Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was Just Diagnosed...advice Needed

hazeleyez682

Recommended Posts

hazeleyez682 Apprentice
hazeleyez682
Posted

Hello all!

I recieved my test results yesterday and I came back positive for celiacs. For about a year i have been having digestion issues, skin issues,weight loss,and fatigue. Now i know why, but what's next. What is the best way to convert to guten free? It seems impossible i have been reading and its not just breads and such it effects everything IE the olives in my fridge that contain guar gum. I am totally overwhelmed! HELP!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


momxyz Contributor
momxyz
Posted

start simply!

Fresh fruit, fresh vegetables, chicken, pork, fish, beef all are inherently gluten free. So for dinner, a serving of meat or fish, vegetables of your choice, and some rice. Very satisfying and easy too.

I usually take the lefovers to work for lunch.

Breakfast could be eggs and fruit.

It does take a while to understand the ingredients and labeling so I found it easier to stick to freshly prepared food at home until I started getting the hang of things.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
start simply!

Fresh fruit, fresh vegetables, chicken, pork, fish, beef all are inherently gluten free. So for dinner, a serving of meat or fish, vegetables of your choice, and some rice. Very satisfying and easy too.

I usually take the lefovers to work for lunch.

Breakfast could be eggs and fruit.

It does take a while to understand the ingredients and labeling so I found it easier to stick to freshly prepared food at home until I started getting the hang of things.

GottaSki Mentor
GottaSki
Posted
Hello all!

I recieved my test results yesterday and I came back positive for celiacs. For about a year i have been having digestion issues, skin issues,weight loss,and fatigue. Now i know why, but what's next. What is the best way to convert to guten free? It seems impossible i have been reading and its not just breads and such it effects everything IE the olives in my fridge that contain guar gum. I am totally overwhelmed! HELP!

Welcome!

The good news is many, many things are gluten-free. We have successfully replaced or replicated all of our favorites.

As mentioned simple is best (meat, eggs, vegetables, fruit, rice, potatoes) until you get the hang of reading labels...which can be frustrating at first...but will become easier with time.

Besides the many gluten-free shopping lists to be found here, in books and other websites, the easiest thing for me when we were converting was to google or search this site...on google I'd put the product or ingredient name plus gluten -- most times it brings you directly to posts on celiac.com with plenty of info. If that doesn't work you can call or email the manufacturer -- we've found calling gets the answer quicker, but email works well too.

Will your kitchen be completely gluten-free? If so, start with clearing out the gluten items and wash well or replace items such as colander, cutting board, cooking utensils, etc. Replace your toaster or use a toaster oven by lining your food with foil. If sharing your kitchen with gluten, make sure you learn how to avoid cross-contamination issues...

Continue to ask questions...I found a lot of answers here and you will too.

Oh...guar gum is gluten free...so if there are no other ingredients with gluten your olives should be fine.

Good Luck!

Wolicki Enthusiast
Wolicki
Posted

I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
Welcome!

The good news is many, many things are gluten-free. We have successfully replaced or replicated all of our favorites.

As mentioned simple is best (meat, eggs, vegetables, fruit, rice, potatoes) until you get the hang of reading labels...which can be frustrating at first...but will become easier with time.

Besides the many gluten-free shopping lists to be found here, in books and other websites, the easiest thing for me when we were converting was to google or search this site...on google I'd put the product or ingredient name plus gluten -- most times it brings you directly to posts on celiac.com with plenty of info. If that doesn't work you can call or email the manufacturer -- we've found calling gets the answer quicker, but email works well too.

Will your kitchen be completely gluten-free? If so, start with clearing out the gluten items and wash well or replace items such as colander, cutting board, cooking utensils, etc. Replace your toaster or use a toaster oven by lining your food with foil. If sharing your kitchen with gluten, make sure you learn how to avoid cross-contamination issues...

Continue to ask questions...I found a lot of answers here and you will too.

Oh...guar gum is gluten free...so if there are no other ingredients with gluten your olives should be fine.

Good Luck!

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

Thank you very much this all is helpful.

I share my kitchen with my boyfriend and he has decided he will also go gluten free although he does not need to to support me and make my transition easier. I washed and sterelized all kitchen utensils and pans today. Also i will buy a new toaster. I will begin as suggested with fresh foods. But have found several stores such as whole foods, trader joes, and stop and shop that carry gluten free items. I dont know any others that have celiacs so i believe this site will soon become my link to others like me. Ill keep everyone posted with my progress.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


momxyz Contributor
momxyz
Posted
Thank you very much this all is helpful.

I share my kitchen with my boyfriend and he has decided he will also go gluten free although he does not need to to support me and make my transition easier. I washed and sterelized all kitchen utensils and pans today. Also i will buy a new toaster. I will begin as suggested with fresh foods. But have found several stores such as whole foods, trader joes, and stop and shop that carry gluten free items. I dont know any others that have celiacs so i believe this site will soon become my link to others like me. Ill keep everyone posted with my progress.

The first "prepared" gluten free food I bought was a breakfast cereal, mostly for my daughter, who was used to eating special Kay. It was made from brown rice, and it was OK, and she ate it enthuiastically at first. But we never ended up finishing the box. She ended up converting her breakfasts to puffed rice cakes and some fruit - usually a banana. I usually do yogurt and fruit. (eggs on weekends). But I still miss oatmeal and my mission is to find some that is prepared in a dedicated facility. While oats are gluten free, they are commonly processed in facilities where other glutenous grains are handled, so cross contamination is of concern.

There are two prepared foods that I would suggest to you because they are simple replacements and we really have enjoyed them.

Brown rice pasta is the first. We buy Tinkayada brand, but there are others out there. (and there is corn based pasta too). My husband does not have to eat gluten free, and he is a good Italian to boot, but he likes this pasta better than what we were cooking before. So that's all we have in the house! (We just bought a bulk order of 10 lbs from a food coop - we have our firewood, we just bought oil and we have good pasta - all set for the winter! :lol:)

The other item is a gluten free pizza crust mix. We like Namaste brand; there are others. Again, this is another product my husband honestly enjoys, and my daughter also has "converted" her boyfriend too. As a teenager still in highschool, this was huge for her - not being able to eat pizza with friends? Now we always have a mix in the cupboard for her to prepare and share with her buds.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

What is IMHO?

Another question in my reading i have comne across information about a comprimised immune system. This concerns me with the flu going around. I am a teacher also...should i get vaccinated???

Wolicki Enthusiast
Wolicki
Posted
What is IMHO?

Anher question in my reading i have comne across information about a comprimised immune system. This concerns me with the flu going around. I am a teacher also...should i get vaccinated???

Sorry about that. It's short for "in my humble opinion."

The flu things i very controversial. I personally always get a flu shot because otherwise I get very very ill and end up hospitalized if I get it. Others here have very different opinions>

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,155
    • Most Online (within 30 mins)
      7,748
    lfedas
    Newest Member
    lfedas
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.