Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Bad Should "woops'" Make Me Feel After 2 Years gluten-free


mamies8

Recommended Posts

mamies8 Newbie

So I have been gluten-free for over two years now. I have had minor hidden gluten accidents and would suffer for it, but my question is as time goes on do you become more sesitive and when a "whoops" does hapeen are the side effects more severe than they used to be? For the past several days I have had some pretty nasty GI problems and they seem so much worse than when it's happened before. As a side note, does sensitivity become so bad that if dishes have trace amounts of gluten on them that didn't get washed off, can that give me a relapse? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tiggsy Newbie
So... do you become more sesitive and when a "whoops" does hapeen are the side effects more severe than they used to be?

Most people do find this to be the case.

Does sensitivity become so bad that if dishes have trace amounts of gluten on them that didn't get washed off, can that give me a relapse?

Whatever your symptoms may be, trace amounts of gluten will always cause you damage. This is because is acts like a trigger which turns on your body's reaction to attack itself.

luvs2eat Collaborator

The longer I've been gluten free, the more sensitive I've become. In the beginning, my "glutened" symptoms were milder... similar to my original symptoms... loud tummy and diarrhea. The more sensitive I became my "glutened" symptoms includes severe nausea and vomiting and the diarrhea and really sore tummy lasts for several days.

NorthernElf Enthusiast

I too have found that I have gotten way more sensitive to gluten over time - from not having it. It hardly seems fair - I could hire myself out as a gluten detector !

Anyway, over time I have purchased all my own kitchen stuff to keep things gluten-free. I do find that when I am at relatives I feel a bit ill after a couple of days or so, & I try so hard ! My theory is that spatulas, strainers, pans, etc. get me. Well, I stay away from strainers, that's a bad one ! It seems to me to be a cummulative effect - a tiny amount here or there is one thing, but keep getting that tiny amount and it adds up ! <_<

mamies8 Newbie
I too have found that I have gotten way more sensitive to gluten over time - from not having it. It hardly seems fair - I could hire myself out as a gluten detector !

Anyway, over time I have purchased all my own kitchen stuff to keep things gluten-free. I do find that when I am at relatives I feel a bit ill after a couple of days or so, & I try so hard ! My theory is that spatulas, strainers, pans, etc. get me. Well, I stay away from strainers, that's a bad one ! It seems to me to be a cummulative effect - a tiny amount here or there is one thing, but keep getting that tiny amount and it adds up ! <_<

It's so good to hear someone else who feels like using other peoples dishes is a gluten-free no no! I love my family to death but when you go to the silver wear drawer and the tray is full of mysterious "crumbs", my stomach starts growling before I even touch the fork!

jenngolightly Contributor
It's so good to hear someone else who feels like using other peoples dishes is a gluten-free no no! I love my family to death but when you go to the silver wear drawer and the tray is full of mysterious "crumbs", my stomach starts growling before I even touch the fork!

I have the same worries about silverware and gluten.

Even at my own home (not all of us are gluten-free, but we are very careful to keep things separate), I always wash my forks/spoons/whatever before I eat. Those nasty crumbs find there way to every nook or the dishwasher deposited gluten without rinsing thoroughly. I even quickly rewash pans/corningware/mixing bowls before I use them. I'm so paranoid that some speck will fly off someone's food (bread is now banned - but there's still gluten cereals and chips and other food) and onto cookware, so I take extra precautions. I have gluten free-only pans and other cooking necessities and they live in a dedicated cabinet, but I've been cc'd too many times to think that the bowl that I washed two weeks ago is still safe to use. Plus, it's gross to see all that gunk in the silverware drawer - gluten or not. :-) What is that stuff and how did it get in there??? lol

When I go to other peoples' houses, I rewash silverware and plate and glass before I eat. At least I can control that. I'm used to being high-maintenance by now (2+years). Always use a paper towel to dry! It's so gross to think what's on the kitchen towel.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.