Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Dealing Well At All!

Brooklyn528

By Brooklyn528
in Coping with Celiac Disease

Recommended Posts

Brooklyn528 Apprentice
Brooklyn528
Posted

Hey everyone. I had one heck of a night! If it wasn't enough that both of my kids came down sick, I come home from the ER with a shiny new diagnosis. My daughter started running a temp when she came home on wednesday night, so I kept her home from school on thursday. Friday morning, still had the temp and coughing with leg pain. I took her to the doctor. They checked her for the flu(yikes!!!). I was scared to death that she was going to have it. That would be horrible for me to get while on 50mg Prednisone. I was afriad I would end up in the hospital. Her swabs came back negative, thank God! So, we just went about having a normal relaxing night. Kids were in bed by 9. My boyfriend was out of the house for a bit playing cards. So I got in my recliner after taking my nightly meds and eating at about 9:30p. I had been sitting there at rest for almost two hours, when my heart literally started jumping out of my chest. I could sit and watch to count my pulse. I thought it was just anxiety. So, I just sat there and took deep breathes. After five minutes and it still pounding, I decided I needed to go to the ER. I went and told them what was going on. They checked me in, did an EKG, and so on. After some IV fluids and Ativan, it finally started calming down. Calming down to them though was 117/70. My blood pressure usually runs about 90/52, techinally hypotension caused by my Celiac Disease and perniscious anemia. That inturn would make that a very high blood pressure for me. They diagnosed me with SVT supraventricular tachycardia and prescribed me Metroprolol to regulate my heart. I feel horrible today. I definitly have whatever bug the kids have and my chest hurts. Has anyone else been diagnosed with this? Is it just complications of my prednisone? I know that I am strictly gluten free. It's hard for me right now because I don't know anyone that is or has been in the kind of situation that I am in. My boyfriend tries to understand, but he comes from the old thinking that if it's not killing you your ok. How do I get him to understand the severity of the situation at hand? I'm sure he is not dealing well with the fact that his young girlfriend is very sick. I just don't know where else to turn. I need some support, someone that understands.

Thanks for your time,

brooklyn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Northern Celiac Newbie
Northern Celiac
Posted
Hey everyone. I had one heck of a night! If it wasn't enough that both of my kids came down sick, I come home from the ER with a shiny new diagnosis. My daughter started running a temp when she came home on wednesday night, so I kept her home from school on thursday. Friday morning, still had the temp and coughing with leg pain. I took her to the doctor. They checked her for the flu(yikes!!!). I was scared to death that she was going to have it. That would be horrible for me to get while on 50mg Prednisone. I was afriad I would end up in the hospital. Her swabs came back negative, thank God! So, we just went about having a normal relaxing night. Kids were in bed by 9. My boyfriend was out of the house for a bit playing cards. So I got in my recliner after taking my nightly meds and eating at about 9:30p. I had been sitting there at rest for almost two hours, when my heart literally started jumping out of my chest. I could sit and watch to count my pulse. I thought it was just anxiety. So, I just sat there and took deep breathes. After five minutes and it still pounding, I decided I needed to go to the ER. I went and told them what was going on. They checked me in, did an EKG, and so on. After some IV fluids and Ativan, it finally started calming down. Calming down to them though was 117/70. My blood pressure usually runs about 90/52, techinally hypotension caused by my Celiac Disease and perniscious anemia. That inturn would make that a very high blood pressure for me. They diagnosed me with SVT supraventricular tachycardia and prescribed me Metroprolol to regulate my heart. I feel horrible today. I definitly have whatever bug the kids have and my chest hurts. Has anyone else been diagnosed with this? Is it just complications of my prednisone? I know that I am strictly gluten free. It's hard for me right now because I don't know anyone that is or has been in the kind of situation that I am in. My boyfriend tries to understand, but he comes from the old thinking that if it's not killing you your ok. How do I get him to understand the severity of the situation at hand? I'm sure he is not dealing well with the fact that his young girlfriend is very sick. I just don't know where else to turn. I need some support, someone that understands.

Thanks for your time,

brooklyn

how long have you been on the prednisone?,l when I take it it's only for 5 days at a time

Brooklyn528 Apprentice
Brooklyn528
Posted
  • Author

I've been at 50 mg a day for two weeks. It's for treatment of my autoimmune hepatitis. I am supposed to take 50 mg a day for one more week then i step down to 40mg a day for two weeks, then 30mg two weeks, until i hopefully can be on just 10 mg a day to control.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.