Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing


K Dog

Recommended Posts

K Dog Newbie

Well I met with the Gastro on Thursday. Very informative, but also very worried. I need to eat Glutten for 3 days so when he scopes he can see what is going on in my Intestines.

Then he informs me of the much more serious form of Celiacs, not sure of the name but it devours your Intestines and has no cure. Nice thing to tell me before the test will be done. Then it takes a week for the results to come back.....ugh

My First series of blood work came back negative , which he stated is sometimes normal.

Not haveing a good week...

Kdog


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KristaleeJane Contributor

First of all, eating gluten for 3 days will not cause your tests to come back positive, unfortunately. Depending on how long you have been gluten free will also be a factor in the damage to your villi when the biopsy is done. Your blood work was negative because you are on a gluten free diet. You have to be consuming gluten for at least 3-6 weeks or longer for your blood work and your biopsy to have any accurate results. I would recommend continuing your gluten free diet, and having a genetic test done instead, where it is less invasive and you do not have to be consuming gluten for the results to come back accurate. If you are having good results on the gluten free diet then that to me is a positive result, but the only way to know for sure is to eat gluten for 3-6 weeks, or have the genetics test done.

Good Luck..

K Dog Newbie
First of all, eating gluten for 3 days will not cause your tests to come back positive, unfortunately. Depending on how long you have been gluten free will also be a factor in the damage to your villi when the biopsy is done. Your blood work was negative because you are on a gluten free diet. You have to be consuming gluten for at least 3-6 weeks or longer for your blood work and your biopsy to have any accurate results. I would recommend continuing your gluten free diet, and having a genetic test done instead, where it is less invasive and you do not have to be consuming gluten for the results to come back accurate. If you are having good results on the gluten free diet then that to me is a positive result, but the only way to know for sure is to eat gluten for 3-6 weeks, or have the genetics test done.

Good Luck..

My initial blood work was done 2 weeks after I started my Gluten free diet. My results have been great after going gluten free. I went to see the Gastro and he said the only way to tell 99% is by an upper G.I. and some scrapings of the walls. I am not happy about eating gluten again, however I do want to find out what it is exactly...

Worried in Wisconsin

K Dog Newbie
My initial blood work was done 2 weeks after I started my Gluten free diet. My results have been great after going gluten free. I went to see the Gastro and he said the only way to tell 99% is by an upper G.I. and some scrapings of the walls. I am not happy about eating gluten again, however I do want to find out what it is exactly...

Worried in Wisconsin

and then their is the worry of RCD

KristaleeJane Contributor

I am sorry, not familiar with the term RCD?

  • 1 month later...
LoraW76 Rookie

I'm having my first endoscopy this Friday. Blood tests were postive for celiac. I've been gluten-free for nearly 3 weeks. I wasn't told by my Dr. to eat gluten first... I accidentally ate gluten at Thanksgiving and believe me, I paid for it later.

Needless to say, I am worried about the biospy.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,043
    • Most Online (within 30 mins)
      7,748

    Churro
    Newest Member
    Churro
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.