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Lactose Free How Long Before I Feel Better?


pufffee

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pufffee Apprentice

Hi

I have not been diagnosed properly for Celiac but my mom has it and it seems I may have it or at least a gluten sensitivity. My only symtoms are bloating, gurgling stomach noises, and when I do have bowel movement it is always D or at least not solid(I go once a day at night). I figured I mine as well start doing a Lactose free as well. I told my dr's numerous times that Milk and cheese are big parts of my life. I do not drink soda and other drinks, I would rather drink Milk and has so since I was younger. The first scheduled rounds of blood work were done and they never did lactose test!, then they finally did test and unknown to me they only did a genectic type of blood work. Not the test where you actually drink Lactose solution. I had Hydrogen breath test to test for SIBO not lactose but I did blow consistent hydrogen numbers throughout the 5 hours, just no spikes showing SIBO. So instead of doing more tests I figured I would start lactose free diet. I am only in day 2. but not sure when I should feel better if in fact I am LI. I was told lactose can be out of system in 6-8hrs and I have seen sites where it takes days or weeks? I also see sites where people actually suffer withdrawls during first couple of days? Any help please : )


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ravenwoodglass Mentor

You may be casien intolerant rather than just lactose. Are you avoiding casien as well as lactose? It isn't easy because it is in so much but you may want to consider dropping dairy in both forms.

pufffee Apprentice
You may be casien intolerant rather than just lactose. Are you avoiding casien as well as lactose? It isn't easy because it is in so much but you may want to consider dropping dairy in both forms.

Casein seems to be more skin related and other things like fever symptoms. I do not have any of these?

ravenwoodglass Mentor
Casein seems to be more skin related and other things like fever symptoms. I do not have any of these?

Casein intolerance can cause a wide variety of symptoms. The best way to tell if they are causing yours is to drop it for a while and see what happens. Are you gluten free? Your symptoms could also be gluten.

pufffee Apprentice
Casein intolerance can cause a wide variety of symptoms. The best way to tell if they are causing yours is to drop it for a while and see what happens. Are you gluten free? Your symptoms could also be gluten.

Yes Gluten free for over a month

GFinDC Veteran

I suggest you stay off dairy for at least a month. You would need to read labels and avoid things with casein, lactose, whey and milk. The reason I say a month is that when you make a big change in your diet, your gut basteria adjust to the changed food supply. Which can cause symptoms in itself. This is just my opinion though. Watch out for meds and probiotics with dairy also.

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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