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Iron Questions

Frances03

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Frances03 Enthusiast
Frances03
Posted

I had some blood tests run this morning and my doctor called to say my iron is low, that I dont have enough iron in my blood and something else I can't remember. the other tests aren't done yet. but my iron level was 37 with 50-170 being normal I guess. She said I need iron supplements. Is this normal with celiac disease, and are there any iron supplements you guys can recommend? I already have problems with constipation so I dont want to make that worse! She wanted to prescribe ferrous sulfate she said.

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Raven's Mum Newbie
Raven's Mum
Posted

Raven was just prescribed an iron supplement as well. She's on the ferrous sulfate. Do you like prunes? lol

chatycady Explorer
chatycady
Posted

Ferrous Gluconate - it's a little easier on the stomach. Iron supplements are very hard on a celiac stomach, it irrates instead of heals. If it were me I would avoid suplements and would eat more red meat (grill some hamburgers) and make a liver pate'. Drink orange juice or eat an apple with your meat or iron supplement so it's easily absorbed.

tarnalberry Community Regular
tarnalberry
Posted

I was use SlowFe for a while, and that worked fine. When I got pregnant, my stomach went generally cranky, so I'm now using a liquid supplement (so I can vary the dose more easily) added to my morning orange juice (and my prenatal has another full dose as well).

Wolicki Enthusiast
Wolicki
Posted

Slow FE made me nausueous and C. Before gluten-free I had to get quarterly infusions. Now that I am healing, I can tolerate Ferrous Sulfate just fine, with no ill effects. My little boy, who has a delicate tummy, can also take it with no ill effects.

Raven's Mum Newbie
Raven's Mum
Posted

Raven's only been on it a few days and so far so good. The thought of constipaton makes me really nervous with her as she's had multiple bowel blockages already due to her CF. :( We do have some polyethylene glycol 3350 on hand as she was on it for while so if she starts to feel bunged up, I'll have to give her some. She really likes prune juice to. Go figure. :huh: I wish she wasn't so picky. She goes through phases and right now I can't seem to get her to eat any meat! :(

Roda Rising Star
Roda
Posted

Before diagnosis I couln't tolerate the ferrous sulfate or a rx cromagen. I had horrible acid reflux. I just started taking slow fe brand back in August. I was skepticle because of my other reactions. The good news is that I am tolerating it fine now that I'm gluten free. I just hope it works. My ferritin was 11 in April and that is the highest its been. I guess if the pills don't start working by Dec. I'm going to look at iron infusions. I take two of the slow fe a day when I remember. If you take thyroid meds just remember you have to space them out so long or the iron interfeeres with the absorption of the thyroid meds. I had constipation before gluten free and that of course is so much better. The iron does not bother me in that way either.

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Frances03 Enthusiast
Frances03
Posted
  • Author

Thank you guys! I guess my regular doc is going to call in the ferrous sulfate to walmart pharmacy, so we'll see what I get. I do take thyroid meds also, so thanks for that info! and I will try to take it with orange juice, tho I'm supposed to be careful with acidic foods until all my ulcerations heal. no idea how long that takes! the thing is I have been eating a LOT of red meat lately! I had steak like 4 times last week alone!

OptimisticMom42 Apprentice
OptimisticMom42
Posted

If you're worried about iron causing C take mag also. It will help.

Frances03 Enthusiast
Frances03
Posted
  • Author

okay, I will try this. what is it, just over the counter magnesium? how much shoudl I take. I have constipation ALL the time, and I take miralax every night, it does nothing.

If you're worried about iron causing C take mag also. It will help.

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      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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