Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Vent


homemaker

Recommended Posts

homemaker Enthusiast

Been gluten free for a few weeks...going through withdrawal...that just shows me how much I needed to purge gluten from my body!

For the first week I was just so happy, I was on a sort of high...like wow, this is really the answer to my problem

The second week, I was in a frenzy trying to figure this diet out, trying recipes like a mad woman

Then withdrawal hit, I feel somewhat like an addict...

Not that I am craving wheat or gluten or anything, just jittery and wired..and very very hungry...

Now, at the beginning of the third week I feel overwhelmed and tearful. I feel angry that Dr's don't know more about Gluten Sensitivity...

Sometimes it just makes you feel so alone...Thank God for this forum !!!!!

I am grateful however and I try to hold on to that in the best way I can for now...I am grateful for what I do have...

I am just struggling with some hard feelings right now.....a sort of sadness, maybe not far from the feeling of grief...

Thanks I just needed to share what I am feeling...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

There definitely is such a thing as gluten withdrawal, and the grieving process is also real, knowing all the foods we used to enjoy so much will now have to appear in our diet in a different form, if at all. Do not despair, because these feelings will pass. You will learn to accept that doctors know little about celiac and learn how to help yourself and not be angry with them for what they are not taught. It is the medical schools you should be angry with mostly (but the doctors should keep current, mind you--a lot of what they learned in medical school has long since been superseded.).

I'm sorry you are having such a tough time right now, but hang in there and it should start getting better soon.

mamaw Community Regular

You are not alone in your thinking process. You are going through physcial,& mental issues that many of us have gone through. It does get better but there is no set time-frame for all. Keep your focus or eye on the ball because much better health is on the horizon...

Try not to take in to much info all at once, in fact it is almost impossible to learn all this in a short amount of time & have it all correct. I'm a gluten-free mentor & have been gluten-free for a long while now & I still research & learn something new daily....

I always tell my new ones to think naked foods, no sauce, coatings,marinades, you can spice things up yourself.

Buy a few gluten-free dessert mixes so you don't have to try to figure out the learning curve for baking gluten-free from scratch. After you feel you have those things down pat move on to the next step. Ie: making a batch of cookies or a cake.... or another may be reading labels & finding that there are a lot of gluten-free products on your grocery shelf you still can have..

Read the hundreds of posts on here for great recipes, tips & ideas. This is a great resourse with good solid info....another good thought is finding gluten-free restaurants in your area....

If you are craving anything please ask as I bet someone will have the answer on here....

It all will fall into place & we all started at the beginning just like you...

It is okay to go through a greiving process after all you are giving up a vital part of your being & what you were taught as a child.. FOOD. I can tell you that we, a gluten-free family of four do not crave anything that I can't make gluten-free....plus many times you will find you do not care for what you used to love .

Its a win win on the gluten-free lifestyle, better health, renewed power, & a sense of relief...

blessings

mamaw

Northern Celiac Newbie
Been gluten free for a few weeks...going through withdrawal...that just shows me how much I needed to purge gluten from my body!

For the first week I was just so happy, I was on a sort of high...like wow, this is really the answer to my problem

The second week, I was in a frenzy trying to figure this diet out, trying recipes like a mad woman

Then withdrawal hit, I feel somewhat like an addict...

Not that I am craving wheat or gluten or anything, just jittery and wired..and very very hungry...

Now, at the beginning of the third week I feel overwhelmed and tearful. I feel angry that Dr's don't know more about Gluten Sensitivity...

Sometimes it just makes you feel so alone...Thank God for this forum !!!!!

I am grateful however and I try to hold on to that in the best way I can for now...I am grateful for what I do have...

I am just struggling with some hard feelings right now.....a sort of sadness, maybe not far from the feeling of grief...

Thanks I just needed to share what I am feeling...

you are not alone. It took a year before I got a proper diagnosis. I have been Gluten free since April of this year. I have a very serious case of celiac disease and even though I have been gluten-free I still have symptoms. Stick w2ith it things w2ill get better

tmbarke Apprentice

I have to say, I'm right there with you in the struggles and withdrawls and the frustrations and sorrow.

I'm only 1 week into it and I cry over it. I feel hopeless at times struggling to find what I can and can't have. I can have fruits and vegetables in the meantime with meat and milk. I'm learning how to eat from there.

Today I made my first gluten free dinner - I wanted to replace what I was going to miss with the same ingredients that are gluten free and although it's tough, I managed. I'm just not clear on how to cook again and get the timing of scratch prep time to match up.

But I'm doing it.......and by doing so, my symptoms are changing. My eyes are focusing, my throat and tongue isn't swelling, my shoulder doesn't feel twisted and painful anymore, my days aren't spent walking thru water (or a fog as some refer to it).........and to me, the feeling I have now is what I've wanted all along! The withdrawls will be temporary - the stumbling thru the grocery store is just a learning curve........but the way I feel now after feeling the effects of gluten in my body will last forever.

I'm certain we'll feel like new people who can't imagine life any other way again.

I know I can't drink Castillo rum! First mistake!!!! But I am doing fine on Ingelnook boxed wine.

I'm gonna miss the Subway BMT the most! But I'll find an alternative to that too (I can be hopeful)

Vent anytime! I do!

Hugs!

CGally81 Enthusiast
Been gluten free for a few weeks...going through withdrawal...that just shows me how much I needed to purge gluten from my body!

For the first week I was just so happy, I was on a sort of high...like wow, this is really the answer to my problem

The second week, I was in a frenzy trying to figure this diet out, trying recipes like a mad woman

Then withdrawal hit, I feel somewhat like an addict...

Not that I am craving wheat or gluten or anything, just jittery and wired..and very very hungry...

Now, at the beginning of the third week I feel overwhelmed and tearful. I feel angry that Dr's don't know more about Gluten Sensitivity...

Sometimes it just makes you feel so alone...Thank God for this forum !!!!!

I am grateful however and I try to hold on to that in the best way I can for now...I am grateful for what I do have...

I am just struggling with some hard feelings right now.....a sort of sadness, maybe not far from the feeling of grief...

Thanks I just needed to share what I am feeling...

As someone whose withdrawal symptoms (muscle twitching, tingling, heartburn, itchiness) are mostly gone, and whose hunger problem seems to be quickly going away (it was going down and up again, then I removed turkey lunch meat (it's "gluten-free", but cross-contamination may result) and Fudgsicles (malt powder = small amount of gluten, may have been causing hunger), and it's improved so much I ate an almost normal amount of calories for the first time since I went gluten-free over 2 months ago!

Granted, I'd been suffering symptoms for a short period of time before I went gluten-free, so depending on how long you've been having symptoms, your recovery process may be longer than mine. But still, I can tell you from personal experience that it does get better. The hunger really sucks, but it does go away gradually over time. You have to be aware of "hidden gluten". Gluten is in more things than people think.

(For me, I'm now going to test to see if casein affects my hunger. I sure hope I don't have a reaction to that also! If casein affects my hunger, there's another restriction to my diet.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.