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Withdrawl Symtoms Or Experiences

tmbarke

By tmbarke
in Coping with Celiac Disease

Recommended Posts

tmbarke Apprentice
tmbarke
Posted

It seems I'm going up and down with moods this week (started gluten-free Oct 12)

I've experienced hostile anger (having to accept this change of eating)

Depression and sadness (no one gets it or is very considerate of your brand new life)

Fog is gone, then comes back with tiredness

Vision is clear and then out of focus again

Pain comes and goes in the shoulder (nothing like it was tho)

No neck swelling or ankle swelling - which is great!

I'm having BM's 3-4 times a day (not D) and urinating all the time!

I feel weak and I feel strong - then weak then energetic and then weak.............

What have you gone thru with your withdrawls? How long do you think they'll last?

DAMN! gotta pee! :o

Any stories and experiences will help mucho lotta!

Tena

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homemaker Enthusiast
homemaker
Posted

Hi There ... I have been gluten free now for about 3 weeks. The first 1 1/2 was great! My constipation had cleared up and I was feeling great.

Then the "hungries" set in! It seems as though I am starving...I want to eat everything in sight.

I feel shaky and weak especially in the morning when I have gone several hours without food...

The weak and shaky feelings go away mid morning when the food gets in my bloodstream....

I am going to try to stay up later at night and have a late night snack before bed.....

I feel like I am in DETOX!

It almost feels like low blood sugar, but I know my sugars are fine...because I had them checked out.

I feel that this perhaps, (of course I am no MD), that it is due to my body craving nutrients or something...

My emotions are on a roller coaster...I am angry that this was not picked up, angry because I can see those

within my family that have suffered so from Celiac....sometimes I just want to cry like a baby....

Maybe some well seasoned gluten-free folks can chime in here with their withdrawal experiences.

tmbarke Apprentice
tmbarke
Posted
  • Author

Homemaker,

I can relate to you!

The emotional rollercoaster for what ever reason there is at the time is crazy!

I had found that one nite I woke at 12:30 with an attack or 'being glutened' with the swelling of the neck and a twisted aching shoulder.........and after that, I craved food so bad that I ate 5 eggs and 4 slices of gluten free bread! I never do that in one setting!

But I'm at the point now where I don't have cravings while being gluten free.

In fact - I eat less and am so satisfied.........perhaps because my mind concentrates on being gluten free more that my stomach comes second to my stresses having to provide for it.

I digest gluten free foods so much easier compared to a BMT from subway on whole grain.....which I thought I was gonna miss the hardest but surprisingly don't.

I'm still with flavor - just different ingredients.

The shoulder blades feels so tight today that I had to have our safety director rub it out or else I was going to start whining!

Thankfully my coworkers help me deal more than I would have expected.

I was feeling so lethargic today sitting at my computer doing paperwork that I wanted to take a nap!

I supply our production workers with paperwork for their shift so I couldn't just peter-out....so I took a nodoz just to put the boost back in me....and it did!

I'm still unrinating 10 times or more a day - but not dehydrated.

Thanks for sharing - I haven't gone thru the shakes yet - but I'm not good company at times for sure!

Tena

homemaker Enthusiast
homemaker
Posted

"I digest gluten free foods so much easier compared to a BMT from subway on whole grain....."

Oh my goodness can I relate to that! It seems like I can eat alot of food and not really feel that full..

I am so more aware of my hunger cycles...than I was when I was eating gluten...

tmbarke Apprentice
tmbarke
Posted
  • Author
"I digest gluten free foods so much easier compared to a BMT from subway on whole grain....."

Oh my goodness can I relate to that! It seems like I can eat alot of food and not really feel that full..

I am so more aware of my hunger cycles...than I was when I was eating gluten...

It IS amazing the way I view food this last week.

I used to have something going in my mouth all day long - even if it was grapes at my desk.

I tried that again today and ....... I'd pick one every 30-45 minutes....I was done and I'd grab one anyways.....so they got put away.

I do notice also (today especially) that I feel almost vertigo - or like I'm walking thru water again - my feet just don't feel stable with my mind.......today I'm just very unstable (like the vertigo effect).

Do you now or before going gluten-free ever get the feeling of lightheadedness or dizziness? Like your air has obviously been blocked from your head?

I was feeling that alot before going gluten-free - and a couple times since going off gluten.

If others can relate - I don't have to worry so much about what I'm experiencing.

I DO feel like a junkie that's going thru withdrawls from my drug of choice - but the 'fix' is so not worth it.

Tena

homemaker Enthusiast
homemaker
Posted

I do feel that way when I first get up, it takes a few hours for it to pass, after I have had something to eat.

I never experienced it before going gluten free...for me it is related to the withdrawal of gluten.

I plan on riding the wave with my gluten-free diet. I have had too many people with horrible diseases due to

Celiac, to take my gluten sensitivity lightly...

CGally81 Enthusiast
CGally81
Posted
I do feel that way when I first get up, it takes a few hours for it to pass, after I have had something to eat.

I never experienced it before going gluten free...for me it is related to the withdrawal of gluten.

I plan on riding the wave with my gluten-free diet. I have had too many people with horrible diseases due to

Celiac, to take my gluten sensitivity lightly...

My story:

Went gluten-free on August 2009, after having had symptoms for like 4-5 months.

First the hunger came, and it was massive. I'd be weak and shaky a lot, and eating huge meals. I didn't seem to be putting on weight, until suddenly I put on muscle, but not fat. (The fat came later, but at the time, I was still consuming small amounts of gluten without realizing it. Had I discovered that problem earlier, I probably wouldn't have put on the fat)

Withdrawal symptoms came shortly after the hunger. Pins and needles feeling in my body. Heartburn. Chills in my legs and forehead. Itchiness with itches that seem to be inside me. The feeling of "bugs crawling all over me". Etc. They came and came HARD, then got slightly better, then worse, then better, then real bad, then much better, etc.

Only last weekend did I learn that Fudgsicles contained malt powder, and therefore gluten, and cut them out. I noticed a big drop in my remaining hunger cravings! But guess what? Withdrawal again, and a new symptom: eating food makes me fatigued and feel lightheaded or have a bit of a headache for a while (this symptom showed up less than 2 weeks ago, and hit its peak 2 days before I stopped eating Fudgsicles. It has largely shown improvement since then, but has been coming and going).

So yeah, withdrawal is real, may be different for each person, and I'm going through it. I'd ALMOST reached the end, only to discover that I was still consuming small amounts of gluten from another source, so now I'm having the withdrawal symptoms again (plus a new one). Fortunately, the previous withdrawal symptoms (pins and needles, chills, etc.) aren't as bad this time around, even if they have returned.

I plan to wait this out. The fact that I'm only 28, had Celiac for only a short while before self-diagnosing via the internet (very glad for that internet), and that a vaccine/cure is being developed and has already entered Phase I testing (as of April of this year!), keep me going. I expect a cure in our lifetimes! Maybe within the next 5 years!

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tmbarke Apprentice
tmbarke
Posted
  • Author

I did have the itchy palms before I was diagnosed.

I had numbness in my mouth and nose and then tingling too.

fortunately I'm not there anymore.

I'm working on the withdrawl now of weak, lethargic and sleep problems.

eye focus is in and out with every day and every new experience thru this gluten free new life.

I'm now curious about V8.........I swear I saw that on a safe list.

anyone really know for sure?

homemaker Enthusiast
homemaker
Posted
I did have the itchy palms before I was diagnosed.

I had numbness in my mouth and nose and then tingling too.

fortunately I'm not there anymore.

I'm working on the withdrawl now of weak, lethargic and sleep problems.

eye focus is in and out with every day and every new experience thru this gluten free new life.

I'm now curious about V8.........I swear I saw that on a safe list.

anyone really know for sure?

V8 Vegetable Juice is gluten free

The website for V8 says the following:

Is there gluten in V8 100% Vegetable Juice?

No. None of the V8 Vegetable Juice products contain gluten

Is there gluten in V8 V-Fusion?

No. None of the V8 V-Fusion products contain gluten

Is there gluten in V8 Splash?

No. None of the V8 Splash products contain gluten.

homemaker Enthusiast
homemaker
Posted

I am feeling a tad better today...perhaps my withdrawal is turning the corner....

It helped to have a late night snack so my blood sugars don't feel so wacky in

the morning....I had a gluten-free Graham Cracker and peanut butter with a glass of milk...

Yes I am still on milk...I will wait till my testing comes back to see if I have to

NIX the COW JUICE... LOL :P

tmbarke Apprentice
tmbarke
Posted
  • Author
V8 Vegetable Juice is gluten free

The website for V8 says the following:

Is there gluten in V8 100% Vegetable Juice?

No. None of the V8 Vegetable Juice products contain gluten

Is there gluten in V8 V-Fusion?

No. None of the V8 V-Fusion products contain gluten

Is there gluten in V8 Splash?

No. None of the V8 Splash products contain gluten.

Homemaker,

Thanks for putting my mind at ease. I was starting to get scared there and doubt what I've read.lol

That wouldn't be uncommon with the withdrawls I'm having.......at work, I was to make labels for our material bundles going to the customer - I f'd up over 70 of them! Just like I could see what I was doing but my mind wasn't comprehending what I was entering on the labels.

I swear I'm a puppet on a string being controlled by some other force! and I'm 98% positive I'm not glutened!

I do have to wonder about fixodent tho. that is the 2% I haven't checked up on (since it's sealed to my gums)

Anyone have a clue on that one?

homemaker Enthusiast
homemaker
Posted
Homemaker,

Thanks for putting my mind at ease. I was starting to get scared there and doubt what I've read.lol

That wouldn't be uncommon with the withdrawls I'm having.......at work, I was to make labels for our material bundles going to the customer - I f'd up over 70 of them! Just like I could see what I was doing but my mind wasn't comprehending what I was entering on the labels.

I swear I'm a puppet on a string being controlled by some other force! and I'm 98% positive I'm not glutened!

I do have to wonder about fixodent tho. that is the 2% I haven't checked up on (since it's sealed to my gums)

Anyone have a clue on that one?

I found this online...but I don't know how reliable it is....

Fixodent"We don't add gluten to Fixodent, but it's possible there may be a trace amount in the product due to the raw materials used to make it. " 4/21/07

tmbarke Apprentice
tmbarke
Posted
  • Author
I found this online...but I don't know how reliable it is....

Fixodent"We don't add gluten to Fixodent, but it's possible there may be a trace amount in the product due to the raw materials used to make it. " 4/21/07

Thanks for checking!

that sucks - any product that works the best is not my gluten-free friend.

Guess I'll be checking more into the adhesives!

You're awesome.

Glad you're coping a bit easier too - as for me, good thing my boss is understanding to the whole gluten free deal.

And I hope you are too - I didn't notice how bad my title was presented!

Withdrawl symtoms? SYMPTOMS!!!!

and I believe I left out the 'a' perhaps? before rollercoaster.

OY VEY!

this is NOT me.........I have to learn to be abnormal now!

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