Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Withdrawal-jittery & Wired


homemaker

Recommended Posts

homemaker Enthusiast

Well I have really paid attention to my withdrawal symptoms and they seem to be the most acute in the morning, after many hours without food. The first thing I want to do is EAT in the morning and FAST....

Perhaps, I am thinking to keep some juice by my bedside to scarf down upon arising and have a late night snack. It seems that I cannot go without food for long periods of time.

Although my blood sugars tested fine, the mornings feel very hypoglycemic. Walking the dog before I eat is almost impossible since I have gone gluten-free. I feel shaky, jittery and it takes a couple of hours after breakfast to feel reasonably normal again.

I am trying to pay attention to the quality of my foods and to make sure I have protein to work on my carbs. I am eating gluten-free breads and I am NOT carb deficient as far as I know.

It seems as though my body is CRAVING nourishment. I am 55 years old and have NEVER felt this hungry in my life!

Thanks for listening...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Byron of Ashwood Rookie
Well I have really paid attention to my withdrawal symptoms and they seem to be the most acute in the morning, after many hours without food. The first thing I want to do is EAT in the morning and FAST....

Perhaps, I am thinking to keep some juice by my bedside to scarf down upon arising and have a late night snack. It seems that I cannot go without food for long periods of time.

Although my blood sugars tested fine, the mornings feel very hypoglycemic. Walking the dog before I eat is almost impossible since I have gone gluten-free. I feel shaky, jittery and it takes a couple of hours after breakfast to feel reasonably normal again.

I am trying to pay attention to the quality of my foods and to make sure I have protein to work on my carbs. I am eating gluten-free breads and I am NOT carb deficient as far as I know.

It seems as though my body is CRAVING nourishment. I am 55 years old and have NEVER felt this hungry in my life!

Thanks for listening...

This is something that I've gone through regularly over the last three years since my diagnosis and I turned fifty this year. It's very unpleasant fainting around the house while you're franticly getting a meal pulled together while you sweat, are dry mouthed, fuzzy, panicked and in tears. It is also a shock to experience this form of devastating hunger where if it isn't raw or bolted to the floor, you'll devour it furiously!

Conditions improved radically when I followed my doctor's advice, scaled back on my regular meal servings spreading the intake over five mini meals a day. The trick for me, was a protein and carb combo for breakfast, morning tea and lunch, ending with a light protein only with veggies for dinner. Doing this has an immediate effect on the wired and jittery sensations. (I also cooked up spare emergency foods such as several gluten-free sausages that I could keep on hand and quickly turn into an open sandwich, add to a quick dish of rice, gluten-free soup, shelled boiled eggs or semi prepped buckwheat pancake mix to which I only had to add sugar for a sweet base, grated cheese for savoury mix with egg and water and cook in three minutes. With these on hand in the fridge I could grab and bang out something fast in the ten minutes before I'd collapse.) The next vital secret was a structured time plan - not my usual lifestyle. So breakfast was 7am, tea was 10am, lunch was noon, afternoon tea was 4pm and dinner was between 6pm and 8pm. I didn't need evening snacks but there is no reason you can't have something like a glass of milk, gluten-free cheese an apple, pear or even a cup of gluten-free boullion.

Since the start of this year I've made my own gluten-free bread and I always have it on hand. If I'm caught short, I can grab a slice or two and slather on some peanut butter while the rest is being prepped or cooking.

I find that I don't really need much on hand. So it is not a case of perpetual planning and anticipation which takes a lot of the stress away. In my situation, I followed this for two months, increasing my water intake. The change was almost instantaneous as in within 48 hours, do not ignore any hunger signals during this time because I found myself getting close to the edge if I went beyond what my body needed in the shape of reserves.

I also found that a bar of "something" tucked into my work satchel or coat pocket was a blessing if I was trapped outside. Small gluten-free bars of old fashioned peanut brittle are cheap here in the UK, small enough to lug around and will tide me over while I'm in transit or unable to make a meal for an hour. But the sky is the limit for ideas, a few dates stuffed with gluten-free cheese, a small bag of mixed nuts, a boiled egg and gluten-free cracker or slice of bread - that sort of stuff.

Yes your body is deprived and flipping out.

And "yes" there is a withdrawal period coming off gluten as your body sorts things out. (I found that a couple of tablespoons of sweetened lime juice in a glass of water speeded up the process.) Don't feel bad or confused by it. Remember that you need the food. Listen to the warning signals and grab from your emergency stash. You'll probably find that a couple of slices of plain chicken or even a little tuna as a late night snack will help too. After five months of this regime, I found that I was eating less, as in returning to three meals a day, wasn't having these starving frenzies and had shed a couple of stone in weight. My moods were less erratic, I am more relaxed and happier too. My sweet tooth became dormant and all but died on me, as sure sign that my body is processing things properly.

Tip - do not abandon your emergency stash when you get through the next few months, those "attacks" crop up once in awhile.

Good luck. Take heart, things will get better soon and you'll feel much better than you have in years!

Marcus

ang1e0251 Contributor

That's good advice. I would just reinforce that your body is asking if not demanding the food it requires. Don't skimp on what it needs. Just give it as much safe food as it wants. But go heavy on the protein and low carb veggies and light on the carbs and sugars. In the morning a slice of safe lunchmeat chewed slowly turns me around quickly. If you need to walk the dog, you may need several slices in a bag in your pocket. I wouldn't do fruit juice, the sugar in that will have you crashing. Meat or cheese would be better until you can have breakfast.

I also cannot let myself get too humgry or before I know it, I'm in a free fall. If I get that far, I feel bad the rest of the day. I also carry a Lara bar or something with me if I go out so I don't get caught in that down ward spiral.

You'll make it, it just takes a little scheduling that soon becomes habit.

Eric-C Enthusiast

I went through the same exact thing, see my post about yeast, that is what was causing my hypoglycemia and shaky/jittering feeling.

As I go back through my symptoms, chart them out, compare it against foods I've ate, etc it all keeps leading me back to yeast growth.

Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,981
    • Most Online (within 30 mins)
      7,748

    Susan Upchurch
    Newest Member
    Susan Upchurch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.