Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerant But With Possible Withdrawl Symptoms


Gobbie

Recommended Posts

Gobbie Apprentice

Hi, I have been away from this site for months now.

I came back because my condition only seems to get worse day by day.

I suspected myself of being gluten intolerant about half a year ago and cut down the gluten consumption when my health dramatically improved. I suddenly felt energetic, positive about life and my skin condition improved noticeably. Before that, I knew I was lactose intolerant and had eliminated cow's milk and so on. Although after all this, knowing I am somewhat sensitive to artificial stuff, chemicals and preservatives, I avoided them but still there were stuff like nuts that almost made me dial for emergency.

I took an allergy test in June. (Not a blood test. It does not involve consuming allergens beforehand) Turned out all the suspected allergens were my actual allergies and intolerances. Gluten, lactose and many more are on my elimination list but since I had found out about them long after unknowingly consuming them, my digestive health was destroyed into a state other suppose to be me friendly food was rejected.

Ofcourse I was low in many nutritions like calcium and vitamins.

Though I am at a worse state right now as despite having been on many supplements since June, since allergies have not been eliminated.. I am more or less broken.

Gluten is the worst.

When consumed, it is the most painful but also the one I have hard time keep away from.

I do not live in a supportive family so I have to be super strong but often during my allergy free days, I feel so dizzy and miserable that I end up looking for gluten. Once a certain amount has been consumed, the dizziness, blurred vision and moodiness is lifted. But only for a while. Soon after symptoms occur and would last until the next day. The pain is so bad that pain killers are useless. Best is to sleep it off.

I prefer to remain annonymous but would like some advice or help.

How can I defeat what I recognise as withdrawl symptoms? Is it possible?

Few months ago, I had this unstoppable motivation but since few months ago, I feel weak and wonder what the point is. Because I have so many allergies, my food and activity list is very limited so everyday is a battle. I can not even go out for meals with friend or to have a drink at the bar. I seem to have lost aim in life.

  • 1 year later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alison R Rookie

Sounds awful. I am sorry that your family is not supportive. My best advice is to cook your own food and go on the specific carbohydrate diet. I believe you start out by eating nothing but grilled chicken, rice and pears. Then slowly add other foods back in your diet. You have to be very slow about food introductions while your gut is healing.

I have eaten at restaurants (not fast food or bar food) with a number of restrictive diets over the years, I often ask for a manager and explain that I have dietary issues. I just create a meal for myself with the manager's help.

I would stay away from alcohol for a while, but when you start to heal, there are LOTS of options for the night out on the town. Hard ciders, gluten-free beers, and mixed drinks using hard liquor.

While you feel bad, these issues feel like the end of the world, but dietary restrictions are just that.....areas that you restrict to help get healthy. And when you start to feel healthy, cooking for yourself is not that big of a deal. My grocery bill is crazy high, but it has helped my health......can't put a price on that. I keep telling my fiance that I'm saving us money......on future medical bills. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,914
    • Most Online (within 30 mins)
      7,748

    Momxiety
    Newest Member
    Momxiety
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.