Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerant But With Possible Withdrawl Symptoms


Gobbie

Recommended Posts

Gobbie Apprentice

Hi, I have been away from this site for months now.

I came back because my condition only seems to get worse day by day.

I suspected myself of being gluten intolerant about half a year ago and cut down the gluten consumption when my health dramatically improved. I suddenly felt energetic, positive about life and my skin condition improved noticeably. Before that, I knew I was lactose intolerant and had eliminated cow's milk and so on. Although after all this, knowing I am somewhat sensitive to artificial stuff, chemicals and preservatives, I avoided them but still there were stuff like nuts that almost made me dial for emergency.

I took an allergy test in June. (Not a blood test. It does not involve consuming allergens beforehand) Turned out all the suspected allergens were my actual allergies and intolerances. Gluten, lactose and many more are on my elimination list but since I had found out about them long after unknowingly consuming them, my digestive health was destroyed into a state other suppose to be me friendly food was rejected.

Ofcourse I was low in many nutritions like calcium and vitamins.

Though I am at a worse state right now as despite having been on many supplements since June, since allergies have not been eliminated.. I am more or less broken.

Gluten is the worst.

When consumed, it is the most painful but also the one I have hard time keep away from.

I do not live in a supportive family so I have to be super strong but often during my allergy free days, I feel so dizzy and miserable that I end up looking for gluten. Once a certain amount has been consumed, the dizziness, blurred vision and moodiness is lifted. But only for a while. Soon after symptoms occur and would last until the next day. The pain is so bad that pain killers are useless. Best is to sleep it off.

I prefer to remain annonymous but would like some advice or help.

How can I defeat what I recognise as withdrawl symptoms? Is it possible?

Few months ago, I had this unstoppable motivation but since few months ago, I feel weak and wonder what the point is. Because I have so many allergies, my food and activity list is very limited so everyday is a battle. I can not even go out for meals with friend or to have a drink at the bar. I seem to have lost aim in life.

  • 1 year later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alison R Rookie

Sounds awful. I am sorry that your family is not supportive. My best advice is to cook your own food and go on the specific carbohydrate diet. I believe you start out by eating nothing but grilled chicken, rice and pears. Then slowly add other foods back in your diet. You have to be very slow about food introductions while your gut is healing.

I have eaten at restaurants (not fast food or bar food) with a number of restrictive diets over the years, I often ask for a manager and explain that I have dietary issues. I just create a meal for myself with the manager's help.

I would stay away from alcohol for a while, but when you start to heal, there are LOTS of options for the night out on the town. Hard ciders, gluten-free beers, and mixed drinks using hard liquor.

While you feel bad, these issues feel like the end of the world, but dietary restrictions are just that.....areas that you restrict to help get healthy. And when you start to feel healthy, cooking for yourself is not that big of a deal. My grocery bill is crazy high, but it has helped my health......can't put a price on that. I keep telling my fiance that I'm saving us money......on future medical bills. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

    3. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

    4. - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,242
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      This article is a few of years old, but my still be helpful.  
    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.