly cook from scratch anyway, so really about the only things we needed to evict from the pantry were my breadbaking supplies and our whole-wheat pasta (yay for Tinkyada!). Third, we like a wide variety of ethnic food, so we have a wide variety of choices. And fourth, we have no kids, so this means only the two of us need to switch.

And I do know I don't need to switch (well, as far as I know anyway), but I want to. It'll make cooking a lot easier. Though honestly, it's a short list of recipes in my usual stable that will need any real changes.

Tomorrow we're going on a tour of some of the specialty shops, and I've got a shopping list from a new gluten-free baking cookbook I bought (Gluten-Free Baking Classics by Annalise Roberts). I was an avid breadbaker before all this, and hope I might be able to learn to make decent gluten-free breadlike products. I do understand that it's hard to adapt gluten free bread recipes to a bread machine, so that's a bit disappointing, but I'll learn to bake it the old fashioned way. Crusty bread and beer are going to be the two things we'll miss the most. We've tried several brands of gluten free beer (we started experimenting a few weeks ago when it became clear what direction all the testing was going), but when your benchmark is Goose Island IPA and Stone Arrogant Bastard ... well, we'll stick to hard cider. I know I can still have beer, but somehow it seems rude to drink it in front of him. :D

So, we've been at this less than a week for real, but my husband says he can already tell his digestive system feels better (I think his exact words were "I didn't even realize I was feeling bad much of the time until I wasn't"). I know this is just the beginning, but if it makes him feel better, I'm certainly game.

You are in exactly the same situation as my husband and myself, only I am the Celiac. However, my hubby has some symptoms which we are going to be looking into shortly. If you two are avid cooks, you'll have no problem with this. You also do not need to go completely gluten-free yourself but I commend you for doing

so. My husband eats gluten at breakfast and lunch (at work), which doesn't bother me in the least. Anything I cook and serve is 100% gluten-free and he eats it all with a smile on his face! Surprisingly, he likes the vast majority of it.

If you can find it, I would highly suggest a beer from a Belgian micro-brewery, available here in New England. The brand is called Green's and there are 3 different kinds. My favorite is called Green's Endeavor. I was NEVER a beer drinker and actually really like this one. It is expensive but I take it you may not have an issue with that, to some extent. There is also a really good gluten-free pasta, called Bi-Aglut, which is available on-line. It's from Italy and blows Tinkyada right out of the water. You are going to be surprised at how much stuff is available to make this diet manageable and as good as what anyone else is eating.

Living is a larger urban area doesn't hurt, either! I wish you continued success!

Rothane Newbie

Well, my test results came back and looks like I am negative. This isn't a surprise since the correlation between my digestive upsets and eating wheat were weak (it seemed to have more to do with eating out than eating wheat in particular; my morning bagels weren't giving me a problem). So, I'm happy I got tested, happy that we as spouses don't have to share everything, and glad that it doesn't seem to be an issue for me. It wasn't something I had a strong belief that I had, since I've had no real symptoms other than some observed upsets after eating out, but better safe than sorry. Besides, I had an appointment with my allergist and got 72 needle sticks for that, so what was one more?

However, we're still going to remain strictly gluten free at home (other than breakfast cereal and my occasional morning bagels, which I don't even toast so the toaster oven is still safe for my husband -- I prefer my bagels raw :D ) because it's easier and gives both of us a healthy space to eat. And I've really enjoyed my husband's forays into Southeast Asian cooking.

...Rothane

  • 2 months later...
ECRO6 Newbie

My husband was diagnosed with celiac disease four days ago, which is when we went gluten-free in our house. He was diagnosed when a routine blood panel showed he was severely anemic, which led to tests, and more tests, and finally the celiac disease diagnosis. He had almost no other symptoms, which is fortunate.

I made the decision to go gluten-free with him at home ... mostly. The only thing I'm probably not going to go gluten-free on is breakfast cereal, because I don't really like corn or rice based cereal all that much. I've already discovered that Lundberg wild rice cakes are very yummy ... much better than the disks of styrofoam I remember as old style rice cakes and a more than suitable substitute for wheat crackers, which was a common afternoon snack for me.

We have some things going for us. First, we live in a fairly large urban area, with a lot of good groceries (yay Wegmans!), specialty stores, and a long list of restaurants with gluten-free menus. Second, we are both avid cooks who mostly cook from scratch anyway, so really about the only things we needed to evict from the pantry were my breadbaking supplies and our whole-wheat pasta (yay for Tinkyada!). Third, we like a wide variety of ethnic food, so we have a wide variety of choices. And fourth, we have no kids, so this means only the two of us need to switch.

And I do know I don't need to switch (well, as far as I know anyway), but I want to. It'll make cooking a lot easier. Though honestly, it's a short list of recipes in my usual stable that will need any real changes.

Tomorrow we're going on a tour of some of the specialty shops, and I've got a shopping list from a new gluten-free baking cookbook I bought (Gluten-Free Baking Classics by Annalise Roberts). I was an avid breadbaker before all this, and hope I might be able to learn to make decent gluten-free breadlike products. I do understand that it's hard to adapt gluten free bread recipes to a bread machine, so that's a bit disappointing, but I'll learn to bake it the old fashioned way. Crusty bread and beer are going to be the two things we'll miss the most. We've tried several brands of gluten free beer (we started experimenting a few weeks ago when it became clear what direction all the testing was going), but when your benchmark is Goose Island IPA and Stone Arrogant Bastard ... well, we'll stick to hard cider. I know I can still have beer, but somehow it seems rude to drink it in front of him. :D

So, we've been at this less than a week for real, but my husband says he can already tell his digestive system feels better (I think his exact words were "I didn't even realize I was feeling bad much of the time until I wasn't"). I know this is just the beginning, but if it makes him feel better, I'm certainly game.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.