Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was Just Diagnosed...advice Needed


hazeleyez682

Recommended Posts

hazeleyez682 Apprentice

Hello all!

I recieved my test results yesterday and I came back positive for celiacs. For about a year i have been having digestion issues, skin issues,weight loss,and fatigue. Now i know why, but what's next. What is the best way to convert to guten free? It seems impossible i have been reading and its not just breads and such it effects everything IE the olives in my fridge that contain guar gum. I am totally overwhelmed! HELP!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



momxyz Contributor

start simply!

Fresh fruit, fresh vegetables, chicken, pork, fish, beef all are inherently gluten free. So for dinner, a serving of meat or fish, vegetables of your choice, and some rice. Very satisfying and easy too.

I usually take the lefovers to work for lunch.

Breakfast could be eggs and fruit.

It does take a while to understand the ingredients and labeling so I found it easier to stick to freshly prepared food at home until I started getting the hang of things.

hazeleyez682 Apprentice
start simply!

Fresh fruit, fresh vegetables, chicken, pork, fish, beef all are inherently gluten free. So for dinner, a serving of meat or fish, vegetables of your choice, and some rice. Very satisfying and easy too.

I usually take the lefovers to work for lunch.

Breakfast could be eggs and fruit.

It does take a while to understand the ingredients and labeling so I found it easier to stick to freshly prepared food at home until I started getting the hang of things.

GottaSki Mentor
Hello all!

I recieved my test results yesterday and I came back positive for celiacs. For about a year i have been having digestion issues, skin issues,weight loss,and fatigue. Now i know why, but what's next. What is the best way to convert to guten free? It seems impossible i have been reading and its not just breads and such it effects everything IE the olives in my fridge that contain guar gum. I am totally overwhelmed! HELP!

Welcome!

The good news is many, many things are gluten-free. We have successfully replaced or replicated all of our favorites.

As mentioned simple is best (meat, eggs, vegetables, fruit, rice, potatoes) until you get the hang of reading labels...which can be frustrating at first...but will become easier with time.

Besides the many gluten-free shopping lists to be found here, in books and other websites, the easiest thing for me when we were converting was to google or search this site...on google I'd put the product or ingredient name plus gluten -- most times it brings you directly to posts on celiac.com with plenty of info. If that doesn't work you can call or email the manufacturer -- we've found calling gets the answer quicker, but email works well too.

Will your kitchen be completely gluten-free? If so, start with clearing out the gluten items and wash well or replace items such as colander, cutting board, cooking utensils, etc. Replace your toaster or use a toaster oven by lining your food with foil. If sharing your kitchen with gluten, make sure you learn how to avoid cross-contamination issues...

Continue to ask questions...I found a lot of answers here and you will too.

Oh...guar gum is gluten free...so if there are no other ingredients with gluten your olives should be fine.

Good Luck!

Wolicki Enthusiast

I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

hazeleyez682 Apprentice
Welcome!

The good news is many, many things are gluten-free. We have successfully replaced or replicated all of our favorites.

As mentioned simple is best (meat, eggs, vegetables, fruit, rice, potatoes) until you get the hang of reading labels...which can be frustrating at first...but will become easier with time.

Besides the many gluten-free shopping lists to be found here, in books and other websites, the easiest thing for me when we were converting was to google or search this site...on google I'd put the product or ingredient name plus gluten -- most times it brings you directly to posts on celiac.com with plenty of info. If that doesn't work you can call or email the manufacturer -- we've found calling gets the answer quicker, but email works well too.

Will your kitchen be completely gluten-free? If so, start with clearing out the gluten items and wash well or replace items such as colander, cutting board, cooking utensils, etc. Replace your toaster or use a toaster oven by lining your food with foil. If sharing your kitchen with gluten, make sure you learn how to avoid cross-contamination issues...

Continue to ask questions...I found a lot of answers here and you will too.

Oh...guar gum is gluten free...so if there are no other ingredients with gluten your olives should be fine.

Good Luck!

hazeleyez682 Apprentice

Thank you very much this all is helpful.

I share my kitchen with my boyfriend and he has decided he will also go gluten free although he does not need to to support me and make my transition easier. I washed and sterelized all kitchen utensils and pans today. Also i will buy a new toaster. I will begin as suggested with fresh foods. But have found several stores such as whole foods, trader joes, and stop and shop that carry gluten free items. I dont know any others that have celiacs so i believe this site will soon become my link to others like me. Ill keep everyone posted with my progress.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



momxyz Contributor
Thank you very much this all is helpful.

I share my kitchen with my boyfriend and he has decided he will also go gluten free although he does not need to to support me and make my transition easier. I washed and sterelized all kitchen utensils and pans today. Also i will buy a new toaster. I will begin as suggested with fresh foods. But have found several stores such as whole foods, trader joes, and stop and shop that carry gluten free items. I dont know any others that have celiacs so i believe this site will soon become my link to others like me. Ill keep everyone posted with my progress.

The first "prepared" gluten free food I bought was a breakfast cereal, mostly for my daughter, who was used to eating special Kay. It was made from brown rice, and it was OK, and she ate it enthuiastically at first. But we never ended up finishing the box. She ended up converting her breakfasts to puffed rice cakes and some fruit - usually a banana. I usually do yogurt and fruit. (eggs on weekends). But I still miss oatmeal and my mission is to find some that is prepared in a dedicated facility. While oats are gluten free, they are commonly processed in facilities where other glutenous grains are handled, so cross contamination is of concern.

There are two prepared foods that I would suggest to you because they are simple replacements and we really have enjoyed them.

Brown rice pasta is the first. We buy Tinkayada brand, but there are others out there. (and there is corn based pasta too). My husband does not have to eat gluten free, and he is a good Italian to boot, but he likes this pasta better than what we were cooking before. So that's all we have in the house! (We just bought a bulk order of 10 lbs from a food coop - we have our firewood, we just bought oil and we have good pasta - all set for the winter! :lol:)

The other item is a gluten free pizza crust mix. We like Namaste brand; there are others. Again, this is another product my husband honestly enjoys, and my daughter also has "converted" her boyfriend too. As a teenager still in highschool, this was huge for her - not being able to eat pizza with friends? Now we always have a mix in the cupboard for her to prepare and share with her buds.

hazeleyez682 Apprentice
I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

hazeleyez682 Apprentice
I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

hazeleyez682 Apprentice
I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

What is IMHO?

Another question in my reading i have comne across information about a comprimised immune system. This concerns me with the flu going around. I am a teacher also...should i get vaccinated???

Wolicki Enthusiast
What is IMHO?

Anher question in my reading i have comne across information about a comprimised immune system. This concerns me with the flu going around. I am a teacher also...should i get vaccinated???

Sorry about that. It's short for "in my humble opinion."

The flu things i very controversial. I personally always get a flu shot because otherwise I get very very ill and end up hospitalized if I get it. Others here have very different opinions>

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.