Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron Questions

Frances03

Recommended Posts

Frances03 Enthusiast
Frances03
Posted

I had some blood tests run this morning and my doctor called to say my iron is low, that I dont have enough iron in my blood and something else I can't remember. the other tests aren't done yet. but my iron level was 37 with 50-170 being normal I guess. She said I need iron supplements. Is this normal with celiac disease, and are there any iron supplements you guys can recommend? I already have problems with constipation so I dont want to make that worse! She wanted to prescribe ferrous sulfate she said.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Raven's Mum Newbie
Raven's Mum
Posted

Raven was just prescribed an iron supplement as well. She's on the ferrous sulfate. Do you like prunes? lol

chatycady Explorer
chatycady
Posted

Ferrous Gluconate - it's a little easier on the stomach. Iron supplements are very hard on a celiac stomach, it irrates instead of heals. If it were me I would avoid suplements and would eat more red meat (grill some hamburgers) and make a liver pate'. Drink orange juice or eat an apple with your meat or iron supplement so it's easily absorbed.

tarnalberry Community Regular
tarnalberry
Posted

I was use SlowFe for a while, and that worked fine. When I got pregnant, my stomach went generally cranky, so I'm now using a liquid supplement (so I can vary the dose more easily) added to my morning orange juice (and my prenatal has another full dose as well).

Wolicki Enthusiast
Wolicki
Posted

Slow FE made me nausueous and C. Before gluten-free I had to get quarterly infusions. Now that I am healing, I can tolerate Ferrous Sulfate just fine, with no ill effects. My little boy, who has a delicate tummy, can also take it with no ill effects.

Raven's Mum Newbie
Raven's Mum
Posted

Raven's only been on it a few days and so far so good. The thought of constipaton makes me really nervous with her as she's had multiple bowel blockages already due to her CF. :( We do have some polyethylene glycol 3350 on hand as she was on it for while so if she starts to feel bunged up, I'll have to give her some. She really likes prune juice to. Go figure. :huh: I wish she wasn't so picky. She goes through phases and right now I can't seem to get her to eat any meat! :(

Roda Rising Star
Roda
Posted

Before diagnosis I couln't tolerate the ferrous sulfate or a rx cromagen. I had horrible acid reflux. I just started taking slow fe brand back in August. I was skepticle because of my other reactions. The good news is that I am tolerating it fine now that I'm gluten free. I just hope it works. My ferritin was 11 in April and that is the highest its been. I guess if the pills don't start working by Dec. I'm going to look at iron infusions. I take two of the slow fe a day when I remember. If you take thyroid meds just remember you have to space them out so long or the iron interfeeres with the absorption of the thyroid meds. I had constipation before gluten free and that of course is so much better. The iron does not bother me in that way either.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Frances03 Enthusiast
Frances03
Posted
  • Author

Thank you guys! I guess my regular doc is going to call in the ferrous sulfate to walmart pharmacy, so we'll see what I get. I do take thyroid meds also, so thanks for that info! and I will try to take it with orange juice, tho I'm supposed to be careful with acidic foods until all my ulcerations heal. no idea how long that takes! the thing is I have been eating a LOT of red meat lately! I had steak like 4 times last week alone!

OptimisticMom42 Apprentice
OptimisticMom42
Posted

If you're worried about iron causing C take mag also. It will help.

Frances03 Enthusiast
Frances03
Posted
  • Author

okay, I will try this. what is it, just over the counter magnesium? how much shoudl I take. I have constipation ALL the time, and I take miralax every night, it does nothing.

If you're worried about iron causing C take mag also. It will help.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748
    Rockette47
    Newest Member
    Rockette47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.